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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Junior Member
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In a nutshell..
CRPS - 4.5 years (Right lower leg and foot) Age 37, female, thin Had SCS implant April 2010 Like all of us, I've experienced numerous other health problems since the onset of CRPS, mainly gastric, hospital acquired infections and bone depletion, teeth breakage). Since I got c.difficile over a year ago, my GERD and nausea have increased, an I've got chronic diarrhea, muted only by morphine, which exacerbates the nausea to vomiting. Several food intolerances are still being worked out. However, I am sometimes struck with crippling pain in my left hip bone area (but internally ![]() Then three weeks ago my legs became mottled, a rash a few days later, and now it looks like my little toe is losing it's shape/strength. My GI was useless and I am waiting to see another in September. My pain clinic is closed for August, at least as far as my anesthesiologist is concerned. Has anyone else had these experiences - mainly the food intolerances, and skin mottling/rash? Only my right leg is affected, yet both have the same mottling and rash. Thanks, and good dreams to you all. |
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#2 | ||
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Member
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I have the food intolerances, have since I was a teen. A nutritionist said they were hypersensitivities, of course to all my favorite things.
The skin mottling and rash could be made worse be temperatures and humidity as well as inflammation within the body. As for your toe, I would call your doctor and insist on it being seen by someone. I'm assuming you're still walking? I don't understand how an entire pain clinic can be closed for a whole month! They must at least have a doctor on call.. It kind of sounds like the toe is becoming dystonic but don't take my word for it at all! As for mottle skin, it wasbone of my first signs of RSD about 10 years ago. It's amazing how long it takes to get into GIs and to get tests done. I was in the hospital for a week in the middle of August and have been on Dilaudid since for the pain while I wait to get in for a colonoscopy on the 16th. I was tested for everything else and am beyond frustrated. This of course had to happen during my first remission. I was feeling no pain for the first time in 10 years till that hit. Anyway, a few days after I was released from the hospital, I had my Ketamine booster, 300 mg, no pain anywhere except my stomach. The ketamine had no effect on it. |
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