Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-19-2011, 01:33 PM #1
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Help First two nerve blocks tomorrow

Hi guys. I'm really nervous, tomorrow I am getting two nerve blocks one being the lumbar sympathetic nerve block and the other being a pudendal nerve block. My neurologist feels that these two alone should be able to snap my system out of the RSD since we caught it in the first month of it occurring.

I just wanted to ask how successful these have been for people in the past? Especially the pudendal because I'm already freaking out that I may be sexually dysfunctional the rest of my life.

Thanks.
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Old 09-28-2011, 12:47 AM #2
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I had the pudendal block done in the past. I had it done after 6 months of the onset. It gave me some reduction of pain temporary. Since you caught it so early, you may have a much better chance of success.
Good luck to you and please report back because i would like to know your result.
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Old 09-28-2011, 04:51 AM #3
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The earlier the better for treatment. Of that, there is NO doubt.

Keep a positive attitude as the power of the "mind-body" connection cannot
be overstated.

Good luck and keep us posted on how things go!
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Old 09-28-2011, 05:02 AM #4
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Quote:
Originally Posted by 310Girl View Post
Hi guys. I'm really nervous, tomorrow I am getting two nerve blocks one being the lumbar sympathetic nerve block and the other being a pudendal nerve block. My neurologist feels that these two alone should be able to snap my system out of the RSD since we caught it in the first month of it occurring.

I just wanted to ask how successful these have been for people in the past? Especially the pudendal because I'm already freaking out that I may be sexually dysfunctional the rest of my life.

Thanks.
Hi 310Girl, when I was first told I had RSD it was about 6-7 months after my symptoms started. My neurologist just looked at me and said, "Too bad we did not catch this in the first month, a sympathetic nerve block could have stopped this in its tracks". So, from everything I have read about this disease catching it and treating it in the first month is critical. I am NOT a doctor, but I do know your chances of a remission are higher than those of us who did not get treatment until after 6 months or later. I am not trying to give you false hope I am just sharing with you what my neurologist told me. I also know that when I get stressed out or freaked out, I always get a nasty flair of my RSD. Please know that I am praying for you and keeping you in my thoughts for a fantastic outcome from your blocks. Again, I am not a doctor so I can't know for sure how the blocks will work for you, but I sure can keep praying for you and please know that I am sweetie. Karen67

Last edited by Karen67; 09-28-2011 at 07:38 AM.
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Old 09-28-2011, 09:54 AM #5
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I've had five, and no issues at all. Two were under anesthesia, so he could inject deeper. Twice he injected into both my sacroiliac. All have brought relief, the time they last depends on how frequntly I do more than my body can tolerate. My pain levels are greatly reduced, but my symptoms are not gone. My diagnosis was not made for nine months, so you do have a better shot at retraining your brain, in my humble opinion.

With a prayer for pain relief,
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Old 09-28-2011, 10:13 AM #6
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I'm really sorry that you have RSD. Catching it as early as your doctor was able to, though, gives you the best chance for success with your treatment. I only got temporary relief from my lumbar sympathetic nerve blocks, but I was diagnosed a year and a half after developing RSD and everything I've read says that they have the best chance of working within the first few months. I really hope you get excellent and lasting results from these blocks, and I wish the best of luck to you!!
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Old 09-28-2011, 10:18 AM #7
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I am glad you found a dr. so early on to do injections so fast. Sounds like you are well on your way. I was glad to hear your spirits sound more upbeat to.
Just remember, don't dwell on tommorrow, it could be completely different then today.
I have had many injections, but like others my injections weren't started for almost a year into this mess. I will pray for you that you have relief.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 10-01-2011, 10:08 PM #8
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Quote:
Originally Posted by 310Girl View Post

I just wanted to ask how successful these have been for people in the past? Especially the pudendal because I'm already freaking out that I may be sexually dysfunctional the rest of my life.

Thanks.
What nerve is that? Is that in the saddle area? I have vaginal burning pain and wiping is an adventure, let alone the idea of sex. I'm happy you got diagnosed early. I could have been if there would have been someone who knew what they were doing in the ER when I came in 6 weeks after foot surgery with a purple leg u to my thigh. You would think they would wonder about someone post op having "venous insufficiency" like that first time ever in their life after a foot surgery. After looking at this, they should have known and acted aggressively to find out the underlying issue going on. I don't want to sue anyone but it makes me angry every time I think about it. It will be 5 months before I get a consult for a nerve block. I don't even know what I really need, I'm guessing. Ordered a book on RSD and read it today, but it doesn't even mention the ice water in the veins issue. I need to figure out what that's all about too. COMPLEX is definitely a good term for this.I hope this works for you, my "hot pants" are not all the time so I am hopeful it will improve.
Jerie
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