Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-24-2011, 02:18 AM #1
Jennifer Q Jennifer Q is offline
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Overwhelmed is such an understatement at this point right now. I never really know if I'm coming or going and it seems as though the world is moving in hyperspeed and because I'm so medicated I feel like I'm moving at a snail's pace. Since my last post about the SSI Disability, I've had appointment after appointment. More drugs prescribed to me in the past week than I have ever been prescribed in my whole life. I have an appointment with the pain management team on Tuesday and I get a 12 page packet of questions in the mail that I need to fill out prior to my visit. Lemme tell you....that packet scared the crap outta me because of all those dang questions that I had to answer in "detail". I don't know about you all but with my RSD brain and all the meds its hard to even remember how to spell my first name! LOL! So, I have had to take one day at a time, four to be exact to answer the questions. And to be completely honest, I haven't even finished yet! But the real reason for this post is to let you ALL know that I haven't been MIA on purpose AND to thank each of you for being here, welcoming me into your family and giving me awesome advice! I truely appreciate all of you and I am blessed to call you my friends!

With MUCH love and gratefulness,
Jenn
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Old 10-24-2011, 08:25 AM #2
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Jenn,
Don't even think badly for taking time to do things. We all can relate.
I myself is guilty of not being able to keep up at times.
I'm laying in bed more after scarring the crap out of myself yesterday. I was opening the back door for my dog to come in when all of a sudden I felt dizzy and weak then my left leg just gave out sending me backwards into the closet doors then down sliding on the doors landing on my ***. My wife ran to help me shouting asking if I was okay.
I just sat there for a few minutes feeling like in a stupor state.
I'm glad your getting closer to SSI. I know how overwhelming all the paperwork and hoops can be.
Positive news is always welcomed...
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Russ
okska'sssini ómahkapi'si
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Old 10-24-2011, 11:32 AM #3
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Ugh...filling out paperwork takes FOREVER. Sometimes I just find myself staring at the papers for a while. This is the reason I can't even read books anymore...I find that I have to reread stuff over and over to comprehend or remember what I just read. Getting ready for Dr. appts is always a joy. I get myself prepared several days before, writing out symptoms, questions, and things that I want to discuss with the doctor. Takes me several days to get together and I always have to put the papers in my bag the day before because the day of I'm hit or miss as to whether I will be together enough to remember everything.

Hope things start to get better soon. Take care.
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Old 10-24-2011, 04:35 PM #4
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Jennifer,
Yep! It sucks going from no medication to all you do is take medication. My day has to be planned around my medication. not including breakthrough. If I need a breakthrough I have learned I got 45 min. to do what I need, then the rest of the day is shot. Good luck with the paper work.
Quote:
Originally Posted by Jennifer Q View Post
Overwhelmed is such an understatement at this point right now. I never really know if I'm coming or going and it seems as though the world is moving in hyperspeed and because I'm so medicated I feel like I'm moving at a snail's pace. Since my last post about the SSI Disability, I've had appointment after appointment. More drugs prescribed to me in the past week than I have ever been prescribed in my whole life. I have an appointment with the pain management team on Tuesday and I get a 12 page packet of questions in the mail that I need to fill out prior to my visit. Lemme tell you....that packet scared the crap outta me because of all those dang questions that I had to answer in "detail". I don't know about you all but with my RSD brain and all the meds its hard to even remember how to spell my first name! LOL! So, I have had to take one day at a time, four to be exact to answer the questions. And to be completely honest, I haven't even finished yet! But the real reason for this post is to let you ALL know that I haven't been MIA on purpose AND to thank each of you for being here, welcoming me into your family and giving me awesome advice! I truely appreciate all of you and I am blessed to call you my friends!

With MUCH love and gratefulness,
Jenn
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GOD help me be faithful in the midst of my suffering. Alt1268
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