[jenninpain]

Hi All,
I have had chronic, unexplainable, violent foot pain for 3 months now. I am trying to locate a RSD doc in MI. Does anyone know of any or how I would find them?

Thanks!

[loretta]

Originally Posted by jenninpain

Hi All,
I have had chronic, unexplainable, violent foot pain for 3 months now. I am trying to locate a RSD doc in MI. Does anyone know of any or how I would find them?

Thanks!

Hi Jenn, I'm so sorry you possibly are dealing with RSD. I live in Arizona and learned about the local support groups thro RSDSA.com Under Support, hey have a space you can put your zip code. A name and phone number will come up, so you can get it touch and find a local experienced Dr. Hope it works for you. If it doesn't, try to find out who cares for injuries of professional athletes and follow them. There are some wonderful Dr.s around the country treating RSD. In my openion, traveling isn't a bad idea. at least to get started in the right direction. Hope all works out well for you. Take care and soft hugs, loretta

[daniella]

Hi. I am from MI and now in FL but have seen a few doctors in MI. My best pain doctor is there and for me I was better cared for then when I saw Dr Stanton Hicks at CC but I know a girl who runs a support group in MI who sees him and got good care. You can email me as I have seen many other doctor neuros,rheumo etc,I was most happy out of all the doctors in Ca,OH,MI with my pain doctor from Henry Ford this was after seeing people who have written a lot about rsd. Who dx you with rsd? What part of MI do you live in? I am an email away and can try to help you as best as I can.

[mooseheads426]

Hi Jenn,
I live in Farmington and am suffering with RSD. Not sure what has happened with you but usually some noxious event occurs that creates trauma leading to RSD. I took a fall overseas while working, suffered a Jones Fx in foot , continued to bare weight, was sent to a Seoul Hospital, misdiagnosed, told I was cured after 6 weeks in cast even though meanwhile my bone died . I continued to work overseas while walking with a cane until returning home a few months later.

In June I finally had my foot fracture rebroken and pinned (nicely fixed) but thru the entire overseas trauma, weight baring etc. now acquired RSD. My Foot Dr. spotted it and believes I am at Stage II since rapid osteoporosis has invaded my one foot and the pain is EVERYDAY and incredible. Do not get down if you have symptoms and pain. I suggest a good pain med such as "Opana" that helps me daily with this nightmare. This med doesn't get you all doped up and allows you to function.

[I]I understand there was one Dr. at Henry Ford Hospital but when I tried to schedule , I found out he retired. I have had little luck with RSD Drs. in Mi. I believe my employers will be sending me to the Mayo Clinic for help. (I broke my foot while working and my Company has have been very good to me in so many ways.)

Keep in touch and eventually I may hear of a Mi Doctor. If you truly have RSD, this is very dibilitating so try to keep calm, unstressed and don't be shy about pain meds if this helps. Also, Lyrica is another drug that will be given to help you but it takes a while to dose up appropriately. There are some side effects. You may eventually get depressed about this but don't be shy about getting help from a professional. That is normal.
There is hope and I feel your pain.
Annie

[SBOWLING]

Hi Jenn,

I live in SW Ohio (I'm a buckeye fan O H I O Go Bucks!). Now down to the RSD business. I'm sorry you have a need for NT but I'm glad you found us.

I have read good comments on here about Dr. Hicks at the Cleveland Clinic. I have not personally been to see him. I have been to see an RSD specialist in Philly Dr. Schwartzman. Follow Loretta's advice and check the rsds.org and do your zip code. The RSDS association sponors the site. Once you check it out you will find all kinds of helpful information on the condition.

Don't get discouraged in your quest for a doctor. RSD doesn't manifest it's self in any two people the same way. Because of this Western Medicine doesn't really understand the condition. Some doctors are intimidated by what they don't understand. Doctors are in the business to help people get better and this complex condition is as frustrating for some doctors as it is for us. This condition is not well understood by all medical professionals and finding the right doctors requires preserverance by us RSD'ers.
I have been DX for 9 years it took me some time to find the right doctors. I have a pain management doctor, pain management phsycologist, chiropractor and a family doctor (he did his intern ship with Dr. S in Philly). I use Dr. Schwartzman the RSD doc. in Philly when I need advice for treatments here in OH.
You have come to the right place for solid good advice. I wish you all the best in your quest for a doctor. PM me if you would like to talk.

Take care,
Sherrie

[Bannet]

Hi Jenn and Welcome to NT.

Where in Michigan do you live? Lots of Docs at Wayne State, U of M and some in the suburbs. I will try to guide you, when I know the vicinity.

