Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-05-2013, 07:23 PM #1
pipasally62 pipasally62 is offline
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Location: Tasmania Australia
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pipasally62 pipasally62 is offline
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Join Date: Aug 2013
Location: Tasmania Australia
Posts: 4
10 yr Member
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Quote:
Originally Posted by DarlaDaniels View Post
I have been dealing with CRPS for 6 years now & I too began having eye problems but it was more of a blury sensation than double & also eye pain. It is difficult to get doctors to connect the two or to connect anything else to it & even harder to get insurance to believe that, but there are many things that get heaped upon us after having this disease.
Certain medications definitely make my eye issues worse, especially anti-seizure meds. I also seem to be allergic to most of the types of meds they have tried & have bad reactions to many others. Since I never needed any of these before I didn't know until I broke out in hives, rashes, sweats, vertigo, etc. again & again with every new med, so now I stick to strictly pain meds & refuse anti-seizures & any of the anti-depressent types they often prescribe & the hives finally subsided.
Hi, I don't know if you have tried Norspan patches, they are a 7 day slow release patch, a little morphine base. I am on 20mg patches and find they work well when I'm not in big flare up with the CRPS, I am also on Lyrica and was told by my pharmacist that long term use of Lyrica can cause eye problems. I have been suffering with CRPS for 13yrs now and I have Ketamine Infusions every 4 to 6 months and gee that works a treat. Hope you are having a good day, me not as getting ready for another infusion. Cheers Michelle
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