Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-15-2011, 01:35 PM #1
Samana2012 Samana2012 is offline
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Location: New-Brunswick
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Samana2012 Samana2012 is offline
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Default Sam, 23, Art Studente, RSD(Dystonia) from work accident on Sept 2010.

Hi my name is Samantha and I am 23 and a Fine Arts Studente.

I live in Dieppe New-Brunswick and I have had RSD sens my accident on the 30th of September 2010. and I have completed 3/4 of my Fine Arts Bac. During my last year of my Bac I was having troubles getting my student loan an was forced to leave university to work for a semester and it just so happens that I got injured at work and developped my rsd in result of the accident.

I love art , Painting lage paintings (5x8 feet) and ceramic suclptures. I love playine with Texture in clay paint and drawing. I was very talented and my University teachers had hight hopes for me. I find it very hard thinking about what I love to do because I wont be able to do it again. I hope that some day ill have a chance to find my art again in another form.

Almost a year later and my leg is unusable because my spasems twisted in into a hook and im starting to loose function because the spasmes moved un my spin into my shoulder blade and my armes. I am in a whealchair & havent been able to straighten my leg of walk for over 4 months ( sens may 12th)

Of course i was early on cut off from worksafe & my doc from the pain clinic is furious because during the whole 10 weeks i spent at the rehab clinic in st john was a waste of presious time. They changed my diagnosis and gave me treatements not related to my rsd. During this time i could have had beter treatment at the pain clinic and my leg would never have gotten were it has.

In my opinion the centre(in place of wsnb) had noticed the signs of the advancement of my RSD it was planly ovious that all the times i had told them about the jumping in my foot, the ligament in my knee would jump out of track when i bent it(I know know that this is cause by to much tension in my ligaments), the seperation of my knee from swelling and all the different kind of nerve pain. The last exame i had my whole foot had been taken in a huge spasm.... the signs that the spasmes were increasing should have been clear to the staff if they actually knew what they were doing.

So know im waiting for 3 braces to help & prevent my limb of being pulled out of place. I need a brace to straigthen my leg, a brace for my knee to keep it in place and on for my hand to stop my thumb to spasme backward and keep the wrist in place.
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dd in pain (09-15-2011)

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Old 09-15-2011, 09:30 PM #2
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Russell Russell is offline
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Samana,
So sorry to hear all that. What kind of accident did you have if you don't mind?
Mine was a semi truck accident.
I know about loosing abilities. I used to play guitars and played bass in various bands in my youth. When I lost the use of my left hand I was emotionally crushed. My wife knew of my love for music so she bought me a keyboard so at least I could teach myself one handed.
I too am in a wheelchair. My RSD is spreading and I also had head trauma cerebral atrophy which effects my balance so I fall a lot.
The best thing is to try to focus on the positive things we can do. Don't let this disability beat us...
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Hope for better days.....
Russ
okska'sssini ómahkapi'si
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crps, dystonia, rsd, student, type 2


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