NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Let's share painful areas today! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/154247-share-painful.html)

cindi1965 07-30-2011 04:20 PM

I started the Blog/Vlog this morning, but I am going to revamp it in the morning, but I really didn't like my entry. The title of it is Really? You Don't look Sick. I am going to track my progress or degress, which ever you want to call it. Today I am at 1096th day of officially having RSD, so I will title my entries by the days since I was diagnosed. I think I am going to post a thread for input. I feel like I am doing something useful:)

suz66 08-01-2011 07:36 AM

I have had RSD/CRPS for about 2 years now. It started when I broke my right elbow and lost the use of my hand and arm for 8 months. In the last two years, I feel as though I have aged about 50 years. In the last six months, it has been the worst. I have trouble walking. Was told it wouldn't spread, but I have deep pain in my hips when I walk, and pain in my knees, ankles, and feet. It is the worst when I first get up in the morning. I feel stiff and walk like a penquin half the time. Maybe I should just buy a tux and accept my fate. Ha! I am trying to lose weight and am going to my chiropractor again. Am allergic to all pain meds tried. In spite, I feel blessed. Concerned, though, cause will be doing alot of walking this summer when go get my son at Marine OCS. Praying that I can get around ok. =)


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