Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-07-2011, 06:04 PM #1
yelocateyes yelocateyes is offline
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Help Help i need a good rsd dr in so. Ca.

MY DR IS GOOD WHEN YOU SEE HIM, BUT IF YOU EVER NEED ANYTHING FROM HIM, FORGET IT AS HE NEVER RETURNS AN EMERGENCY PHONE CALL. I'VE HAD RSD STAGE 3 FOR 9 YEARS NOW AND AM BEDRIDDEN AND TRYING TO GET INHOME PATIENT CARE AS I CAN'T REALLY DO ANYTHING AND I NEEDED A LETTER FROM MY DR. STATING THAT I'M TOTALLY AND PERMENENTLY DISABLED (WHICH I AM) AND IT'S BEEN 5 DAYS OF CALLING WITH NOT ONE RESPONSE!
I LIVE IN SO. CA, RIVERSIDE/CORONA AREA AND AM WILLING TO TRAVEL ANYWHERE AROUND SO. CA. FOR A GREAT DR.
PLEASE HELP ME AS I'M VERY SICK AND NEED HELP AS I THINK MY DR. IS EVIL FOR PUTTING THRU SO MUCH STRESS FOR 5 DAYS FOR NO REASON AND I DON'T WANT TO GO BACK TO HIM.

KIND REGARD,
MELANIE
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Old 04-08-2011, 02:27 AM #2
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Thumbs up Steven H. Richeimer, M.D.

Dear Melanie -

Sorry to hear what you have been going through.

I do have a very strong recommendation for a treating physician, Steven H. Richeimer, M.D., Chief of Pain Medicine at the Keck School of Medicine and Director of the U.S.C. Pain Management Center. I have been his patient since 2003 and can truthfully declare that I have never seen such a combination of technical brilliance, deep compassion, humor and utter humility in any physician. That and he is triple boarded in pain medicine, anesthesiology and psychiatry, having completed full residencies in both psychiatry and anesthesiology.

I have also been authoritatively advised that he is considered the top expert witness on CRPS in California; in a recent Ninth Circuit published opinion they overturned the district court and granted a woman - convicted of murdering her husband by an intentional overdose of medication - a new trial, based solely on Dr. Richeimer's declaration as to the extreme improbability of the prosecution's theory as to the manner of death.* The opinion must refer to the "Richeimer Declaration" close to a dozen times, something I don't recall seeing in the almost 30 years since I graduated from law school: in other words, Dr. Richeimer can also write very well.

And such is his reputation that the credentials of some of his clinical fellows (post-residency) are staggering in their own right. Calls are always returned the same day, if by one of the fellows.

Over the last few of years, the practice of the former U.S.C. Pain Clinic has expanded and Dr. Richeimer has taken on a couple of more recently minted (post-fellowship) pain doctors, who hold the title of Assistant Professor of Medicine at U.S.C. I heard from one person on the forum that she was not able to get into see Dr. Richeimer and was offered one of his associates instead, which I urged her to take, and the feedback that I've gotten sounds as though she is in good hands. That said, in light of the severity of your condition it may be possible for you to be worked into Dr. Richeimer's schedule as a new patient.

Here's the contact information:

Steven H. Richeimer, M.D.
Director, U.S.C. Pain Management Center
1520 San Pablo Street, Suite 3450
Los Angeles CA 90033
323-442-6202
323-442-6255 (fax)

Please note that the U.S.C. Medical Campus is just East of Downtown LA, so that should be convenient coming in from Riverside. I suggest you call and ask to speak to Monique, who may well answer the phone, and briefly explain to her the gravity and complexity of your situation.

Good luck!

Mike


* A sensational case in San Diego, the wife worked in the Medical Examiner's office, where she was having an affair with her boss, but Dr. Richeimer's declaration made clear that the level of the medication found in the husband's tissue samples - left unlocked for 36 hours in the ME's lab before the ME recused his office from the case - were so high (and inconsistent) that it could have only been added to the samples post mortem: someone in office had framed her!

Last edited by fmichael; 04-08-2011 at 04:19 PM. Reason: note
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Old 04-30-2011, 09:09 PM #3
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I would try Dr. Thomas Leverone. I go down to LA every few months to see him, I get ketamine infusions from him. He's awesome. his contact info is in the thread for ketamine doctors
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Old 05-01-2011, 02:47 PM #4
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Hi Melanie,
Sorry to hear about the mess you are going through. Unfortunately, I've been in the same boat since this mess all began 6 years ago too. I've had home health aides in previous years but due to a fall in ICU at Hahnemann (their fault) it left me completely bedridden. I had to have my son pick me up and carry me to bathroom and back again. I could not care for myself at all. Horrible time so I am there with you. I live in PA. What we have to go through in an unbearable amount of pain is beyond me. How can you read or fill out any paperwork when you cannot even lift a pen to sign anything? I am single and have had no one to help me. I had PT, OT, and an aid that came pretty much right away and looked at my condition and about cried. They could not do a thing until I could tolerate any movement so I had to get my pain under control (yeah right). I had been in the ICU 7 days, another hospital stay for 3 days, and 4 ER visits all in a month so needless to say I could not do anything to care for me. I only ate whatever I could keep next to my bed in order to survive. Never want to do that again and pray God will take me in my sleep so I don't have to suffer when the times comes. One great ER doctor realized my situation and got me a hospital social worker in the ER. They came to my house in about two weeks and filed paperwork to get me another state social worker. More paperwork. I was carried to my family doctor in the beginning and was able to get my family doctor to notify the state that I was unable to care for myself. They wanted me to go into a nursing home (at 47). At that point it sounded great to me. Each county and state has their rules and companies that sometimes offer services and thankfully PA has one. It took me over two weeks of reviewing paperwork and signing up and after 4 1/2 months I was able to get a home health aid five days a week (took six months for me to get a good person...some steal from you and others just don't want to work...great system we have here). After being by myself for years with no help and barely surviving on my own I had to readjust to having someone here. I am still in bed trying to get out of it and the person is standing next to the bed while I am in agony. Who wants someone staring at you or waiting to be told what to do while you are crying in pain and don't want anyone around?? It is really hard but we are finally getting it together after 1 1/2 months now. I can tell you it will take time and lots of paperwork and all you want to get is help. But hang in there and keep pushing them when you are able to do so. I would start at your family doctor since he would be the one to start the ball rolling and knows you the best. My fam doc is very efficient and of course I waited four weeks when state said they never received a thing from my doc so all had to be resent. It prob sat on someones desk. I cannot imagine going through all this when you are 80-90 years old and have no one else to help you (like my situation). That is why I pray I die before then so I don't have to go through the pain and all the suffering and THEN state stuff. Oh, and if you own your home you will be in worse shape than ever. PA says when you turn 55 they will start adding up all you owe them and take it from your home and/or your life ins. Amazing stuff. It will all be in my book someday;.) BEst of luck to you.
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