Hi, everybody:

I would like to know if the RSD I have in my left knee could "turn into" Central Pain Syndrome. The anesthesiologist who put me out for my first Anterior Cruciate Ligament (ACL) reconstruction said it could happen in some people. What do you know about this? What are your experiences of RSD sufferers with Central Pain Syndrome? I know many health conditions could lead to Central Pain Syndrome, but is this the case with RSD? Thanks for your replies and information.

Priscilla

Hi, everybody:

Oh, I just wish I could get if only one reply to this message. I spend my time wondering where I might have gotten my Central Pain Syndrome from and my son spends his time worrying and crying. So, pleaaaase help! Please! I am begging you! I feel so sad and desperate! Thanks.

Priscilla

[nigel ep3 05]

Hey Priscilla,

Really new to this syndrome so I might be wrong but my understanding is that CRPS might spread from just the sympatetich nervous system to the whole nervous system.

Someone please correct me if im wrong.

Nigel

Hi, Nigel:

Thanks for your reply.

Quote: "My understanding is that CRPS might spread from just the sympathetic nervous system to the whole nervous system".

Are you saying that when CRPS has spread from the sympathetic nervous system to the whole nervous system (called CNS or Central Nervous System), that is when CRPS is then called Central Pain Syndrome?

I wonder what the differences are between CRPS and Central Pain Syndrome when it comes to their symptoms and diagnosis.

Thanks again for you reply and information.

Priscilla

Hi, everybody:

My suspicion is that when the RSD pain goes from SMP (Sympathetically Maintained Pain) to SIP (Sympathetically Independent Pain), that is when a person goes from having RSD to also having Central Pain Syndrome. Am I wrong?

[debbiehub]

sounds like you are on the right track. My RSD went from Symp. maintained to centralized after a hip replacement....

Hi, Debbiehub:

I am the kind of person who needs to know what is going on with her body. I also need physicians to put names on the various syndromes and diseases I suffer from; it helps me feel they are not in my mind, that is, that I did not make them up.

I am happy you think I am on the right track; I feel more reassured and closer to finding the answers I am looking for.

Quote: "My RSD went from Symp. maintained to centralized after a hip replacement." So you have Central Pain Syndrome on top of RSD, just like me. May I ask what kind of doctor made your diagnosis (pain management physician, anesthesiologist, orthopedic surgeon, neurologist, etc.)?

Thanks again.

[DarlaDaniels]

Priscilla,
You should really subscribe to the RSDSA.org site & get the monthly newsletter in the mail. If you have not checked them out yet you need to. They provide the most up to date information.
CRPS is the latest name they have given RSD because they have found evidence that it effects more than just the Sympathetic Nervous System.
They are always learning more but it is important for YOU to be on top of it because doctors who do not see patients regularly with this don't know & you can easily be told you have something different or that it is all in your head.
check out RSDSA (dot) ORG

[daniella]

I think some importance too is it may mean different treatment. I know for me since procedures were making me worse my pain doctor/anestesolgist felt the pain is now in my brain and not just in the spine. That is why he put the scs on hold cause he was fearful it would make my pain worse.
For me it was my pain mangement/anestesolgist. To me a pain doctor should be both. I also though was dx from my neurologist.
Hang in there and feel better

[daylilyfan]

Priscilla, I sent you a PM....