Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Closed Thread
 
Thread Tools Display Modes
Old 05-16-2011, 10:58 PM #1
DeesRSD's Avatar
DeesRSD DeesRSD is offline
Junior Member
 
Join Date: Nov 2010
Location: AZ
Posts: 88
10 yr Member
DeesRSD DeesRSD is offline
Junior Member
DeesRSD's Avatar
 
Join Date: Nov 2010
Location: AZ
Posts: 88
10 yr Member
Default hi

Quote:
Originally Posted by asutfin View Post
Hi, I am new to the group. I had foot surgery in 12/09 and ended up being diagnosed with RSD a few months later. I have been on Neurontin, Lyrica, done spinal nerve blocks, etc, etc.
I flew out of state and had Calmare Therapy and it put me in remission. I would absolutely recommend anyone with RSD to at least look into it. You can contact me if you want to ask questions that I might be able to answer.
Anyway, that is my story. I wouldn't wish RSD on ANYONE! It's horrible!!!

Sincerely,
Allison Sutfin
Hi Allison and welcome to the group. I'm sorry you suffer from RSD and I am happy you found relief with this treatment. I did go watch the CBS or was it ABC news video on it as I always curious when anyone states they've "found a cure" like this doctor stated.

What concerns me personally is when the reporter had it done and she said it felt like when you give blood, needle draw, but if it works then I guess it would be worth the pain of that, for some.

I wasn't happy at all that they used the terms "CRIPS". I had a newbie doctor following my regular doctor on rounds one day and came into my room saying so your the CRIPS, I looked him directly in the eye and said if you ever say or call me crip again, you will be one, his eyes got so big and my regular doctor smiled so big and said oh yes, she is serious; lesson learned.

But I didn't mean to get off subject, they said in that report that insurance is not covering it yet and that it costs about 3000, did you have to pay this amount?

Please know that I am very interested and I hope my post didn't come off sounding brash, I am in a flare right now so I hesitate to post but felt compelled to.

Again, I am so very very happy this is working for you and I pray it continues to. I'd love to hear more.
---------------------------------------------------------------------

Mike: Your thoughts/research please

Dee
__________________
~ Refuses to use speller checker becasue Im not perfect and Im okay with that ~
.
DeesRSD is offline  
"Thanks for this!" says:
wswells (05-23-2011)
Old 05-23-2011, 09:10 AM #2
6kiddos 6kiddos is offline
Junior Member
 
Join Date: Apr 2011
Posts: 61
10 yr Member
6kiddos 6kiddos is offline
Junior Member
 
Join Date: Apr 2011
Posts: 61
10 yr Member
Default

Interesting. I have been looking into it. My aunt had it done for trigeminal neuralgia (sp?) and it has really helped her. I know that is not CRPS but I have been thinking it might be worth a try for at least the consult. She told me that you would know in the first appt if it works for you. We will be driving () through the area where it is available and I am seriously considering at least doing the consult.

Thanks for giving your experience.

J
6kiddos is offline  
Closed Thread


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Calmare Therapy Treatment? Dr. Smith Medications & Treatments 12 10-27-2014 09:37 PM
Calmare Therapy Treatment Dr. Smith Chronic Pain 0 02-26-2011 11:57 PM
Calmare Treatment Cured Our Son! klmullican Reflex Sympathetic Dystrophy (RSD and CRPS) 23 07-14-2010 10:44 PM


All times are GMT -5. The time now is 05:55 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.