would just like once again to encourage all those with reservations about Ketamine to at least consider speaking with their Doctors about it.
A little less then a year ago, I honestly didn't want to live anymore because I couldn't take the pain. My RSD began in my neck at least 7 year ago and spread from head to toe on my left side. I spent most of my days unable to function through the pain despite being on every opiod, narcotic, etc.

Since my 5 day in patient Ketamine last November, improvement was slow but steady over the winter months. I followed the protocols, has my boosters with Dr. Shwartzman and now receive them every 6 weeks with a more local Dr. and before I realized it, the pain was gone. Not down to a one or two, that happened months ago. I'm now at a zero.

I haven't felt this good in 10 years and really didn't believe I ever would again. If anyone out there is on the fence about trying it, please seriously consider it. I went undiagnosed for 7 years and it still completely turned me around. I do expect flare ups, especially come winter, but this is more then I ever could have dreamed of.

My RSD is head to toe on my left side, it been in my brachial plexus area most likely after a fall from a tree and then spread through 6 surgeries which followed, not to mention tons of icing and every "wrong treatment" that could have been done. If mine could be turned around like this when doctors said it was severe, who knows what it could do for so many others.

If you're considering it but on the fence as to whether to try it, PLEASE give it a a chance. Words really can't express how grateful I am to finally feel like I have my body and life back.

Best wishes to all,
Dawn

Best wishes to all,

Dawn

I just found out that I am going to be doing the Keatmine inpatient treatment. What was the experience like? Please I would love to know anything possible! I am very nervous but excited at the same time. at finally being able to relieve some of this pain. Please anything you can share I would love to hear.

[QUOTE=Reddawn600;788896]would just like once again to encourage all those with reservations about Ketamine to at least consider speaking with their Doctors about it.
A little less then a year ago, I honestly didn't want to live anymore because I couldn't take the pain. My RSD began in my neck at least 7 year ago and spread from head to toe on my left side. I spent most of my days unable to function through the pain despite being on every opiod, narcotic, etc.

Since my 5 day in patient Ketamine last November, improvement was slow but steady over the winter months. I followed the protocols, has my boosters with Dr. Shwartzman and now receive them every 6 weeks with a more local Dr. and before I realized it, the pain was gone. Not down to a one or two, that happened months ago. I'm now at a zero.

I haven't felt this good in 10 years and really didn't believe I ever would again. If anyone out there is on the fence about trying it, please seriously consider it. I went undiagnosed for 7 years and it still completely turned me around. I do expect flare ups, especially come winter, but this is more then I ever could have dreamed of.

My RSD is head to toe on my left side, it been in my brachial plexus area most likely after a fall from a tree and then spread through 6 surgeries which followed, not to mention tons of icing and every "wrong treatment" that could have been done. If mine could be turned around like this when doctors said it was severe, who knows what it could do for so many others.

If you're considering it but on the fence as to whether to try it, PLEASE give it a a chance. Words really can't express how grateful I am to finally feel like I have my body and life back.

Best wishes to all,
Dawn


Dawn,

So happy for you. I'm sure your good fortune will continue.

I saw you on the Ketamine Klub:RSDS/CRPS Facebook Site, you look beautiful by the way on your wedding day. What a great year you truly have had. Congragulations again. It's always nice to hear a happy ending.

Good luck again and truly wish you the best.

Gabbycakes

Thank you for sharing. I have really been thinking of trying ketamine but probably with Dr Kirkpatrick. I am just so fearful of getting worse with this condition from past issues that have. Positive stories help though in terms of being more willing to try ketamine.
How long was your wait to see Dr S? I thought he did not do boosters?
I just put in a request for the site on facebook.
Anyhow I am so happy for you and congrats on getting married too

Thank you for sharing your experience. I am set to do the treatment in September. I am very nervous, but excited at the prospects of getting out of this pain! Did you have any adverse side effects?

Thanks Daniella! It's been a very busy but very happy couple of months. I was actually very fortunate and did not have a wait to see Dr. Shwartzman. Dr. Richman at HSS in NY did my in patient and has a close working relate ship with Dr. Shwartzman. Dr. Richman made the calls and arranged for me to have my boosters done there with Dr. S.

I did actually leave Dr. S though a few months ago although I do think he's wonderful and I owe him a debt of thanks I could never repay. I a, currently seeing a Dr a bit closer to home and getting my boosters more frequently and at a higher dose which either is a coincidence or is what has brought me into a remission.

My Dr in NY did not do boosters and Dr. S did not do 5 day in patients so they worked together to get those done for the patients.

Thanks for your feedback. I am glad you are having happier times.
I had thought Dr S did not do boosters? So he refered to Dr Richman or do I have it backwards?

You have it backwards. Dr. Richman doesn't do any outpatient ketamine, Dr. Shwartzman does in his infusion suite which is located across the street from Hannehman. There's 10 chairs and normally there were 2 nurses and Dr. S would come be once during the infusion to briefly check in on each patient. Dr. Richman does do pain management at HSS but to my knowledge, none odd the doctors at the hospital for special surgery do outpatient boosters.

Yes, that has been our experience as well. One year ago my daughter was sleeping her days away (or attempting to sleep is more the case). After inpatient ketamine and frequent boosters her life has been so much better. Not every day is pain free but most are low pain and she is able to go back to doing normal kid stuff. It is such a blessing.

Liz

Thank you for these posts, hearing more about the treatments, and the success. I'm really nervous, but so excited to get some relief.