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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-28-2011, 01:34 PM | #61 | ||
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Junior Member
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guess I should clarify when I said that my husband takes more meds too, some days he may not need to take as many as prescribed but the next day he may need more. Most months he is dead on, but some months he is short, he always talks to his dr about it and the dr tries to adjust the meds accordingly.
Hope that you all are doing well. |
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07-28-2011, 07:02 PM | #62 | ||
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Your words have haunted me and I am posting to encourage you to continue to seek our support. I am humbled by what you are taking on at such a young age. What an incredible job you are obviously doing support your family!!! I can't begin to imagine the stress you must be under. It is so difficult to be in constant unrelenting pain while mourning the loss of our former lives. But the most vicious pain does not justify mistreatment of a caretaker. I am humbled by your strength, your insight and your commitment to your family and in particular to the needs of your children. I have been amazed at the outpouring of support from veterans who have been dealing with CRPS for years. Please reach out to us again! Take Care!!! |
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07-29-2011, 08:03 PM | #63 | ||
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Junior Member
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Matt is no longer going to be participating in this site for personal reasons. He did receive a great deal of benefit from talking with this group. If you would still be interested in speaking with Matt and providing support please send me a PM. Matt is the best caretaker a woman could ask for. He has done so much to care for our family. I would love for him to have an outlet, like some of you, to vent the frustrations and emotions all care givers face. Thank you.
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Eli . . |
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07-30-2011, 06:07 AM | #64 | ||
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The wonderful thing about NT is having a safe place to vent. The private struggles shared in this particular thread offer some much needed space from the sometimes crushing demands of the daily responsibilities. If posting is not something you are comfortable doing now please send any of us a private message directly. Best wishes for you continued strength in facing the unique demands of your situation. Take Care! |
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08-02-2011, 04:45 PM | #65 | ||
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Hi, everybody:
I have RSD in my left knee/leg. My boyfriend, who is a police officer, told me he wished he could take my RSD so I would not suffer anymore and so I could be a better mother for our two-year-old baby boy. He and my baby almost lost me when my boyfriend, who was in the apartment without my knowing about it, barely caught me when I jumped off the 11th floor balcony because a doctor had taken away my narcotics without my consent and the RSD pain was excruciating. Now, I got them back and, at the same time, I got back a life worth being called a "life". |
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08-03-2011, 10:06 AM | #66 | ||
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Junior Member
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Kitty, Thank you for sharing such an intimate story with us. Sometimes we lose are perspective on what's important in life when the pain is so overwhelming. I keep a picture of my husband and kids on my night stand, when the pain makes me wish to be put out of my suffering, I try and meditate on their pictures. They are the loves of my life, and I pray I will never let my pain come between us, as much as it tries. The pain has become another member of our family, its been hard for my husband and I to accept a third member into our marriage (especially such a crummy one). The more we are able to grieve the loss of our dreams, and focus on our new dreams the better we seem to cope. Thank you again, for the reminder of why we keep fighting, no matter how painful it gets.
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Eli . . |
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08-03-2011, 04:23 PM | #67 | |||
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Junior Member
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wow my heart goes out to you,iam lost for words.
"quote' Hi, everybody: I have RSD in my left knee/leg. My boyfriend, who is a police officer, told me he wished he could take my RSD so I would not suffer anymore and so I could be a better mother for our two-year-old baby boy. He and my baby almost lost me when my boyfriend, who was in the apartment without my knowing about it, barely caught me when I jumped off the 11th floor balcony because a doctor had taken away my narcotics without my consent and the RSD pain was excruciating. Now, I got them back and, at the same time, I got back a life worth being called a "life"."QUOTE"
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08-09-2011, 02:33 AM | #68 | |||
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Junior Member
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I do not havea spouse he die of cancer last years but I do have a son who has rsd.
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08-09-2011, 03:58 AM | #69 | ||
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Magnate
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Hi I am so sorry for the loss of your husband and also the heart break a mom has watching their child face this. I know the impact it has on my mom. I see you are new to the boards and I hope you find support here like I have. If you want an email buddy I am here too.
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08-09-2011, 11:10 AM | #70 | |||
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Junior Member
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Hi,
My name is Mary. My husband has RSD. YES, YES,YES, The feeling of sadness, lonliness, and helplessness, is at times unbearable. We have been married 38 years, and he is my best friend. How do we deal with the fact that my touch is the cause of increased pain. Cannot talk to him about it because it increases his guilt and stress that "He is doing this to me".Yes, I am sure there are others out there like us. Mary Quote:
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