NeuroTalk Support Groups - Double vision and crps

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Double vision and crps (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/152425-double-vision-crps.html)

Teen I am sorry you ended up in the hospital. When is your neuro apt? I would keep calling for a cancelation to get squeezed in. I agree it is important to rule out other conditions. I always fear I will brush something off as rsd and it be something different. Did they discuss maybe a med that is used for migraines? Hope you feel better

Hannah I can so relate as I tend to not go out in the sun much from my eyes too. I made my bedroom into a dark room with the black out shades. Now my ears seem to be similar to my eyes

Double/Blurry Vision

Quote:

Originally Posted by teen1976 (Post 780869)

This CRPS thing is now really taking over. I have had the condition for 8 years now after my hand being shut in a door. The condition in in my hand, arm, well actually I feel like Two Face from Batman lol, split down the middle.

For the past few months my vision has started to become a problem. I have double vision, I have seen an opthamologist who is waiting for me to speak to my consultant as she feels it's related to the CRPS. In the meantime I have a fabulous prism stuck to my glasses,:cool: this is not helping and I peel it off when at home as it makes me feel quite sick.

I'm on no medication at the moment as I seem to react badly to everything! I just wondered if anyone else experiences this double vision and is it permanent? Or as with most things related to CRPS is it different for each individual. I would be very grateful for even the smallest bit of advice as I think I will probably find out more from the rest of you then my consultant.

Thanks for your time and energy.

I have recently started having a more difficult seeing. Problems with double vision and a sense of vibrations behind my eyes. I did not realize that others with RSD were having the same issues. Who is it better to address the issue through, your pain doc or eye doc? Hope you are getting so relief!

Quote:

Originally Posted by elijjennings (Post 788299)

I have seen many pain doctors who deal with rsd and also many eye doctors. Many eye specialists have no clue what rsd even is. I think though it is always important to rule out other conditions so I would see an eye doctor and the pain doctor. Some pain doctors who deal with rsd even are not good with treating the eyes because they are more focused on the limbs. For myself I am hoping if I get rsd relief in my limbs from a treatment or meds etc it will help the eyes too

My eyes seem to be getting worse with the progression of RSD. The eye on my left side ( worst side) twitches constantly now also. When I had my SCS implanted it made it much worse, had a hard time even watching TV. For other reasons I have had to leave the stimulator off, but my vision still remains shaky and strenuous.
I also find sensory overload to make my pain worse. Dark quiet rooms, focusing on breathing, is where I find my most relief right now.
Wish you all the best.

Quote:

Originally Posted by daniella (Post 788489)

Hi Michelle here, I have CRPS in my lower limb but spreads around. I have found over the last few months my eyes have got worse, soreness, foggy vision, eye strain, now I don't know if it is to the CRPS but my pharmacist told me that one of my meds I'm on Lrycia causes I damage so will be seeing Pain Specialist soon so will mention this to him.

Might want to do a google search for neuro-ophthalmologists in your area. Is it RSD or myasthenia gravis or any number of other things.

Quote:

Originally Posted by DarlaDaniels (Post 782261)

I have been dealing with CRPS for 6 years now & I too began having eye problems but it was more of a blury sensation than double & also eye pain. It is difficult to get doctors to connect the two or to connect anything else to it & even harder to get insurance to believe that, but there are many things that get heaped upon us after having this disease.
Certain medications definitely make my eye issues worse, especially anti-seizure meds. I also seem to be allergic to most of the types of meds they have tried & have bad reactions to many others. Since I never needed any of these before I didn't know until I broke out in hives, rashes, sweats, vertigo, etc. again & again with every new med, so now I stick to strictly pain meds & refuse anti-seizures & any of the anti-depressent types they often prescribe & the hives finally subsided.

Hi, I don't know if you have tried Norspan patches, they are a 7 day slow release patch, a little morphine base. I am on 20mg patches and find they work well when I'm not in big flare up with the CRPS, I am also on Lyrica and was told by my pharmacist that long term use of Lyrica can cause eye problems. I have been suffering with CRPS for 13yrs now and I have Ketamine Infusions every 4 to 6 months and gee that works a treat. Hope you are having a good day, me not as getting ready for another infusion. Cheers Michelle