In the meantime, there is loads of information here and lots of wonderful people who are good listeners and always here to help.

[ouellem]

Hi,

I live in mid Michigan, Bay City actually, and I travel to Ann Arbor to Michigan Pain Specialists. Dr. Bojrab is fabulous. He has been so helpful and really wants to help you NOW. He doesn't put you off or give you a few weeks and see how you feel. If it doesn't work he tries something else. The other doctors ther are great too.

There is a website for them and you can actually get to know the doctors and some of the procedures that they do. It is a great place to go.

Good Luck and let me know if I can help.

Michelle

[hopeful11]

Hi Jenn. Welcome. I live in MI and see Dr. Fitzgerald, MD. His office is in Grand Rapids, MI. MI Pain Consultants, 616 285-1377. He is very good, knows a lot about RSD, and takes good care of you. Only problem is he is very busy, but once he sees you he tells the scheduling staff to get the RSD'ers in when they call (that week) not in 3 months. Nancy

[MarriedtoRSD]

My husband has RSD and we moved back to Michigan a couple years ago. He started seeing Dr Papenfuse at Matrix Pain Management in Saginaw Mi. I cannot give praise to Matrix enough. Seriously, these people actually CARE about the patient and they spend as much time as needed with them. Even if we are just going in for a refill on medication the PA will sit there for an hour if we need to ask questions or discuss anything. My husband has been to about 8 different pain doctors now and we will not leave Matrix. When we go for appointments we never wait more than about 15 minutes to be seen from walking in the door, they really care about you, want to get you out of pain and make you comfortable. They also do the blocks there and they do the stimulator implant which we are fighting with work comp over and is another story all together *sigh*.
So if you need a pain dr for your rsd or crps please check them out. I just cant thank them enough for what theyve done for my husband. He has severe RSD in his right foot and ankle. He is on a pain level of 8 even on his meds. Every dr he has been seen by has said that he has the worse case of RSD theyve ever seen and Dr Papenfuse says in all his years of working with RSD has never seen such a severe case. By the way Dr Papenfuse also instructs other dr's and surgeons how to do spinal blocks and implants. He is one of the top 10 neurologists in the country. I would never recommend any dr if we werent totally trusting and comfortable with that dr. So I hope this helps someone, good luck!

[lefty]

Originally Posted by MarriedtoRSD

My husband has RSD and we moved back to Michigan a couple years ago. He started seeing Dr Papenfuse at Matrix Pain Management in Saginaw Mi. I cannot give praise to Matrix enough. Seriously, these people actually CARE about the patient and they spend as much time as needed with them. Even if we are just going in for a refill on medication the PA will sit there for an hour if we need to ask questions or discuss anything. My husband has been to about 8 different pain doctors now and we will not leave Matrix. When we go for appointments we never wait more than about 15 minutes to be seen from walking in the door, they really care about you, want to get you out of pain and make you comfortable. They also do the blocks there and they do the stimulator implant which we are fighting with work comp over and is another story all together *sigh*.
So if you need a pain dr for your rsd or crps please check them out. I just cant thank them enough for what theyve done for my husband. He has severe RSD in his right foot and ankle. He is on a pain level of 8 even on his meds. Every dr he has been seen by has said that he has the worse case of RSD theyve ever seen and Dr Papenfuse says in all his years of working with RSD has never seen such a severe case. By the way Dr Papenfuse also instructs other dr's and surgeons how to do spinal blocks and implants. He is one of the top 10 neurologists in the country. I would never recommend any dr if we werent totally trusting and comfortable with that dr. So I hope this helps someone, good luck!

Hi, MarriedtoRSD...I was just wondering about your husband's workers comp and crps. I would really like to hear the story about w/c. I too, am dealing with those monsters ! I have a pain doctor and it seems that the only pain medication that he will give is what's in his office because the others W/C will not approve. These meds don't work for me, and the side effects are worst! The only pain med that he has given me is Ultram!! I may as well eat a TIC-TAC! I was wondering how should I let my attorney know that the medications are not being given by this pain doc because each time he has tried W/C will not approve. I mean I'm talking about Cymbalta (I know it isn't for pain) and protonax for my stomarch. I've had two ganglion blocks, Lipoderm cream, Zanax, Amitrityline in the middle of the night my body will start to shake even my stomach. I feel aggatated, and start to kind of twich, and very restless in bed! I got an appointment to see him on Dec 1., I just couldn't wait until the 14th.

I'd like to know how he's making out with w/c and I hope he have an attorney?
Please PM me so we can talk
Thanks Lefty