Hello, I would like to offer my new found love of Coconut Oil as a wonderful lotion. It has many great health benefits. I use it for lotion and for eating (cooking). I had to order it from an online company. But it works FABULOUSLY!! I had dry skin prior to this RSD thingy and have tried every lotion from cheap to expensive....so so. then my cousin told me about this Extra Virgin Coconut Oil....it goes on greasy, but w/in a minute, grease feeling gone, pores can still breath and off ya go for the day. It looks like crisco, but once you put it in your hands and rub together, instant liquid!!! check it out online for all of the great benefits. I ordered mine from Vitacost.com. Best prices and fast delivery. i make fruit smoothies with the stuff, cook with it OH, and it is a great hair conditioner too!!! I keep a jar in the bathroom and in the kitchen!!! I am so happy i tried it, because i love it!!!

Good luck!!

Hi,

Thanks for the suggestion! I am going to check it out. Hoping maybe I can purchase this at a local health food store!

Thanks again,
Karen

OK guys... What is this Angry Birds you guys are talking about? I am always looking for a good game to help distract me from the pain at 3 am when I am awake yet again.... Will have to look on the itunes store and see if they have it for my iphone!

Oh and I can really relate to the forgetting of things... I have now started putting post it notes around the house so I remember to do things!

Take care,
Karen

Hi everyone Karen I have angry birds on ny iPhone and u can wrk out frustration and have a distracton.
I'm like u in so many ways most of the time my hand is curled up against my body cause I'm so afraid smthng will touch it bump It or anything. My palm is so sensitive to any link of touch, even a light breeze sends me thru the roof. When I shower I have to hold my hand out of the steam cause the water feels like nails driving thru the hand, so washing my hair is all done with my left. By the way I have TOS in left shoulder that shoots pain down the left arm so since Im overcompesating with my left that is also getting worse.
I try to stay positively best I can (I too cant remember things) I pray for those not so bad days so I can enjoy life just a little bit. Anyway sorry I go off on a tangent. I just have a lot to day and not many people to say it to who understand. I will remember ii in my prayers hope everyone sleeps well tonite

Your friend in Delaware
Susan

Hi Susan,

Yes, we sound like we are going through the same kind of things. I also have pain in my neck and my shoulder. The original injury was to my neck/shoulder area but the RSD has traveled down my arm to my hand.

Please go off on a "tangent" as much as you need too. I know it helps me to talk about it when things are just feeling too overwhelming. I also try to stay positive about what is going on, but of course its tough to do some days. So I have allowed myself times when I can have a little pity party as well.

I am going to check out this "Angry Birds" tonight! Was getting tired of my pogo games on the iphone anyways.

Thanks for the prayers and you will be in mine as well.

Your friend in Manitoba,
Karen

Hi Susan,

My sister Suzy lives in Wyoming Delaware. Near lots of Amish farms... She is a nurse, in the process of becoming a NP, and has helped me learn about RSD and meds and docs, etc quite a bit.

There are some excellent docs in the PA, South Jersey area. Dr Schwartzman at Drexel is the best, but there is a 2-3 year waiting list to get in. You can always make an appt then call for cancellations. dr. Knobler in Fort Washington is highly regarded, see Ain't so Bad Pete's postings for his contact info. and I loved Dr Getson in Marlton, NJ. see the recent ketamine thread for the docs listing and phone numbers, he is on there.

Your best bet is to try to see the very best doc in the field that you can, ASAP. Don't mess around. The sooner you get quality treatment, the better your prognosis.

Take care and keep in touch, Sandy

Thank u Sandy, it was kind of u to reply. I live pretty close to your sister. I'm in Smyrna De and Wyoming is maybe 1/2 hour away. Ive heard of swartzman and his waiting list, problem is PA and NJ is over an hour drive one way. I cannot really drive anymore too much cause my left hand/arm (which is my "good" side) gets burning pain and hand goes numb. I usually get my husband to drive me to DR and injections (35 min drive) but he is disabled too. He had a tumor on his spinal cord which was removed last year but the tumor crushed his static nerve at the nerve root. So now he has burning pain down both legs into feet so he can't sit for long or tolerate long car rides. I'm so thankful for him, he would prob drive me cross country to help me even thou he suffers severe pain. Anyway its nice to have new friends to talk to. It's hard to explain RSD to family cause they never heard of it. My oldest sster did make an effort and researched it on the net so she had a better clue of my problem. But on here u can just start rambling about it and everyone understands and I dnt have to go thru long explanations. This site is a Godsend

Thank u so much
Susan

I do not have any idea of how you all with arm and wrist and hand and shoulder problems play angry birds. It causes my feet and legs to tense up. But it does somehow focus your brain so you are removed from the pain. I just wish I could find something more worthwhile to do.

It is an app in the itunes but now there is angry birds rio, and they've pretty much made it impossible in some places.

And did you know that you only have to pay 99 cents once now and then you can use the eagle once an hour. They were probably bringing in the loot hand over fist and feeling guilty. I have yet to use an eagle. But I never say never.

have a less pain day.
pat e