Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-21-2011, 07:14 PM #11
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Dang! You have one heck of a story. Hopefully it isn't RSD. Best of luck to you. We'll be here waiting for your good news...
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Old 10-21-2011, 07:38 PM #12
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It is not all that unusual to be misdiagnosed WITH this disorder. There are a number of conditions that have similar symptoms. It is not at all straight forward.

Misdiagnosis can go either way. Sometimes they don't think it is CRPS when it really is, and other times you get diagnosed with everything under the sun when it is CRPS.

CRPS is one of the most misdiagnosed conditions......that is because it is one of the most misunderstood conditions of the human body. Even by professionals. Very common to find doctors, therapists, etc. that don't know jack about CRPS. In their defense, it is a very unique, tricky condition.

Hoping for the best for you.

If anyone checking this forum isn't sure, keep beating the dead horse until you get some answers. We all deserve to know.

Multiple opinions folks, multiple opinions. And then get another opinion after that.

Last edited by birchlake; 10-22-2011 at 06:28 PM.
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Old 10-21-2011, 08:45 PM #13
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I will be praying for you aand you hubby.
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Old 10-22-2011, 10:26 AM #14
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You will be in my prayers. If it is not RSD and is treatable then that is wonderful news. I have been skeptical of docs who say they don't think it is RSD because the ones who have said it to me have no other explanation and that's just unacceptable to me. But if your doctor thinks that there is another explanation then I am so happy for you. Good luck!
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