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its possible it was a muscle cramp.. in that case stretching would help.. ( ill keep my fingers crossed that , that is the issue...soft hugs
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Unfortunately not a cramp. This happens to me a lot in the past year if I immobilize my hands or arms at all...even if it's just having them in the same position without moving or stretching them (like me holding the duster for extended periods of time or the fishing pole when I went fishing or also if I am stitching and my one arm doesn't move much). It's not just a cramp...it's total freezing and I have to forcibly move that limb usually with my other arm. God forbid it ever happens to both sides at the same time...I'll be a useless mess! I try to be good with this stuff and not let myself immobilize but sometimes with the things like dusting or fishing or stitching I don't even realize I am doing it until hours later when I try to set the duster, fishing pole, or stitching down. Once I know that these things cause the freezing I just have to make myself move the limb every 5-10 minutes. Frustrating how much life changes when you have RSD...even when things are going good you can't stop and take a break from it at all or "forget" you have it and the things you need to do for treatment/therapy. Oh well...things are generally going so awesome...this is just a tiny blip on the radar.
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Dr. in Los Angeles that does tDCS?
Does anyone know of a doctor in Los Angeles that does tDCS?
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Just thought I would drop in and give an update on how I have been progressing wih the tDCS treatment and my return to work.
First...I have been continuing treatments but I have gone down to one treatment a day because fitting in two has been too difficult. So I'm not sure if that has slowed down my progress or not (because I am still improving) but it is a change and thought I would mention it. I still do them every day though...usually as part of my routine to get ready in the morning. BUT...as I said...I am still improving and am very encouraged by the changes over the past month. I am now consistently sleeping through the night without waking and getting about 8 hours of sleep (unless I have to be up earlier for work). This is incredible. I still have the odd night here or there where I wake up and can't fall back asleep...but it's rare...only 2 or 3 times in the past month I think. Could also have something to do with how exhausted I am from working...but whatever the cause I am thrilled. This makes such a big difference in my energy levels and I just FEEL better overall when I get a full night's sleep. All last year I was lucky to get 3 hours straight of sleep and most nights I was constantly waking up lucky to get 15 minutes together. There has also been improvement in my hyper sensitivity. Before it was my hands and my forearms that were getting relief and now I can also say that my upper arms are better too and (in the extreme heat that we have been having) I actually went outside without my scarf and wasn't crying in pain from the breeze. My neck still flares bad with anything except hot air movements (ie anything room temperature or less still hurts like all get out)...but this is a step in the right direction. My balance is starting to improve...yay! I have been able to do more and more walking without the walker. I still always have it with me because I never know when I will lose it but I am able to do more and more stuff without it which is great. Unfortunately, every time I go without it my ankle flares from the full wieght bearing...but the fact that my balance is improving is great as far as I am concerned. Seems like if I am in a flare or REALLY tired...that's when I get all wobbly again...or maybe that's just when it's more noticeable because I don't have the ability to concentrate on it as much. Work has been great. It totally kicks my butt...but it is WONDERFUL. I find that while I am at work and able to concentrate on something else besides the pain and treatments that things are better. The pain is still there...but it's not consuming all my thoughts and that feels great. I know that's not related to tDCS but wanted to say it anyway because it really is amazing to be back at work...and I honestly don't think I would be doing as well as I am at work without tDCS affecting all the other things. The other things I am still using/doing along with tDCS. I still use the rolling walker, use a cane to get up and down stairs, take hot baths with epsom salts once or twice a day, wear the TENS on my ankle, wear Lidoderm patches on my arms if I know I will be doing any heavy lifting or very physical work (besides just walking), and am wearing the clonidine patches. I ran our of clonidine patches and went a week without them. The blurry vision and dizziness returned...so it looks like these will continue to be necessary. I am also still following the 4 Fs diet as much as possible. It's a little harder now that I am back at work but I would say that I still only cheat very rarely...once a week...sometimes twice. But I'm staying away from all the bad things...including caffeine and coffee...no easy thing now that I am back at work. :-) Hope everyone else is doing well and if anyone has any questions, please let me know. |
Such Great News Catra
Gosh, I sure wish you all the best in your future gains from tDCS. It looks like you really are on the way to a better life and being a little more pain free. I'm so happy for you. At the moment I can't say the same for Deb and I. We still have not had any great shakes in the way of improving. Doc had us stop for 2 weeks to rest up for a new protocol. I've started the new one and had a few changes but nothing lasting. I don't plan to give up I'm still holding out hope for some miracle to suddenly happen when you least expect it. If you are still doing treatments what protocol are you using? Just curious if you have a favorite one. I'm also hoping Joydee's daughter is keeping up with the treatments and hope to hear soon that she's doing better. I really do wish you all the best and please keep us all informed of all your progress. :hug:
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I agree is great to see Catra continuing to progress using TDCS. Her continued reports are appreciated. I am keeping my fingers crossed for you. You say you started a new protocal and noted a few changes but nothing long lasting. My understanding is, it is the repeated treatments which produce longer lasting effects so lets hope you have hit upon the right protocol. As for my daughter, yes indeed she is continuing with treatment. She is back to the protocol she continued after returning from Atlanta. :hug: |
I'm still using the same one as before. I really haven't experimented with other protocols...just the first one I tried that I did not care for and this one which is the same one I have said before but blanking at the moment on what the locations are called (worked overnight the past 2 days and a total of 26 hours...my brain is a little fried). I have thought about trying a different protocol to see if I can target some of my balance problems...but as I am still seeing improvements (even if they have slowed down) I dont really want to switch yet. Once the improvements stop I would like to try another protocol though and see how it goes.
