Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-31-2011, 06:25 AM #4
Rachel4444 Rachel4444 is offline
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Join Date: May 2011
Posts: 55
10 yr Member
Rachel4444 Rachel4444 is offline
Junior Member
 
Join Date: May 2011
Posts: 55
10 yr Member
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Quote:
Originally Posted by daniella View Post
Hi. I think from people I know who have had the scs it really varies from person to person. I am assuming since you have had rsd for so long you have tried a lot of treatments? You stated you are ketamine but have you done the infusions? How did you respond to things like blocks etc? Do you feel comfortable with the doctor who is doing the scs and does he or she treat a lot of rsd patients? I think that is very key.
Welcome to the forum by the way though sorry you are facing this
Hi Daniella, thanks for your reply. Yes I have had 6 opeations on my foot, I have also tried numerous drug trials and had Intravenous guanethidine blocks and sympathetic nerve blocks. These helped a little but only for a very short time (up to an hour) and the relief wasn't anywhere near good enough to continue having them done. I'm kind of at the end of the line now, and really hoping this will help.
I'm being seen by a doctor in the Walton Centre Liverpool, he is a senior lecturer in pain medicine and seems to really know his stuff
Thanks again for your time
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chronic pain, crps, spinal cord stimulator


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