Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-19-2011, 05:58 PM #1
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Default HELP....Dr. is telling me to apply for SSI

Does anyone know how to go about doing this? I don't know where to start or where to look even. Any and all info would be greatly appreciated! Thanks in advance.

Jenn
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Old 10-19-2011, 06:02 PM #2
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Here is a link to the Social Security forum that is hosted by NeuroTalk. A good start and plenty of threads to read.

http://neurotalk.psychcentral.com/forum28.html

Also log onto the Social Security Administrations site. Select the disability link.

http://www.socialsecurity.gov/

Seriously consider getting legal representation. The success rate for people with representation is significantly higher than for people without. Yes, there is a fee, but it can seriously expedite things for you......
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Old 10-19-2011, 07:44 PM #3
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Jennifer,
Everything that Birchlake is telling you is what I would tell you too. But please, please find an attorney that practices RSD situations first...
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Old 10-19-2011, 08:09 PM #4
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I'm going to disagree with Jimbo (a rare thing indeed) that you need an attorney with RSD experience. You just need a really good SSD attorney. RSD in not a "listed impairment" so you need to really document your functional limitations. Being in denial can delay your approval. A few appointments with a pain psych doc is probably important right now. You didn't have a WC psych claim, when this started, but you very likely DO now.

I'm even more blunt now than normal due to pain... Sorry.
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Old 10-19-2011, 09:23 PM #5
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Another good resource is a social worker. There may be one connected to the medical facility that you use. Any good SSDI attorney will work on a contingency fee, i.e. if you get paid they get paid. Be aware that this is a long procedure and you may want to start now rather than later. There is also a lot of paperwork involved with the initial application, and of course the waiting time since it is a federal program. Lisa
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Old 10-19-2011, 10:58 PM #6
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I agree about getting legal representation...the first time I applied, I had no idea what I was doing and half of my medical records didn't get to Social Security. I am "lucky" in the fact that I was born with Cerebral Palsy and I worked in the same field for 24 years. I also suffer from severe depression and anxiety, so hopefully with all that I will get my SSDI. I have one more exam and SS has ALL my medical records. My legal team is fantastic so it's looking really good right now. Make sure that you have EVERY single record you have. Also if you get a lawyer, they WANT you to win so they can get paid..
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Old 10-20-2011, 12:01 AM #7
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Lit Love,
You may disagree with me (from time to time)............just don't make a habit of it!(lol)
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Old 10-20-2011, 12:53 AM #8
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Quote:
Originally Posted by jimbo View Post
Lit Love,
You may disagree with me (from time to time)............just don't make a habit of it!(lol)
Jimbo,
I think it's ideal to find an excellent SSDI attorney with RSD experience, but I just don't think the RSD experience is vital. The OP is in Hawaii, so unless she's on Oahu, it might be a difficult task to find one anyway.

Since we all differ so much, it's hard to compare RSD patients anyway. And what is required to prove each applicant can vary so much, IMO, that you really have to address all the functional limitations, severity of symptoms, meds, and their side effects, etc.

It's a tough balancing act deciding WHEN to file. The longer you wait, the more your finances are hurt. But, you can delay approval by not being mentally prepared and learning what is required of you to document the severity of your disability.

You have to stay optimistic about your potential to go into remission. On the other hand, you have to be brutally honest with the reality of your current limitations. This can be confusing and overwhelming.

RSD does change our brain chemistry. Depression is a real issue. Having to accept a long-term, even potentially permanent, disability is a major life stressor. Getting help to sort through all the feelings that will come with the SSD process, on top of Everything else, is probably a good idea in general...
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Old 10-20-2011, 10:26 AM #9
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I didn't use an atty at all. But also didn't file until I was placed on the rollabout. The SSD people told me that is why I was approved.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 10-20-2011, 10:49 AM #10
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It was easy for me too. I heard all these stories about how long it would take and being refused the first one or two times. I guess it was luck but all I did was apply on my own, gave them all the required forms and files. I was approved the first time.
The reason I suggest getting a RSD attorney first is that he/she can easily refer you to any more help if needed...
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