Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-09-2011, 04:46 AM #1
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Originally Posted by krank View Post
I totally agree with you...when I went into the doctors office where I was to get the scs trial his office looked like I stepped into a Sprint or ATT store..It was crazy. Huge billboard like posters showing the latest and greatest scs equipment...I almost asked him if they had a app to start my car with it...When the doctor showed up all he talked about was the new Boston scientific with the new auto timer function to stop it after 20 minutes..I almost had to ask him if actually wanted to see my RSD infected leg...I actually did the trial with that hack....Oh and when he found out it didnt work on me his demeaner changed like a flip of a switch....He wanted nothing to do with me.....And actually blamed me for it not working.. Bad experience all around....Sooo if your in Fargo ND just PM me and I will give out the name of the quack...I know that its harder for the scs's to work on lower limb RSD...Thats just what Ive heard...Everyone IS different...After my experience I learned to do my homework when its come to doctors now.
On that note, check out a post I put up a couple of years' ago on the greasing of palms that clearly surrounded the whole medical implantation industry. Scs cost 57,000??? R u kidding (post #13) http://neurotalk.psychcentral.com/thread97952-2.html I suppose the only "good news" in the picture is that Medtronic's sales of SCSs fell by 1% in 2010, over the previous year, suggesting that someone is finally getting the message. Medtronic’s Profit Falls 19 Percent on Layoff Costs, THE ASSOCIATED PRESS, May 24, 2011 http://www.nytimes.com/2011/05/25/bu...mplants&st=cse

Seriously, for anyone interested in this area, you should check out the articles posted by the RSDSA on its Medical Achieve page, under the heading Spinal Cord Stimulation and Neuromodulation at http://www.rsds.org/researchlibrary.html#SCS. When you cut through the fluff - and there are a lot of articles by doctors who serve as paid consultants to the industry, it is absolutely uncontested that in the best possible case, a SCS will provide relief for no more than three years, time in the early stage of one's illness that you could otherwise have used to pursue therapies that are not as effective once your RSD/CRPS has become "chronic," i.e., old and cold.

Mike

ps And I sure would like to know how my old post - the one Ballerina referred to - was removed from NT. Because it's gone. And I'm 100% convinced that NT management had NOTHING to do with it . . . .
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Old 06-09-2011, 05:17 AM #2
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...... And I sure would like to know how my old post - the one Ballerina referred to - was removed from NT. Because it's gone. And I'm 100% convinced that NT management had NOTHING to do with it . . . .
Is this the thread you were looking for Mike?

I found this one by using the search option but if this isn't it, I'll look again for you.

http://neurotalk.psychcentral.com/sh...ors#post746529
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Old 06-09-2011, 01:08 PM #3
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Is this the thread you were looking for Mike?

I found this one by using the search option but if this isn't it, I'll look again for you.

http://neurotalk.psychcentral.com/sh...ors#post746529
Sadly, no. Please check out my thread - Searches limited to 500 posts (by name at least) - in Community & Forum Feedback at http://neurotalk.psychcentral.com/thread149888.html

Mike
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Old 06-10-2011, 06:25 AM #4
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My primary care physician just suggested a SCS implant for me and referred me to one of his colleagues who, as my doctor quoted, "can do them in his sleep."
I have decided that from now on when a doctor suggests a SCS, rather than to "just say no" I will ask the following question.

1) What percentage of your income is derived from performing SCS implants?

Then I will say "NO".
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Old 06-10-2011, 11:26 AM #5
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Default Drs and SCS

I over the past 18 months have been to 5 PM Dr.s. 3 I was set to and the other I wanted a 2nd. opinion. 4 told me before even looking at me that I needed a SCS right away. Only one said that he would have to try many different types of treatments until we have the right one.

Also the only Dr. that did not bring up the SCS told me only after asking him about the SCS that in most cases where in the upper body like hands, arms SCS did little to no pain relief. If it worked at all he found it to only work for a short time. This was meant more for lower back injury to nerves around the spinal Colin. As time past sale reps started to push these for other treatment such as rsd/crps.

All my other Dr.s back, hand, GP all have agreed with me to not have a SCS implanted due to the trauma it causes and will spread my crps II in my back and hip area.

Everyone of the PM Dr.s that wanted to place a SCS in me I asked to talk with other patients of there's that had this done . 18 months have pasted and not one name from 4 Dr.s.

My current PM Dr. is one of the 4 pushy Dr.s the only reason I go to him is because he is 4 miles from my house and being under all the meds I am taking sometimes I have to drive myself to his office so I choose the closes one to me. Until I get really good backing from folks that have had a SCS for a year or more and can answer all my questions that are proven to work well will little to no problems I will not let anyone touch me. Also I am not to crazy about some sales rep doing all the fine tweaks after. I have read so many horror story's about reps blowing off the patient. Hell I know a banker friend that got tired of being a banker in the investment area and went to work as a sales rep for a large medical firm. He my be tweeting SCS now. I know he could not find the gas filler on his car to put fuel in. My point is do we really know who is going to be the one that will help us at the most circuital time.

Bottom line is my two dogs get better treatment by their Vet then I do from my pain Dr. The one Dr. that did not push or even bring up the SCS was very good but I could not afford him at $187.00 + per office visit before anything is done.

Most PM Dr.s are not worth going to they don't really care and it shows. But I have no choose in the matter I have to go every 30 days so my pain scrips are refilled. There are good PM Dr.s out there but you have to pay a lot more to see them because they are not part of most ins plans.

I have very good insurance with great coverage and low co pay but I have found that the really good Dr.s are not part of the plans for office visits only when we need procedures done. The system still needs work.

Sorry for the long drawn out rant. Just my 2 cent worth.
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Old 06-05-2011, 01:32 AM #6
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Originally Posted by Rachel4444 View Post
Hi, I am new to the forum and was wondering if there was anyone who could advise me? I am due to have a trial spinal cord stimulator this summer. I have had nerve damage and CRPS in my left foot for eighteen years now and have tried numerous treatments but to no avail. I'm currently on a mixture of morphine, ketamine and zopiclone to name a few!
I was just wondering if anyone has had the trial or even the full operation and could tell me how they found it, did it work? What does it feel like? I would be really grateful if anyone could help
Thanks, Rachel
My husband just had that done and i am not a fan of it but I know that it is different with everyone, We are just on the trial now and come monday i am hoping that they will have a better idea for him. Please keep us posted on how it works for you
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