[maus]

hi, everybody, hope you are having a good day since the end of the world did not come as promised. i am new here, so maybe somebody could answer this question- I had a severed sensory radial nerve branch 6 months ago and apart from the pain in the arm developed the systemic symptoms of shortness of breath on the affected side, increased heart rate and palpitations, lack of facial mimicking on the right side, basically if anyone had done yoga, it is like the energy is not moving through the right side. the right arm gets tired really quickly but now the right leg is doing the same, so i cannot stand on it for too long etc. so, the question is if this sounds familiar to anybody and maybe what should i expect, since my md says none of this makes sense. also, how do you cope with insomnia. i will be really grateful to any answer, thank you and wish you liberation from all suffering. paul

[Dubious]

Originally Posted by maus

hi, everybody, hope you are having a good day since the end of the world did not come as promised. i am new here, so maybe somebody could answer this question- I had a severed sensory radial nerve branch 6 months ago and apart from the pain in the arm developed the systemic symptoms of shortness of breath on the affected side, increased heart rate and palpitations, lack of facial mimicking on the right side, basically if anyone had done yoga, it is like the energy is not moving through the right side. the right arm gets tired really quickly but now the right leg is doing the same, so i cannot stand on it for too long etc. so, the question is if this sounds familiar to anybody and maybe what should i expect, since my md says none of this makes sense. also, how do you cope with insomnia. i will be really grateful to any answer, thank you and wish you liberation from all suffering. paul

Hi Paul,

MD's mostly never see RSD unless they are sorryass surgeons or pain management docs. I guarandamntee 98% wouldn't know an RSD patient if it bit them on their south side, let alone what to do with one.

And sorry, sucks to get no sleep. I hear ya. Everyone will have something different to say and I will only relate my personal remedy which is 0.5 mg lorazepam at bedtime. Gets me through to 1 or 2 in the morning. On rare occasion I get to toss and turn until 5 am! Whee! I'll take it.

Oh, Lot's of coffee in the daytime (heard it lately also promotes a 60% decreased chance for prostate cancer too).

[daniella]

Welcome to the boards though sorry for your condition. Did a neurologist dx you? What is the dx and what tests were run? Sorry if I am confused. I think it is important to rule out other conditions. Some people like msyelf have RSD but I also have PN. If you have ruled out other conditions seeing a pain doctor who deals with the condition is very important. As for insomnia that is my middle name. I have tried so many meds for sleep,anxiety I could go on. Have you? If not I would encourage that because the pain and lack of sleep issue is very bad for the body and mind obviously.

[hannah1234]

Remeron the 15mg oral disolving tablets is a dream come true for sleep. I break it into 1/4's you dont have to take more than a 1/2 of a pill as it works the same as a whole one.... and it makes me fall asleep within 15 minutes, and I sleep through the night MOST of the nights. It is the one med i recommend to all and you take so little that its awesome. and make sure that you get the oral disolving tablets. its not marketed as a sleep medicine, but my dr uses it as one and dear goodness 2 1/2 years later I am still happy sleeping majority of the time. And i have tried MANY sleep meds and therapies, and this works by farrrrr the best. Hope it helps!

[maus]

Originally Posted by Dubious

Hi Paul,

MD's mostly never see RSD unless they are sorryass surgeons or pain management docs. I guarandamntee 98% wouldn't know an RSD patient if it bit them on their south side, let alone what to do with one.

And sorry, sucks to get no sleep. I hear ya. Everyone will have something different to say and I will only relate my personal remedy which is 0.5 mg lorazepam at bedtime. Gets me through to 1 or 2 in the morning. On rare occasion I get to toss and turn until 5 am! Whee! I'll take it.

Oh, Lot's of coffee in the daytime (heard it lately also promotes a 60% decreased chance for prostate cancer too).

hi, thanks for the advice i do take clonazepam. coffee makes me worse.

[maus]

Originally Posted by daniella

Welcome to the boards though sorry for your condition. Did a neurologist dx you? What is the dx and what tests were run? Sorry if I am confused. I think it is important to rule out other conditions. Some people like msyelf have RSD but I also have PN. If you have ruled out other conditions seeing a pain doctor who deals with the condition is very important. As for insomnia that is my middle name. I have tried so many meds for sleep,anxiety I could go on. Have you? If not I would encourage that because the pain and lack of sleep issue is very bad for the body and mind obviously.

hi, thank you very much for your answer, i am in the process of being diagnosed but my md thinks i have a ptsd and pain-wise the symptoms remind of those of crps2. however it is not easily diagnosed in early stages. paul

[hurting]

Paul

If your nerve was cut like you said then you have CRPS Type II. You only get this with cut nerves or by shot gun wounds, knife wounds, surgery gone bad and the Dr. cut a major nerve, ect. CRPS Type I is when someone spans their wrist, or can get it after many surgeries and so on.

CRPS Type I is more difficult to DX because of the unknown that can cause it then Type II is.

[maus]

Originally Posted by hurting

Paul

If your nerve was cut like you said then you have CRPS Type II. You only get this with cut nerves or by shot gun wounds, knife wounds, surgery gone bad and the Dr. cut a major nerve, ect. CRPS Type I is when someone spans their wrist, or can get it after many surgeries and so on.

CRPS Type I is more difficult to DX because of the unknown that can cause it then Type II is.

thank you dear hurting, but that is my whole point-i tell my md that it hurts upward from the wrist into the shoulder and kind of spills into the other arm and the same side leg and they tell me that it should not be happening.
i feel like telling my md that yeah, i SHOULD be in costa rica sipping cocktails but that is just not happening. by the way, does inability to relax come with crps as well? i am always anxious-is it the injured nerve sending the alarm signal to my brain? thanks for your answer, peace, paul

[hurting]

Being over anxious in most cases is from the meds that you are taking for the pain. As far as your Dr. not agreeing about the crps spreading 70% will tell you it does not spread. It takes time but you need to fine a Dr. that knows and understands crps to get the right treatment. It's hard but keep looking until you fine the right one. I have been at it for 4 years now. Good Luck.

[maus]

Originally Posted by hurting

Being over anxious in most cases is from the meds that you are taking for the pain. As far as your Dr. not agreeing about the crps spreading 70% will tell you it does not spread. It takes time but you need to fine a Dr. that knows and understands crps to get the right treatment. It's hard but keep looking until you fine the right one. I have been at it for 4 years now. Good Luck.

Hi, Dennis, i was wondering what you take for sleeping and does having crps make your sleep very superficial? thanks, ll the best. paul