Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-10-2011, 11:26 AM #14
hurting hurting is offline
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Join Date: May 2010
Location: Midwest
Posts: 98
10 yr Member
hurting hurting is offline
Junior Member
 
Join Date: May 2010
Location: Midwest
Posts: 98
10 yr Member
Default Drs and SCS

I over the past 18 months have been to 5 PM Dr.s. 3 I was set to and the other I wanted a 2nd. opinion. 4 told me before even looking at me that I needed a SCS right away. Only one said that he would have to try many different types of treatments until we have the right one.

Also the only Dr. that did not bring up the SCS told me only after asking him about the SCS that in most cases where in the upper body like hands, arms SCS did little to no pain relief. If it worked at all he found it to only work for a short time. This was meant more for lower back injury to nerves around the spinal Colin. As time past sale reps started to push these for other treatment such as rsd/crps.

All my other Dr.s back, hand, GP all have agreed with me to not have a SCS implanted due to the trauma it causes and will spread my crps II in my back and hip area.

Everyone of the PM Dr.s that wanted to place a SCS in me I asked to talk with other patients of there's that had this done . 18 months have pasted and not one name from 4 Dr.s.

My current PM Dr. is one of the 4 pushy Dr.s the only reason I go to him is because he is 4 miles from my house and being under all the meds I am taking sometimes I have to drive myself to his office so I choose the closes one to me. Until I get really good backing from folks that have had a SCS for a year or more and can answer all my questions that are proven to work well will little to no problems I will not let anyone touch me. Also I am not to crazy about some sales rep doing all the fine tweaks after. I have read so many horror story's about reps blowing off the patient. Hell I know a banker friend that got tired of being a banker in the investment area and went to work as a sales rep for a large medical firm. He my be tweeting SCS now. I know he could not find the gas filler on his car to put fuel in. My point is do we really know who is going to be the one that will help us at the most circuital time.

Bottom line is my two dogs get better treatment by their Vet then I do from my pain Dr. The one Dr. that did not push or even bring up the SCS was very good but I could not afford him at $187.00 + per office visit before anything is done.

Most PM Dr.s are not worth going to they don't really care and it shows. But I have no choose in the matter I have to go every 30 days so my pain scrips are refilled. There are good PM Dr.s out there but you have to pay a lot more to see them because they are not part of most ins plans.

I have very good insurance with great coverage and low co pay but I have found that the really good Dr.s are not part of the plans for office visits only when we need procedures done. The system still needs work.

Sorry for the long drawn out rant. Just my 2 cent worth.
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"Thanks for this!" says:
ballerina (06-10-2011), fmichael (06-10-2011), SandyRI (06-10-2011)
 

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chronic pain, crps, spinal cord stimulator


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