Thank you all for your input and confirming I'm not crazy. This site has been so helpful since I am a newbie and was just diagnosed this year. Having a hot episode now but feel better knowing it's part of it and probably not something else I need to deal with.
Have a great day
Alisha

Hey, just to say one thing I know this sweating accomponied with RSD, I can almost guarantee is NOT from menopause because I suffer from this and I am only 19 years young. I have to change pajamas approx 2-4 times a night and it happens throughout the day too. If anyone has any tips on how to make this better please post or email me thanks!


-Katie (hope.for.RSD)

I have full body heat regulation issues that pre dates my use of meds that could cause withdrawals. All I can say is it no longer wakes me up any longer...

Wow Jimbo...You said "When my body goes in temp fits (that's what I call them) I get freezing cold chills." I thought I was the only one that got the cold chills! They get so bad sometimes that no amount of clothes or covers can stop them.

My burning cold (as I refer to it as) turns to extreme hot at 1 AM every morning like clockwork. I can tell what time it is from my foot (initial site of injury). The heat at 1AM starts in my big toe and goes down the row of toes then up my right leg and I wake up after a few hours of sleeping burning hot like lava is all over me. I usually go to bed under six blankets (I counted them last night and then laughed) with pants, socks, shirt and sweater and lately I found the best secret for the chills esp living here in PA...leg warmers!! I had a cast years ago on my foot/leg and the doctor gave me the box of cotton thingies that they put under the cast so plaster doesn't stick to your body and I cut them off like leg warmers. They work great since we just got some cold weather here and my knees and joints were hurting badly. So when the heat hits me at 1:00 AM I can rip the socks off and still have my feet out the side of the covers if needed and my legs don't get warm. But in the morning when the heat is bad I am ripping covers off, clothes off in order to cool my body down. Now, since it is colder here I love it in am because I go out and wear light pants and no socks and the cold air is heavenly. I have learned not to put my hot foot on the cold cement (even though it feels great) because when I come back in the house it is like my foot realizes how cold it was and screams out in pain for hours. I will never do that again. Once we had about 3 inches of snow and I stuck my sockless foot in the snow and thought I had gone to heaven...the snow around my foot actually melted haha. It was crazy and then I went in the house and about hit the roof with pain. Those moments of joy turned into hours of agony...and I learned my lesson the hard way lol.

I had to laugh at the ladies talking about menopause (I've been going through that for several years now (the fun never ends). I hardly ever get hot flashes instead I get what I call "cold flashes" (like Jimbo explained) where the chills run crazy through my body and I cannot get warm again until 1 AM.

I did talk to my neuro doctor about the cold flashes because they got so severe about a year ago that she gave me an iv of quinine and then I took the pills they sell them in the pharmacy. They did help (and are good for leg cramps too). yes, it is the medicine they give to people with malaria. It did work well for the chills but I had to stop using them because I had a reaction to them (can't remember now what it was). I agree with everyone that trying to stay cold when you are hot and hot when you are cold is a full time job. We have to worry about any little draft that might cause a problem. Well thanks for listening to my little two cents.
kathy d

Oh man how I can say how irritating the sweating is... and uncontrollable body temperature that refuses to regulate itself when its supposed to cool down or warm up like normal people. The longer I have had RSD the worse its getting. Heat actually radiates off my body is someone is within a few feet of me they can feel it, and I have drops of sweat from head to toe, and its rare that my hair is all dry when this happens (which is about 75% of life) because i sweat so much it looks like I jsuit went to the gym. WHat has worked for me because i can NOT USE cold ice packs on my body when im burning up, it helps to put one under my pillow just to keep the pillow cool because I always make my pillows so so hot and they are cooling pillows to begin with. That is the most helpful thing for the over heating when I am at home. As far as putting a ice pcack on my bpody no way no how no no. i cant even touch those things, my brother or mom does it for me. my brother actually thought up of this. and its been a lifesaver since. hopefully it helps someone else! hang in there hotties

I've had RSD now for a little over 4 years and for the first time I'm experiencing
easily sweating. It's like my body's backwards. This summer I was cold and now it's winter and I'm hot. I'm driving my wife nuts. Even thought she's nuts already...

Daily and nightly. I have a heated mattress pad when I go to bed I shut it off and wake up sweating and sheets wet! I turn on my mattress pad, change clothes. and go lay on the sofa with my heating pad. Wake back up go to back to bed and shut off my pad because sheets are dry. I do this about three times a night! It's better then freezing which happens because my hair by my scalp is drenched! Lucky for my husband we have dual controls to our heated matress pad!

Same here, everyone tells tells me its menopause, but I have a regular period and I don't get hot flashes! I also take cymbalta and the side effects is sweating also. So between my meds and Rsd I do a lot of sweating!

My husband keeps our thermostat on FRIGID! But at least he is comfortable and I can put on a sweatshirt and buy him multiple anit-perspirants!
He also comments that he smells "metallic"???? I don't smell it, but he swears that he does.

I think Kathy was spot on when she said, "our wiring is twisted."

My full body temperature issues were just as miserable as everyone else describes. The symptoms abated in January of 2011 after a week of tDCS treatments. Unfortunately, the symptoms slowly returned over a period of months.

Now that I am consistently treating with tDCS I have an 80% improvement in these symptoms. tDCS=cortical reorganization(rewiring or rebooting the brain)=symptom reduction.