NeuroTalk Support Groups - Husband has RSD....Any spouse out there feel sad?

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Husband has RSD....Any spouse out there feel sad? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/148194-husband-rsd-spouse-feel-sad.html)

guess I should clarify when I said that my husband takes more meds too, some days he may not need to take as many as prescribed but the next day he may need more. Most months he is dead on, but some months he is short, he always talks to his dr about it and the dr tries to adjust the meds accordingly.
Hope that you all are doing well.

Quote:

Originally Posted by Matt638 (Post 782598)

Good Morning,

Thanks for the welcome Jaded. Sounds like you have a great handle on things. Question: How often is your husband mean to you or does he ever make you feel guilty for the decisions you make together regarding the RSD.

Today my wife is off to more doctor appointments. She was very upset because she asked someone besides me to take her when scheduled the appointments. I should mention her doctors are 5 hours away from where we live. She made me feel guilty for not taking her even though she asked someone else. Hard for me to understand.

Another question for you all out there: Do any of your spouses with RSD have a hard time staying within the proper amount of prescriptions for a given amount of time? My wife does, but I don't dare say anything or else she lashes back at me telling me that "you want me in pain".

We started couples counseling on Monday, and she did well. She took the counselors suggestions well and understood everything that was being said while we were there. But damn that RSD and troubled childhood...later that evening and last night every piece of misguided logic came racing back to her. She tells me that she knows what the counselor said, but that is a fantasy world and I need to get over expecting her to change.

I will stick it out with her while she attends counseling because I love her...but if she can't wrap her mind around how she hurts me and my children we will have to make the best lives for ourselves without her. I should also tell you folks that couples counseling was on the horizen before the RSD diagnosis. This disease has simply made everything worse. It is very unfortunate, but I feel that raising my children in a loving household, without guilt and anger, is the most important priority...not RSD.

Thanks!

Hello Matt,

Your words have haunted me and I am posting to encourage you to continue to seek our support. I am humbled by what you are taking on at such a young age. What an incredible job you are obviously doing support your family!!! I can't begin to imagine the stress you must be under.

It is so difficult to be in constant unrelenting pain while mourning the loss of our former lives. But the most vicious pain does not justify mistreatment of a caretaker. I am humbled by your strength, your insight and your commitment to your family and in particular to the needs of your children.

I have been amazed at the outpouring of support from veterans who have been dealing with CRPS for years. Please reach out to us again!

Take Care!!!

Matt is no longer going to be participating in this site for personal reasons. He did receive a great deal of benefit from talking with this group. If you would still be interested in speaking with Matt and providing support please send me a PM. Matt is the best caretaker a woman could ask for. He has done so much to care for our family. I would love for him to have an outlet, like some of you, to vent the frustrations and emotions all care givers face. Thank you.

Quote:

Originally Posted by ballerina (Post 790670)

Hello Matt,

The wonderful thing about NT is having a safe place to vent. The private struggles shared in this particular thread offer some much needed space from the sometimes crushing demands of the daily responsibilities. If posting is not something you are comfortable doing now please send any of us a private message directly.

Best wishes for you continued strength in facing the unique demands of your situation.

Take Care!

Hi, everybody:

I have RSD in my left knee/leg. My boyfriend, who is a police officer, told me he wished he could take my RSD so I would not suffer anymore and so I could be a better mother for our two-year-old baby boy.

He and my baby almost lost me when my boyfriend, who was in the apartment without my knowing about it, barely caught me when I jumped off the 11th floor balcony because a doctor had taken away my narcotics without my consent and the RSD pain was excruciating. Now, I got them back and, at the same time, I got back a life worth being called a "life".

Quote:

Originally Posted by kittycapucine1974 (Post 792167)

Kitty,
Thank you for sharing such an intimate story with us. Sometimes we lose are perspective on what's important in life when the pain is so overwhelming. I keep a picture of my husband and kids on my night stand, when the pain makes me wish to be put out of my suffering, I try and meditate on their pictures. They are the loves of my life, and I pray I will never let my pain come between us, as much as it tries. The pain has become another member of our family, its been hard for my husband and I to accept a third member into our marriage (especially such a crummy one). The more we are able to grieve the loss of our dreams, and focus on our new dreams the better we seem to cope. Thank you again, for the reminder of why we keep fighting, no matter how painful it gets.

wow my heart goes out to you,iam lost for words.:grouphug:

"quote' Hi, everybody:

I have RSD in my left knee/leg. My boyfriend, who is a police officer, told me he wished he could take my RSD so I would not suffer anymore and so I could be a better mother for our two-year-old baby boy.

He and my baby almost lost me when my boyfriend, who was in the apartment without my knowing about it, barely caught me when I jumped off the 11th floor balcony because a doctor had taken away my narcotics without my consent and the RSD pain was excruciating. Now, I got them back and, at the same time, I got back a life worth being called a "life"."QUOTE"

I do not havea spouse he die of cancer last years but I do have a son who has rsd.

Quote:

Originally Posted by dd in pain (Post 794128)

I do not havea spouse he die of cancer last years but I do have a son who has rsd.

Hi I am so sorry for the loss of your husband and also the heart break a mom has watching their child face this. I know the impact it has on my mom. I see you are new to the boards and I hope you find support here like I have. If you want an email buddy I am here too.

Hi,
My name is Mary. My husband has RSD. YES, YES,YES, The feeling of sadness, lonliness, and helplessness, is at times unbearable. We have been married 38 years, and he is my best friend. How do we deal with the fact that my touch is the cause of increased pain. Cannot talk to him about it because it increases his guilt and stress that "He is doing this to me".Yes, I am sure there are others out there like us.
Mary :(

Quote:

Originally Posted by rsdwife99 (Post 760719)

Hi there,
My husband has had RSD for nearly 7 years ....we live in Iowa. I am just wondering if there is any spouse out there that feels lonely ever or just feels like 'there is no one like me'....without going into gory details I woudl first just like to know if there is anyone out there that feels like me.