Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-19-2011, 02:47 PM #34
Jimking Jimking is offline
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Join Date: Mar 2009
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Jimking Jimking is offline
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Join Date: Mar 2009
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Quote:
Originally Posted by nigel ep3 05 View Post
Just finished from an appointment with a local pain specialist/anesthesist. After examining me and going through my history, she believes that there is an underlying problem besides the crps. She said that there is a change that’s its my popliteal nerve that is damaged/entrapped in my muscle. I have done every single nerve test and not of them resulted in any nerve damage however she saif that it will not show up. Could this be true? She is insisting a do pulsed radiofrequency asap in the exact point of pain (in the muscle/tendon that connects behind my lower knee). She want to interrupt/release the pain signals.

Im really not keen on this as it sounds really invasive for me as i can hardly touch the area and im also worried that it can make things much worse as they have been in the past! She has dealt with 100 of cases hear and is known to be the best pain expert on the island.

Im really fed up with so many different diagnosis and although she knows the crps is there, there is definelty an underlying problem triggering it. I though it was my tendon but now im not sure anymore!! There must be a way of confirming what is this triggering problem!?

Does anyone have any info on pulsed radiofrequency? Has it worked for crps?

Thanks,

Nigel
Hi Nigel, Sorry to hear the infusions didn't knock this thing out of the park. I vaguely have heard of pulsed radio frequency. I believe I've heard of it on this site and it may not be pleasant at all, if I recall, but I could be very wrong about that recall. I have heard of cases where a person was diagnosed with RSD, had it for years, showed all the signs of RSD and had several EMGs with no positive nerve entrapment. This one person was a member of this site. Her last post was sometime ago. It turned out she had trapped nerves in her feet and with surgery they were released. All her RSD symptoms vanished. I'm not advising invasive surgery but that entrapment can mimic RSD. Just be very carfull
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