NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   CRPS in my right wrist... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/160032-crps-wrist.html)

Jomar 11-01-2011 02:14 PM

I edited Drs name to Dr P for this instance anyway, less chance of being caught in web searches. I think I got all posts.

JimsGirl 11-01-2011 02:25 PM

Quote:

Originally Posted by Jo*mar (Post 820806)
I edited Drs name to Dr P for this instance anyway, less chance of being caught in web searches. I think I got all posts.

Thanks!

I'm pretty open and honest about everything, but being a little incognito is a good thing.

LIT LOVE 11-01-2011 06:02 PM

Quote:

Originally Posted by JimsGirl (Post 820815)
Thanks!

I'm pretty open and honest about everything, but being a little incognito is a good thing.

It's a wonderful trait as a human being, just not as someone protecting themselves in the CA WC system. ;)

By just leaving out a few small details in your narrative, makes it much harder to figure out who you are, but still provides all the pertinent details!

JimsGirl 11-02-2011 08:59 AM

Quote:

Originally Posted by LIT LOVE (Post 820892)
It's a wonderful trait as a human being, just not as someone protecting themselves in the CA WC system. ;)

By just leaving out a few small details in your narrative, makes it much harder to figure out who you are, but still provides all the pertinent details!

Definately!

I saw another pain mgmt doc yesterday and she said that the second block working for a few days was the most important diagnostic test for CRPS and scheduled me for my 3rd block this morning. She also gave me a dvd to watch regarding a spinal cord stimulator? That's where she wants to move on to next. After my procedure I'll be headed to see Dr. P. I feel like I'm spending my life at the doctors but I also feel more hopeful than ever and the last few docs seem to GET the constant burning pain that makes me so crazy.

LIT LOVE 11-02-2011 01:58 PM

Quote:

Originally Posted by JimsGirl (Post 821069)
Definately!

I saw another pain mgmt doc yesterday and she said that the second block working for a few days was the most important diagnostic test for CRPS and scheduled me for my 3rd block this morning. She also gave me a dvd to watch regarding a spinal cord stimulator? That's where she wants to move on to next. After my procedure I'll be headed to see Dr. P. I feel like I'm spending my life at the doctors but I also feel more hopeful than ever and the last few docs seem to GET the constant burning pain that makes me so crazy.

The SCS is a tough call. I'm struggling with the idea as well. Ketamine before SCS is kinda where my head is at. Regardless if I have to go OOP.

Jimking 11-02-2011 01:59 PM

Quote:

Originally Posted by JimsGirl (Post 821069)
Definately!

I saw another pain mgmt doc yesterday and she said that the second block working for a few days was the most important diagnostic test for CRPS and scheduled me for my 3rd block this morning. She also gave me a dvd to watch regarding a spinal cord stimulator? That's where she wants to move on to next. After my procedure I'll be headed to see Dr. P. I feel like I'm spending my life at the doctors but I also feel more hopeful than ever and the last few docs seem to GET the constant burning pain that makes me so crazy.

Make sure you do a very extensive research on the spinal stimulator both pros and cons. The DVD given you maybe all pros, trying to sell a product. NeuroTalk has a Spinal Stimulator thread.

LIT LOVE 11-02-2011 03:42 PM

Quote:

Originally Posted by Jimking (Post 821169)
Make sure you do a very extensive research on the spinal stimulator both pros and cons. The DVD given you maybe all pros, trying to sell a product. NeuroTalk has a Spinal Stimulator thread.

And discount any SCS user's that do not have RSD as well. Comparing the experience of the two isn't appropriate...

Russell 11-02-2011 03:48 PM

You guys are braver than I am...

JimsGirl 11-03-2011 07:32 PM

Quote:

Originally Posted by jimbo (Post 821209)
You guys are braver than I am...

How so?

I had the third block with no relief. I saw Dr. P and that was interesting. In the town I'm from I'm the worst case (and I Know there are people with worse cases) that any of my docs have ever seen, so they're super sympathetic, etc. But of course, with Dr. P, I was practically mild, like having a touch of RSD. He was very arrogant. And his interns...oy! Anyhow, he did include my family in the treatment plan, and that did mean a lot to me. I go back December 5th and 6th to have another nerve block done.

Russell 11-03-2011 08:55 PM

Quote:

Originally Posted by JimsGirl (Post 821603)
How so?

Because my neurologist suggested that in my case I should consider a SCS but I'm too chicken:eek:


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