Hi All,

I haven't posted in so long about my daughter. We have been struggling so much. Lindsay was diagnosed with gastroparesis a few months ago. Though it was undercontrol with medications. But, it wasn't. To make a long story short...Yesterday she had a gastric pacemaker placed. Hoping that this will give her some quality of life at such a young age. I toiled with the fact that surgery and RSD are not good. But, I had to give her a chance to live her life like a normal person. Not being able to eat was horrible. Anyway, we are at the Cleveland Clinic in Weston, Florida. We have been in hospitals for over a month now. I am tired and frightened and I am so sad for my child. I wish that I could take this from her. Just thought I would let you all know. I miss you all, but we have been in such a struggle in our lives.

I also wanted to throw this out...Her new pain management doctor is seeing more and more Gastroparesis cases in RSD patients. FYI.

Hugs and kisses,

Sandy

You and Lindsay are always in my thoughts and prayers...I sincerely hope she recovers quickly from her surgery.

please take care......xoxo. Sandy

Hoping Lindsey is feeling much better soon. I feel the pain in your words, my 17 year old daughter is struggling too. This is such a terrible condition and deep inside my heart I fear what she may be facing as she gets older and I cry every day. I feel so bad for Lindsey that on top of RSD, she now has this complication. My thoughts and prayers are with her and your family. You are a strong and wonderful Mother.

Dear Sandy and Lindsey,

I'm so terribly sorry for all that you have all been thru....My heart goes out to Lindsey.. I can understand, somewhat...I have Earlier stage of gasteroparisis...and Im too suffering with it...IT is just awful... My food won't drop into my stomach...Sandy...Iam so scared as this is an awful feeling.... I so wish your Lindsey was not at the clutches of this aggressive disease!!!!

My prayers are with you and your beautiful daughter......always!!!

So sorry...Kathy
Ing

Kathy,

If you are in the earlier stages you should look into the pacemaker. pm me and I will let you know the info. There is hope.

Sandy

Sandy,

I would love to pm you....I have many questions...this tummy RSD is certainly a horse of a different color....I will write , pm you in a day or so...

I am so incredibly sorry for the pain in your heart and your sweet dear Lindsey.....

love, Kathy

My daughter is set to have a gastric pacemaker implanted in Dec 2012. I am looking for anyone who has been down this road!

I believe Sandy S still checks in on Facebook with some of the RSD support groups, I forgot the name but its one for parents of RSD kids. Her daughter is doing much better and is in College. She went through so much with her daughter she would have so much insight for you. Also another parent I know who 12 year old daughter Melanie had the gastric pacemaker too. She also has RSD, please try to check out FB support group.

Hi Rachel, thanks for letting me know on FB. I left Waters86 a post on her original post. xo