Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-11-2011, 10:58 AM #8
daylilyfan daylilyfan is offline
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Join Date: Oct 2006
Location: ohio
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daylilyfan daylilyfan is offline
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Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
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I loved my iPhone while I could afford the coverage. Now I have the free Safelink for a cell phone. When my iPhone contract was up, I used it as an iPod. I have MobileMe with Apple, so it would still wirelessly sync with my Mac for my calendar, contacts, podcasts, books on CD, podcasts.

My iPhone battery died, and it was one of the original ones. So could not get a new battery. Had to just throw it out, as they were giving people a new phone with two year contract instead. Could not afford that. I bought an iPad to use because it is hard for me to sit at a computer and type. I am using the iPad now. When I do use the Mac, I use a headset and dictation software called MacSpeech.

Then my Mac died after my battery backup/surge protector went bad and I did not know it. A storm fried it. I could not afford a new One, so I used just the iPad for months, and I really missed the iPhone that I was using as an iPod for podcasts and the calendar and notes. So, when I bought a new Mac, I got an iPod 4 also.

Now I am all "wired". It really helps. They all sync up to each other. All the notes, bookmarks, email, books, podcasts, photos, videos, etc. are the same. Every time I get near my wifi or join a hot spot, it syncs.

I keep my medication list and doctor info on there. Am in the process of scanning my MRI, CAT scans etc. And putting in PDF form to put on to. Also want to add to a thumb drive to add to my service dogs collar.

What really bothers me the most is that I have such trouble learning and concentrating. I used to love to read novels, and to learn new things. Reading is very hard for me mentally as well as physically now. Ebooks are a bit easier physically, all though the iPad gets heavy quickly. The iPod is lighter, but the screen is so small.

I used to love teaching myself about new things. Now I can't seem to learn anything. I signed up for to an online site to learn software like iPhoto. It is not college courses. I have done a lot of their classes five years ago, to learn photo correction in Photoshop, they also have some pretty detailed computer classes. I tried to do a couple easy ones a couple months ago, and really struggled. Very frustrating.

I have had RSD 11 years now. Pain meds have not helped. I do take Topamax and baclofen, and rarely get more than 3-4 hours sleep. I try to give myself a break, thinking that who could think straight in this much pain for this many years, on very little sleep, taking meds that are known to mess with thinking?
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