Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-29-2011, 09:40 AM #11
ginnie ginnie is offline
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Location: Anna Maria Island Florida
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ginnie ginnie is offline
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Join Date: Aug 2010
Location: Anna Maria Island Florida
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10 yr Member
Default hi ain't so bad

The problems regarding meds. in this state is particullarily bad , I could have gotten in line for one of these clinics, where the doctors give meds out like candy. These offices usually can be detected just by the exraordinary long lines. It is kind of obvious, as most of these clinics are tucked away in less than full strip malls. There does have to be more steps in place to prevent this kind of thing. It is hurting all the good dr.s that are out there who do treat for pain the right way. I don't like the idea of finger printing or other stop methods, but it is better than the alternative. People are dying from this. Doctors are afraid of patients abusing the opiads, and I dont' blame them. That is why they hold back. I do believe in all the measures the good dr.s try to employ to screen out patients who dr. shop, or abuse. I am ready to give my finger print if it would help. ginnie
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AintSoBad (04-30-2011)

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Old 04-17-2015, 03:09 PM #12
spiritscript spiritscript is offline
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spiritscript spiritscript is offline
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Quote:
Originally Posted by AintSoBad View Post
I've been noticing it seems more and more, that lots of folks are seeing Pain Control doctors, or centers.
This is kind of distressing to me. I think of them as pill mills. Am I wrong? (too much tv?)

Do these folks actually KNOW rsd? Do they know what tests you might need? Therapy?
//////
Remember the circle of RSD pain management?

Exercise (Use it or lose it) Keep your body limber.
(Yea, I'm great at that. I can walk, with a shock absorbing stick, but I cleaned under my desk the other day, bending, reaching, on my knees, and spent the next day in bed). Hah!

Psych. A psychologist, or better, a psychiatrist that specializes in pain management. You should go through a year or so of treatment to exorcise any psychological pain triggers, and then, go prn. Many of these docs, once they get to know you, may do this over the phone, but, I can't reiterate enough, how important it is.

Your Doctor, and your meds. A doctor who understands RSD thoroughly. And, will treat you correctly. You'll know when you've found the right one!
//////

I went to my own doctor and a chiropractor for years, then the chiro recognized (from another patient) the rsd. He got me in to see Dr S. in Philly within a couple of weeks. (that won't happen now)
My current doctor was Dr S's partner @ Jefferson, who started an RSD institute when Jefferson decided to build a HA center, rather than RSD.
He is, of course a Neurologist PhD. (psych). Dr Robert Knobler.
I'm very pleased. (He's in Fort Washington, close to Philly).

I sort of cringe when I see anyone write or say they're going to their PM doc. IF, they're just giving you a script for a medication, without delving deep into your personal symptoms, something is wrong. JMHO, of course.

What do Ya'll think?

Pete

asb
This is the first time I have ever read detailed info like this. Thank you!!! I've been having trouble getting diagnosed, though I'm sure I could now. I am bitter because my neurologist has had me seeing his DNP for the past 3 years and she doesn't "get it!" And worse, she started mentioning surgery on my back. NO WAY!!! This kind of medical "care" is dangerous! I went through two horrible PM doctors. My 3rd one was awesome, but I lost my PPO ins. through a bitter divorce and now only have Medicaid. I know that Drexel in Phila. (where Dr. Schwartzman retired from) takes Medicaid but they can't see me until May, 2016.
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