Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-30-2011, 04:28 PM #1
Swatgen27 Swatgen27 is offline
Member
 
Join Date: Oct 2009
Location: Illinois
Posts: 114
10 yr Member
Swatgen27 Swatgen27 is offline
Member
 
Join Date: Oct 2009
Location: Illinois
Posts: 114
10 yr Member
Default Update: Completed 5 day out-patient ketamine

Hello Everyone,

The last few months I have been having a really hard time with my CRPS battle. I was house bound, and pain levels were the highest they have ever been since the CRPS started 4 plus years ago. I couldn't sleep, eat (lost 15 lb's and didn't have extra weight to loose), I couldn't even think straight, my b.p. & heart rate was extremely high, and the swelling and coldness in my legs also got worse.
None of my Dr's here in Illinois had a clue how to treat my case so I pulled myself together enough to realize that I needed to fight for my life. Roughly 2 years ago I tried ketamine infusions at Rush, and they administered it once weekly for 3 treatments. I had great results with the outpatient treatments but the head Dr recommended that I do the 5 day inpatient infusion with a cathadar placed simotanuosly to administer a continuous nerve block. This Dr was well aware that I will nolonger participate in any treatment that involves the spine so I voiced my concerns and the head Dr at Rush lost it and had the absolutely worse attitude of any person I have ever met so I decided he wasn't the Dr for me and left Rush all together.
So long story short and 2 years later my CRPS was out of control. I started researching ketamine infusion treatments and found Dr Leverone that works out of LA California. Dr Leverone is the best Dr I have ever met. He was able to treat me within 3 weeks of when I contacted him for the first time. I had to have clearance for the treatment (labwork and a physical). Dr Leverone's treatment protocol is somewhat different but I have to say it has been a miracle for me. Dr Leverone infuses the ketamine at 1000 mg over the course of 4-5 hrs. At Rush I was infused with 400mg over 4 hrs. According to Leverone the increase in ketamine allows for less boosters as his patients usually have the 3-5 day treatment and then no boosters for 3-6 months. I have been pain free since day 2 of the treatment and I finished the treatment last Friday. Also, after completion of the infusions, Dr Leverone's protocol includes taking oral ketamine for 14 days.
I'm so thankful to have found Dr Leverone and I would recommend him to anyone fighting CRPS. I hope everyone is having a good day and I pray that everyone gets great relief from their symptoms of this disease.
Sarah
Swatgen27 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cndangel (07-02-2011), DeesRSD (06-30-2011), kathy d (07-01-2011), RSDjaded (07-01-2011), SandyRI (07-01-2011), wswells (07-02-2011)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Ketamine update byates Reflex Sympathetic Dystrophy (RSD and CRPS) 3 03-17-2011 11:10 PM
Post Ketamine Patient Now Struggling momzpeachy Reflex Sympathetic Dystrophy (RSD and CRPS) 2 12-13-2010 04:26 PM
Out patient ketamine @ with Dr. Shwartzman began today Reddawn600 Reflex Sympathetic Dystrophy (RSD and CRPS) 5 11-19-2010 07:12 PM
Ketamine - an update SandyRI Reflex Sympathetic Dystrophy (RSD and CRPS) 3 05-10-2010 08:28 PM
In patient ketamine treatment SBOWLING Reflex Sympathetic Dystrophy (RSD and CRPS) 13 01-30-2010 07:42 AM


All times are GMT -5. The time now is 09:07 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.