NeuroTalk Support Groups - Saw the Neurologist today...Im SO frustrated!! im venting

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Hello

I just got home from meeting with the new pain doctor. he offered nothing on resolving my inflammation problem. they wanted all my previous MRIs so he could look at my spine to see if he could inject me. then he said he would not write my pain scripts until my next appt...in a month!! so i had to drive all the way to my primary care office to get him to write for my pain meds. he said this is the last time, i dont know why the new guy didnt writ them. the new guy wanted a urine specimen and i tried more than i want to say to go and i couldn't, probably nerves. so they said i could come back any time i wanted before my next appt to give a specimen. this has been such an exhausting day! im still no better off then i was a month ago. lease God help me get through this illness!
hugs and hopes that you are having a better day!
Lori

Quote:

Originally Posted by daniella (Post 761195)

I am sorry and can relate. When you went to see the pain doctor did he suggest anything? For me the pain doctor worked better with pain and inflammation then the neuro. The neuro was more about finding dx and testing.
Some symptoms go hand in hand and stem from the condition so if you get to a better place with the rsd it may help with the swelling. I may be making no sense. An ex is people who have done ketamine it helps their pain but also you see if they had sores they go away. So I am wondering if the swelling is part of the rsd if a treatment that helps that will bring down inflammation.
When you see the pain doctor since you at one time had results with prednisone I wonder about another med to help with inflammation?
Hang in there and hope the apt goes better today

Quote:

Originally Posted by lorigood243 (Post 761351)

Hi Lorigood,
I feel your frustration. I have been through the same experience. I have a suggestion. When you go to a new doctor they are sizing you up as much as you are sizing them up. What I have learned from experience is when a Doctor asks for a urine specimen I don't leave until I produce. I don't care if I have to drink 10 cups of water. Nerves or not if you drink enough you will go and the more you drink the faster it will happen.

Get back to him as soon as you can and next time you are asked don't leave until you give a sample. Failure to comply is the best way to put your meds at risk.

I am sorry about the terrible problem you are having with inflammation. Have you seen a top rate internist to have the problem evaluated? I know how frustrating it is to make the rounds but the inflammation problem has gone on way to long without a treatment plan. If you don't know a good internist do some research. I found one by going to my local hospital cafeteria and asking nurses on their lunch break. When the same "avoid at all costs" names and the "he treats my family" names kept coming up I had a plan. Then I googled "patient reviews of....." to find out what patients were saying bout my choice.

Although I have not had the extent of imflammation that you have, mine was pretty miserable. I did some research and found low dose naltrexone. I asked my neurologist for a script and it has helped me very much. Google low dose naltrexone to learn more. It has been used successfully to treat the inflammation of MS for years.

Hope this helps and keep advocating for yourself!

Teri

Quote:

Originally Posted by lorigood243 (Post 761351)

Oh Lori...I am so sorry to hear this. I know how frustrating it is and sometimes I just want to slap these doctors for their inability to be compassionate with us. It is simply not okay for you to be in pain without refills on your meds for a month. I'm glad you got them from your primary care...but it's also sad he would say something like this is the last time. Every situation should be looked at on an individual basis...and in THIS situation you needed him to write the refills. I keep you in my thoughts every day with the hope that you get answers and relief ASAP.

:hug: