Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-22-2007, 03:11 AM #21
AJSG AJSG is offline
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Default thank you

All of you have been so supportive. AJ was well enough to really hear some of your comments today, and she really appreciated them. She's down to only 120 mg of oxy, and her attitude now is to stay there until she has what she needs to get back to her life. She knows she will have pain, but she can accept that. She was hoping that she'd have the surgery for the permanent pump this Thursday, but she has to wait until next Monday, which was disappointing, but still OK. A nurse came in today to explain the procedure (a 3" incision to make the little pouch the pump resides in - yikes!) and aftercare. They may keep her longer than usual because we live so far away, and they want to see her again 2 weeks later, so that's another trip. But this thing is going to work! Nothing else she tried did - blocks, meds, drips, everything made her worse, and this is going to work!

AJ's mom
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Old 03-22-2007, 06:27 PM #22
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AJSG you will soon have your "old" daughter back. it's just going to take time and patience.

allen...........remember when you were going thru the w/d and i posted to hang in there. well i'm sure you thought i was a nutcase at the time hehehe. now you back to the "old" you again and don't you feel like a new person?
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Old 03-23-2007, 02:23 AM #23
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Default Yes!

As far as my mind goes, it is WONDERFUL! I just wish I could have it both ways lol. Have all the clarity, and less pains.

That is great news! I new she would start feelin better. As Duchess says, it is real bad a first and you have a hard time seeing the light at the end of the tunnel. But when you can se just a glimmer, you know it is gonna be OK

Been keepin the prayers a goin
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Old 03-25-2007, 02:19 PM #24
InHisHands InHisHands is offline
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How is AJ doing? I am hoping and praying that she is well!
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Old 03-26-2007, 02:23 AM #25
AJSG AJSG is offline
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Smile

She's coming home Tuesday! The doctor is very pleased with her
progress. The permanent pump will be put in Monday afternoon.
They say she will be able to walk again, though it will take a
while, and that though the pain pump is working, it will take
a while before her brain and nerves catch up to that fact. But
it will work! And she's nearly all the way off the oxy, down to
only 20 mg today, I think. By Monday she should be completely off,
and except for some oral meds for a few days after the pump
implant, she should be clear. It's been a rough couple of weeks,
but we're almost there.

AJ's mom
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Old 03-26-2007, 08:28 AM #26
InHisHands InHisHands is offline
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Quote:
Originally Posted by AJSG View Post
She's coming home Tuesday! The doctor is very pleased with her
progress. The permanent pump will be put in Monday afternoon.
They say she will be able to walk again, though it will take a
while, and that though the pain pump is working, it will take
a while before her brain and nerves catch up to that fact. But
it will work! And she's nearly all the way off the oxy, down to
only 20 mg today, I think. By Monday she should be completely off,
and except for some oral meds for a few days after the pump
implant, she should be clear. It's been a rough couple of weeks,
but we're almost there.

AJ's mom
YAY!!
Glad to hear she is doing well! I hope to see her around here sometime!!
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Old 03-26-2007, 11:40 AM #27
Diamond Lil Diamond Lil is offline
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I am so glad to hear that AJ is doing well. Please tell her that all of us wish her the very best. Regards, Lil
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