Well, woke up this morning to distraught kids - Hubbies legs were cramping up on him and it would not stop. Things finally settled down...THANK GOODNESS.

My question here is I'm wondering what your take is on all this - also what were some of the signs that the RSD was spreading.

I DONT want to think the worst here - Have not even brought it up to hubby although after being married for this many years I'm almost certain he is thinking the same thing...

I'm hoping and praying he just needs some water (ya know they say take H2O for charley horses) or that it was just a freak incident as we've had a long weekend...I dont want to be worried about this and to have this to think about but, I dont want to ignore it if it is something we should be concerned about either.....

i have a ton of trouble with cramping [like right now] when the barometer goes up and down. i'm not sure where you live, but i have often thought in the fall, that my rsd is spreading only for it to calm down when the weather settles. now that i know to expect it, i find that using ibuprofen often, and using heat, helps until the weather change happens. also my mind is at ease with it now.
i have a friend with rsd, that i have written to for years, who lives in CA, and she goes through the same thing even though her weather is so different from mine.
hope this helps ..... joan

I get cramping in the right leg so far, and it is daily. I have noticed that if I use the leg more than usual it will be more severe. Also when I am relaxing, or trying to go to sleep it occurs every single time.

I also noticed that the musccles feel like they are spasming, kinda like real fast flexing. It does that all day long

I am not sure if it has anything to do with spread though. For me the spread was noticed first by pain in the area that increased over time, and sensitive skin.

I hope everything stays calmed down

Have you considered a Calcium /Magnesium blend supplement?

Both should help if it is a "Charlie horse" type of thing.

sometimes I just drink more milk if i get a charlie horse.

but I don't know if his has anything to do with RSD or a regular charlie horse.

There are several other things that an cause cramping.
One is medication for high cholestoral, throid problems is another, dehydration.
Also if lumbar problems. Then the defy them is to press the heel down not to pull legs up.

Make sure hubby see doc for blood work to look for problems like this, not jsut the typical cbc or whatever is the typical test...
Dianne

When the nerves in my foot had pressure on them( caused by a doctors exam, thunder and lightning storms, changes in temp or barometer) my toes would each spasm to a different beat.

It was so bizarre to watch them twitching and jerking around with minds of their own. It hurt like hell when it happened.

Nothing helped it go away completely until my chirorpractic adjusted the bones away from the nerves. Whenever the bones would shift back - the muscles would spasms again.

So, in my particular case, muscles spasming was caused by something pissing a nerve off.

Peace and hope,
Lisa

In my case the spasms, cramping, etc., were persistent until the doctors put me on Baclofen. It took a little while to get to the correct dosage, but for three years now it has spelled big time relief.

I used to get muscle cramps and spasms that would wake me out of a sound sleep - in the middle of the night. It was an ugly sight to wake up hurting like that - squirming trying to fight off the pain. And, when the spasms would settle down my muscles would be so sore that I thought that I had just been run over by a truck!

Good luck & I hope he can find some relief.

Hey there - I think we might have found the problem - The Cymbalta that they had just started him on....He did not take it last night nor today and he has not had the weakness nor the spasms....Could be a coincidence but it could (which I belive was and is the problem) So it looks like we are 2 for 2 meds now - both the last 2 meds he had problems with. Apparently too it does not mix with the Lyrica he is on. Sooooooooooo looks like we might be switching a few things around here but hopefully will get him off of some of this crap. He does not like to take medicine as it is and the less the better. He's been doing the blocks which have been giving him relief so with the change in meds and blocks hopefully we'll find a combo that works!

There are a lot of medications out there that causes cramping and all over joint pain. Bill was on some for high blood pressure and the last few months was with me he complained of leg and joint pain a lot. It could be one of the meds. I get to the point that if a med is doing that to me I refuse to take it and ask for a change.

If I got started on how I feel about Drs. handing people meds without telling them the full extent of the side effects or the med companies you'd throw me off of here. I have seen what it can do to people too much and for people to keep taking it without qestioning the Dr. if there is something to replace it just gets to me. Bill was that way for the longest time. When he finally decided I was right about the side effects he would get it changed. By the time he got off of the Noravasc it was too late, it had done too much damage to him.

I drink lots of water, from 60 to 100 ounces a day and the only time I deal with leg pain except the electrical shocks is when I am on my feet way too long or don't drink water.

I'm glad he realized it might be the meds. Maybe now he can get it calmed down.

Ada

Well....Not a problem so far since he quit taking them. Hoping this was the problem and hoping for the best!

Your right about the meds and Dr's not informing patients of the side effects. The Tramadol they had him on threw him for a loop, Remember I posted how he ended up in the ER? When I had researched the Tram - As I do with any new med they put him on (I deal with all that stuff...) anways, there was NOTHING about/regarding some of the side effects he experienced out there on the internet...YET, when the ER Dr looked it up he found the side-effects hubby experienced. I'm under the impression that these pharm companies put what they want on the net then give the Dr's a more detailed listing of side effects or possible side effects. IF that is the case, it should be ILLEGAL. A patient and their family HAVE THE RIGHT TO KNOW.