Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-11-2007, 09:03 PM #1
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Hi In His Hands--I'm sorry that your foot is so swollen and painful. Is there some way someone can get you a LARGE pair of those bedroom slippers that are ussually made out of soft terry that look like "spa slippers"--maybe the men's type so you can get them large enough to fit your bad foot. Aorund here, they are usually found at the Pharmacy Chains (can I post names)--well here goes--Longs, Wal-mart, Rite-aide or K-mart, and are inexpensive. Gosh, they are kind of hard to desrcibe--no backs, an open toe and a wide strip that goes across the top of you foot. When a friend broke her foot and it was the size of Cincinatti, that kind of men's slipper was the only thing she could get to fit.
(She painted her toe-nails a crazy colour, just to "liven things up" a bit!)

I hope your swelling goes down and you can find SOMETHING comfortable.

Brokenwings
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Old 03-12-2007, 02:59 PM #2
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try leather ballet slippers. Not the pointe shoes, but just the slippers. I get them in my regular size and one or two sizes bigger so whaen my feet swell up I can still have something on my feet.
Good Luck.
P.S. Even Walmart carries them
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Old 03-12-2007, 06:40 PM #3
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Hey IHH

hope it went ok today!

Just a quick other thought - in the UK we get sock boots - which are really big (fluffy) socks which then have grips on the bottom. They are quite good (and soft and warm)

Love

The amazing pretzeled frog xxxxxxxxx
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Old 03-13-2007, 02:01 PM #4
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Quote:
Originally Posted by frogga View Post
Hey IHH

hope it went ok today!

Just a quick other thought - in the UK we get sock boots - which are really big (fluffy) socks which then have grips on the bottom. They are quite good (and soft and warm)

Love

The amazing pretzeled frog xxxxxxxxx
Hey! I had to go to physical therapy yesterday with a shoe on one foot and just a sock on the other (it was swollen 2x it's normal size!)... my therapist was shocked to see how much it had swollen, and he measured both feet, and my left was about 1 1/2- 2 inches bigger than my right!

After my therapy mom took me to get a pair of extra wide shoes... pretty hard to find when you already have wide size 11 shoes! The lady in the shoe dept. was real sweet and took the time to bring out around 10 different shoes, but they were all too small/ had heels/ no open back. I ended up getting a pair of "Crocs" (they are clogs that are like hard foamy material) in men's size 12! They just fit with my swollen foot, and I had to get something to wear. I'll tell you, they aren't the most attractive, but they work! LOL! The only thing is there is teeny up-raised knobby type things sticky up in the bottom, so I have to put a sock there so I don't feel like they are stabbing me really really hard (I already feel that way trying to walk, and when I add those things on the bottom of the clogs, it makes it SO much worse!)...

...well, I found something anyways!


Thank you everyone for your ideas! I can't tell you how much I appreciate it!

Trix, those leather balley shoes sound really great! I'll look into those!!

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Old 03-13-2007, 04:01 PM #5
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Hey IHH

what colour crocs did you get? they are awesome!! I Want a pair!!! (but, I am refusing to buy more shoes until I can wear them again - haven't worn them in 5 years - stopped wearing them because of the hypersensitivity and the swelling (used to get ulcers if anything pressurey touched me). Mum spent about $120 on a really soft pair of shoes that were similar to baby bootees for me - but haven't managed to desense into them (1 year on from getting them).

Shame the crocs are spiky.. hope the swelling eases up soon. I used to have a sheet of paper on my bedroom wall where we recorded how the swelling was - measured big toe, foot, ankle, calf, knee, thigh, finger, thumb, wrist, elbow. It is really pleasing to look at the chart when you have a good period with the swelling and look back at how it's improved. Also, it's useful for drs to see the fluctuations in the condition.

Take cAre
Love

Frogga xxxxxxxxx
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Old 03-13-2007, 08:43 PM #6
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Hi Their,

I have been wearing the flat Clark's shoes. I sure miss my pumps.

http://www.amazon.com/gp/search/ref=...e=1&tag2=km-20

Hugs, Roz
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Old 03-14-2007, 11:09 AM #7
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I have to wear a brace on my rsd leg and foot because of the foot drop caused from the surgery that gave me rsd, so that is rough going. because of the rigidity of that brace i have to take the brace off several times a day but cannot walk without it. I use wide sneakers to help get around that swelling problem. I have to wear shoes with backs that hold on to the brace ... it is a problem. how I miss my slip on canvas shoes! and my dr. schols wooden sandals. it was so hard to give those away. joan
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Old 03-16-2007, 12:00 PM #8
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Quote:
Originally Posted by frogga View Post
Hey IHH

what colour crocs did you get? they are awesome!! I Want a pair!!! (but, I am refusing to buy more shoes until I can wear them again - haven't worn them in 5 years - stopped wearing them because of the hypersensitivity and the swelling (used to get ulcers if anything pressurey touched me). Mum spent about $120 on a really soft pair of shoes that were similar to baby bootees for me - but haven't managed to desense into them (1 year on from getting them).

Shame the crocs are spiky.. hope the swelling eases up soon. I used to have a sheet of paper on my bedroom wall where we recorded how the swelling was - measured big toe, foot, ankle, calf, knee, thigh, finger, thumb, wrist, elbow. It is really pleasing to look at the chart when you have a good period with the swelling and look back at how it's improved. Also, it's useful for drs to see the fluctuations in the condition.

Take cAre
Love

Frogga xxxxxxxxx

Frogga, I got black crocs. They are HUGE! I cannot say I am too fond of them... I told my physical therapist that my foot was two times it's normal size, and he said that he thinks my shoe is two times it's normal size. Hey, it's the best I could find for now!

I have had to wear the crocs the past few days, as my one foot is swelling pretty badly. Overnight the swelling will go down a teeny bit, but then after walking on it the swelling comes right back and sometimes worse.

That sounds like a good idea with measuring the swelling. Thanks for telling me about it!!

Hope you well.
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