I have the follow up to my first 3 blocks this morning (since it is 1:30 am LOL). I am nervous about what he is going to say. I haven't met with him for over month now (in fact, I never had a consult for the blocks themselves...long story but I was grateful to get the blocks right away). I do know that between the podiatrist and the PM doc, they feel there are enough symptoms to warrant the blocks. I am trying to prepare myself mentally for an "official" diagnosis. If that comes (which I am expecting for several reasons), what should I ask him? Suggestions?

Thanks. I should get some sleep. haha.
J

Good luck today. I am not sure what you meant by what you should ask him. I would ask what the course of treatment looks like for you? If there are any other dx tests you should have? If you want to talk to him about meds to try or other procedures? Any other symptoms or problems you have had? What you feel has helped and hurt?
Hope you feel better

I was clueless when the doc first suggested CRPS. I mentioned it to my PT guy he didn't have much to say, now I know why.

For me the important thing was to listen to the doc when he said if it causes pain stop doing it. I really didn't realize the extent to which that would go. And since I have it in both lower legs, ankles and feet, for me that means I have tons of slippers, buy epsoms salts buy the barrel(ok it just seems like it), recognizing that putting on shoes and going outside the house results in pain. Socks mean pain. Now I'm overdue for a block which have helped me a lot so I'm more limited just
now, but when all I can talk about is my pain, I just retreat. I don't
want it to contol evey part of my life. I'm living a much simpler life,
and outside of the pain, it isn't bad. We are working on getting a scooter so I can get out withMy husband and do things, but for now(I'm an old woman) I'm learning to be content to write letters, read, cook occasionally, sit outside, let my husband do the shopping and being content with what he brings home. My grandchildren now come over to entertain me, we don't "babysit". I have time to read my bible in the
morning as long as I like, I can listen to my own music. I'm learning on
good day to make preparations for day when my feet do not want to
contact the floor. I do a lot of research, reading about what others are
doing, learn new tips for making life a little easier. I've learned to go
with the flow when my mind just doesn't want to sleep. Doing quiet
things that let my body rest even if my mind thinks it is on the
Autobahn.

And because there are so many hands in the pot in my case, my husband began documenting with pics the changes in my feet, and I
had already been noting on my calendar what kind of day I was having,
especially an extreme pain or a low pain or a new pain day.

I've had a make over of my life, not like the tv shows, but on that let's me see the joy in each new day and strive to do my best for the Lord
every day. Some days my best seems like a pittance but it is still the
best I have to offer.

It has taken me more than 15 months to get here and I still forget and long for my old life, but like a new pair of shoes this life is starting to get broken in.

Now, I do realize that I was only two years from retiring, and if I was much younger I'm not sure my adjustment would have taken the same track, but the thing that gets me down the fastest is when all I can talk
about is my pain. That's when I need some entertainment or strong
distraction.

I hope you have a doc you get along with and a good listener. Mine's
the best, and his staff is too.

listen and learn,
pat