My PM dr only seems interested if I sweat only in my CRPS limb as a symptom of RSD but I have ful body sweating episodes several times a day. It's quite a challenge to deal with a leg that needs warmth and the rest of my body needing air!
Does anyone else have full body "hot flashes" with only CRPS only in one limb?

My sweating comes from when my breakthrough meds are coming out of my system. Before that I it was menopause. My foot is 95% cold vs. hot. At first it felt cold but was hot. Recently I noted that it feels hot but when I touch it its cold. Just messed up.
I don't think you should be judged by one symptom. I fight with my attorney over my toenails. they still look fine.
I also read on the rsd foundation that we can have some of the same symptoms but we can also have differnent ones but the first symptom is pain, then sensitivity. etc. check it out. (my memory is to short to remember word for word) when your done show it to your dr. if you don't get any where switch dr.'s

I've been having this 'sweat' thing going on for more than a decade. When I get out of the shower, (first a bath, then a shower), and I come out, especially if it's warm, I can't stop sweating. It's nasty!
So, I take the bath and shower as cool/cold as I can stand.
It's better..
I drink an iced water, or whatever.

My doc offered me a med, but, I got too many, I turned it down.

So, I do what I can.
I'll even turn the A/C DOWN and stand in front of a duct!
Drink ice water!

And, I don't' know what else!
I wish I could find an A/P soap!

I do spray my feet, and ears and scalp with A/P.
Then my feet get rubbed down with Gold Bond supreme foot juice.

It's gotta be the best thing you can do for yourself, to cut down on the persp.
I don't know what to tell ya, but find your own way....

P

asb

Hi Alisha, I have the SAME exact problem. 1st I thought it was from my hysterectomy(2006) but this is much, much, different. I am burning up and sweating all over and yet any # of my RSD limbs can be ice cold @ the same time. It is driving me up the wall. My poor husband has to wear a sweater in the house when it is 90 degrees outside because I have the air set on 68. Sheesh... my core temp will be on fire and my toes and fingers are icecubes. I don't think I gave you much help from this post... just wanted you to know I totally understand how you are feeling. Karen

Hi all...

I totally get it too!! Typically prior to my RSD, full body...I was always cold... Now I feel a rush of warmth and at times, anytime..I drench in water...Others who are not RSD afflicted say... It's menopause but my Dr. Says no way, it IS Rsd and I had a hysterectomy in 2000. I just put in a night from []{} due to sweating.. But cold leg...and foot... Our wiring is twisted...we all describe hay wired body temperatures, all different but all is not normal...Thanks RSD!!

Hugs to all, Kathy

This is very odd to hear for me because I'm totally different. When my body goes in temp fits (that's what I call them) I get freezing cold chills. I even have gone as far as sitting in my car with the heat on and fan blasting while it's 90 degrees outside. All the while only my RSD hand and foot will feel ice cold and the rest of me is warm.
I also lay in bed at times covered up with blankets and be shaking from being cold while the a/c is on in the house because it's so hot out.
Whether it be hot or cold the temp fits are real and such an aggravation to deal with. I guess only we understand them best because they're happening to us...

I hate the sweating. I NEVER used to sweat and was always cold. My mom used to joke because even when I played sports I would only "mist." But ever since the RSD pain spread to my upper body I sweat all the time. But the cold makes the pain worse so it's like I can't win. I didn't have the sweating though when it was just in my foot. That's not to say that you can't though because RSD does crazy things to people and we all react differently.

This is me exactly. I get horrible sweats; I had such a rough night last week that my husband had to help me change pajamas *four* times. And I don't mean just a little either, I'm talking soak your clothes and the sheets type of sweating.

The odd thing is that I don't get these all the time, and invariably, when I get them, they are either preceded or followed by significant all-over body aches.

I'd be really curious to know if this is from the CRPS. I had a doctor suggest lupus the other day which seriously scared me; he also suggested that I see a rheumatologist.

Right now, I'm waiting for my spinal cord stimulator implant which I'll get next month. After that, we'll see. If it's still a big issue, I will follow up with my family physician to see if I need any additional testing.

I'm glad at least to know that I'm not the only one dealing with it, but I am sorry that you have to deal with it at the same time.

If there's a chance that you've got a rheumatological problem going on, WHY would your doctor not test you for that before performing the SCS implant?? I would see a rheumatologist for testing BEFORE submitting myself to any such surgery!!

Just my humble opinion...the very best of luck to you!! Xoxo. Sandy

It was an ER doc who was absolutely unfamiliar with my condition that made the suggestion. I talked it over with my family doctor later - we went over the symptoms of lupus and I don't even remotely fit the profile. Since my CRPS is Type II (injury related), I suspect it's a lot easier to figure out why's and wherefore's than it would be with CRPS type I.

The SCS is definitely necessary; that was decided quite awhile ago. It was me who was trying every other available option. Due to the type of injury I have, it's pretty much my only hope of being able to go through the rehab to one day hopefully be able to walk again.