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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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butran and clonidine

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Old 09-24-2011, 08:50 PM #11
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I appreciate everyone's comments. I am wearing the clonidine patch on the lower leg. I have not noticed any big change good or bad. It was also suggessted to use benedryl spray prior to applying the patch, because I had a bad reaction to adhesive once.

Yes this is the same dr. but I don't want to switch. He and his staff are very supportive. They answer my questions, include me in all decisions and I never feel rushed. I feel they would back me and right now thats important to me.

I don't have many on my side and
that is one of the positives in my life. (someone who believes In me)

Thank you all as well for your support, but sometimes a person needs to see another person who believes in you as well.
What is the best fit for me, isn't going to be the best fit for you. You've put thought into it and it's an important relationship to you, like mine is with my doc. I can RESPECT that!

I would ask to introduce one new med at a time, though. If he's supportive this likely won't be an issue.

And it's prudent to research every procedure (just like you did before undergoing RF and in this thread) and med even when your care is provided by a famous RSD specialist...
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Old 09-25-2011, 04:56 PM #12
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Yellow--Nucynta is your only pain med? May I ask what your dosage and frequency is? How long have you been taking it?

From personal experience this is one of the trickier pain meds to use for several reasons...
Yes, it's my only one for now. And it really hasn't been helping at all which I need to tell the doctor, but part of me doesn't want any stronger meds. I take 50 mg 4 times a day. I'd love to hear your experience with it.
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Old 09-27-2011, 12:09 AM #13
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I'll pm you in a couple of days. I need a couple of recovery days...
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Old 09-28-2011, 10:07 AM #14
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Well, on Sunday am I started zoning out and felt horrible. By Monday I was completely spaced out, vomiting, etc. Took off both patchs and took nothing all day. I slept most of the day.
Yesterday when I got a little sense back I called the PM doctor and we are starting over. We will add one medication at a time, to see what the culprit was. My head is still spinning and I am having major hot flashes and nausea. I have only taken neurontin the last 2 days. Absoultely feel like crap!
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GOD help me be faithful in the midst of my suffering. Alt1268
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