Sorry to drop out after PT and the doctor I have been pooped out. Also typing with one hand is slow.

After seeing My PT'ist and getting another Dexameth patch on my shoulder I went and saw my family doctor. He has been my dr for about 20 years. He told me I did not have RDS, that I did not have the symptoms for RDS. I hope he is right. I think my neurologist just "grabbed" on to RSD because he had no other explanation. He did not examine me at the time that his PA told me I had RSD. However he did do a prety good exam the first time that I saw him. But at that time he did not appear to look for the symptoms That you all have outlined.

I am still researching the links you gave me. Tuesday I plan to make an appointment with Dr that recommended the neurologist to see what else we can do to track down th cause of my problem. There are 4 pain management specialists and one anesthesiologist in the same medical group listed as "Doctors in Shreveport, LA who treat or diagnose Reflex Sympathetic Dystrophy.

Thanks again.

I hope for your sake it isn't RSD. There are enough concerns there that you do need to be proactive, but I agree, that your initial diagnosis is questionable. It is irksome that they gave the diagnosis and then scheduled your next appointment 2 months in the future.

One last quick link for you to look at:http://www.oklahomarsdcrpssupport.co...lpainindex.htm

You are familiar with arthritis pain. Compare how it rates to your new pain. Is your pain so severe it matches up with the pain scale? There are other types of neuropathic pain that are similar in intensity to RSD, as well.

Good luck with your upcoming appointment!

I also hope that it is NOT RSD...but then a family doctor is not necessarily the best one to trust with regards to RSD unless they have had experience with it. Not everyone has all the symptoms of RSD, and they do not all appear at the same time. But I am very hopeful since it seems like many of your symptoms don't fit with RSD that your family doc is right. I hope you find answers soon. Good luck at your next appt!

The PT says there some things called Bursa Sacs in many places in the body. She is treating, with orders from the neurologist, with the Dexameth patches. They help with the pain under my shoulder blade. It is called Subscapular Burssitis. But they are still guessing, I wish someone would say for sure what is wrong. I just warted about 20 minutes of TV in my recliner and my whole arm is numb. it seems that the only way that i get the numbness is in my bed where my shoulder blade is in a hole.

Maybe I do have RSD, I don't know. As far as the family doctor, I don't know, but he seemed more knowledgeable than the neurologist. At least he didn't have to go look it up. My symptoms are numbness from the top of my shoulder to my finger tips that comes and goes. A burning in my Thumb and four finger that never goes completely. Also during the first 6 weeks because of the pain I did not move my arm and I lost about 50% of it's use. I is coming back with PT.

I am also having trouble with my blood pressure. It is usually 124/72. Now I runing 145/80. Is this RSD or the medication?

I've always had great blood pressure before my RSD and now it's borderline high at periods of pain. The neurologist always checks my BP and there's no sign of the meds I take is the cause. It probably could vary by which meds you take but in my case it's the RSD...

Elevated pain increases mine as well... :(

Today I discussed the lack of treatment ordered by the neurologist with one of the head PT people where I am receiving PT. He seemed very knowledgeable about RSD. We discussed the progression and treatment. He told me to go to the doctors office and insist on seeing the neurologist today, I did, but he was in surgery. I have an appointment Thursday.Meantime I am doing more research.

I noticed yesterday that I had some swelling in my upper arm. Today at PT they got the Tens unit on my shoulder blade as usual, but the placement must have been different, because the voltage was going down the nerve C-6 I made them turn it off after two minutes. The nerve hurts, I hope it's just temporary.