Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-23-2011, 06:28 AM #1
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Sunflower Singer Sunflower Singer is offline
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Join Date: Mar 2010
Location: West Virginia
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Sunflower Singer Sunflower Singer is offline
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Join Date: Mar 2010
Location: West Virginia
Posts: 5
10 yr Member
Shocked RSD exacerbation

Hi my name is Renee, I was on the old forum some years ago. I have had RSD for 13 years. I am having a really bad flare. I had a medial maleolus fracture,it happened last week in May. It is healed but RSD is very bad. I am only able to walk 15-30 minutes 2x day. Fortunately, I have a wheelchair that I found at a yardsale for a reasonable price. Itook MS Contin in June but I hate narcotics & stopped it. I am using Ultram,resting & elevating leg, and marijuana for pain control. Ultram really wires me which isn't good as RSD gives me insomnia too. I have found marijuana to be an excellent pain killer. I like it in tincture form best & edible form.It lasts longer.When I have a flare the my interstitial cystitis flares too. I started having severe elbow pain 2 1/2 years ago. I had low dose ketamine tx in 2003 with Dr. Harbut. I think I need it again. Does Medicare pay for it? Actually I have an Advantage plan medicare this year so maybe I should call the company to see? At any rate I would have to go out of state. I live in West Virginia.
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