Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-06-2011, 01:43 PM #1
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alt1268 alt1268 is offline
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Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
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Jimbo,
I know what Bell's Palsy is, it likes to miminic a stroke 99% of the time. I know how your feeling, esp. with the cold coming. Both top's of my feet are burning and I am frustrated with the shoes I have, all of which touch the tops. My slippers feel the best, but even those and my socks and pants hurt.My ankles also burn, while my knees, back and arms just ache.I know that this maybe the winter, I to end up in a chair. But I try not to think about it. My husband loves me I know, but he still doesn't get it. This is a very scary disease. But I know GOD is fighting the monster and he will win, the battle.
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Originally Posted by jimbo View Post
Alt,
Everyone's concern and suggestions are very much appreciated. Don't ever think that I dismiss them.

I am trying to make everyone aware of is that the brace doesn't restrict movement. There is no movement. I figure I might as well protect what I got.

Are you familiar with Bell's Palsy? That's how the left side of my face feels. My mouth and eye lid are drooping and the left side of my face feels saggy and kinda numb. The burning pain is now from my left foot up to my thigh and even my hips ache. I don't think a brace at this point is anything to worry about.

I had some stress yesterday that started a flare up that even an extra Lyrica didn't help. It's very demeaning to just sit in this wheelchair and cry.

Sorry for getting carried away again. This family we have means a lot...
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GOD help me be faithful in the midst of my suffering. Alt1268
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