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new protocol
Fugety is sending me a tens unit. we are going to do tens and tdcs at the same time:eek:
Deb |
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Newbie searching for tDCS help...
Hi everyone, I am a new member but have been reading consistantly the past few days and decided to join. My Mom has RSD stage 3, she's had countless doctors in a number of states that have tried nerve blocks, EEGs (several times, I think that's what its called, where they test the nerve), she is on a slew of narcotics (morphine, percocet, and the marijuana pill) with no relief, she also has fibro, seizures, and from my research I think gastropherisis.
I've done a lot of reading and followed a few of your stories with your success with tDCS, the next step her dr is looking at is radiofrequency neurotomy, which I have read the best results from this procedure. She has a TENS unit, but from what im gathering the TENS unit and a tdcs device are two different things right? If anyone can point me in the right direction as to where I can purchase a tdcs device and the protocols for the certain placements for pain relief I would GREATLY appreciate it. Thank you all and gentle hugs! |
Posted this on your other thread too but the information you are looking for about where to purchase is on page 2 of this thread, post #20. At least that's the information I used. I know others have gotten their supplies in other places.
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HELP URGENTLY NEEDED - Ballerina's electrode placement protocols
Hi everybody,
Can anyone remind me what Ballerina's electrode placement protocols are? I don't feel too good and it's a trawl through this mammoth thread. She had luck with tinnitus, which is my area of need, using a pain protocol. I would be terribly grateful for the help. :hug: Also, anybody in touch with Ballerina, where's she posting now? If you speak to her send her my best regards, thanks. Wishing you all good health. Nick |
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I tried locating the info about tinnitus but the only post I saw off hand ballerina mentioned, was page 1 of the TDCS thread, she said after one week of treating twice a day the tinnintus had vanished. I do recall another member had mentioned tinnitus as well but cannot recall who that was. I could be wrong but perhaps CRP James. Have you tried any of the protocols yet, if so which one. I haven't heard from ballerina I hope she is alright. :hug: |
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An additional response. You might go to Doc Fugedy's website www.transcrainialbrainstimulation.com. Look under the condition of tinnitus. He has some protocols listed there. Hope this helps :hug: |
Sorry if I missed this
Didn't go thru entire thread so if info was posted, forgive me but my question is, I already own a TENS device (BNS 40) that my dentist prescribed for TMJ. Can this be used as A tDCS device simply by placing the electrodes on my head as opposed to my jaw?
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That would be a no, but a tens unit can be used in conjunction with a tdcs unit. Best wishes. |
no luck
I am having absolutely no luck, No change in pain -NOTHING_ I am currently using a tens on my back as well as the tDCS
Deb |
I haven't been allowed many treatment options so I haven't tried TDCS but I use my tens unit often.. though not directly on RSD area I do find that if I use it on surrounding area the spasms stop for brief periods. also I use it on my back and neck to treat for rediculopathy... it helps that with in turn is another minor relief. but like you all know minor relief is the difference of staying in bed forever or lightly living your life.
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Debbie I am so sorry to hear you are not finding relief with the new protocal adding the tens unit with TDCS :hug: |
Tdcs
I bought a phoresor II auto PM 800 from ebay and am having trouble with the electrodes. The machine came with built in alligator clip style electrodes that do not appear to be able to be changed. I tried clipping them to the amrex sponge electrodes but they wouldn't stay. I also tried clipping them directly plain sponges but that wouldn't work either. Does anyone have any suggestions for me? Sorry if I am missing something obvious.
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tDCS disappointing
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I am really sorry to hear that neither one of you have seen any improvements with tDCS. I can only imagine your frustration. When I had my first LSB and it didn't help at all I felt totally destroyed inside because it seemed like it was the answer (oh how new I was to RSD). I so hoped that you would both see SOME sort of improvement...whether it was that your were sleeping better, the pain was less, the hypersensitivity was less, flares lasted less time, more time between flares...SOMETHING.
Can I ask what protocols you have tried? Have either of you tried the one that I use or that others have used successfully? I know we are all different and so it likely takes finding just the right fit for their to be improvement...which is frustrating when you are essentially on your own to try and figure it out. Each one needs a good 2-4 weeks too before you can know and many of the best (in my opinion) improvements come after several MONTHS of use...at least that's how it worked for me. But I did see SOMETHING within the first couple weeks of finding the right one for me. But I guess if RSD had an easy solution that worked for everyone with it then we all would have been cured a long time ago. If either of you has any questions or even if you just need to vent (about whatever) please feel free to PM me. I can only really tell you about my own experiences since that's all I have to go on...but I am happy to share what I can. Take care both of you and I hope you find some relief soon. Hugs. |
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The unit I have is too old to take the TENS wires that plug right into the unit. The initial wires coming out of the unit are hardwired into the unit and there is a snap connector on the end and the alligator clips are snapped on to this. I ordered the snap to pin converters after reading through this thread but what I am worried about is it looks like the converters are either only male or only female snap connections while the snap connector I have is one male and one female. Also where can you get the elastic headbands? I have tried the ace bandage and it will due but I believe the elastic headbands would be easier. I tried emailing the generic email on the Soterix site but I did not get any response. |
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I don't use the elastic headband. I use the self sticking (sticks to itself but not to skin or hair) first aid tape instead. I have two bands that I just tied so they are the right size for my head and just reuse those until they fall apart and then cut a couple new lengths and start again. They last me a good couple months of daily use though before they get too messed up to be worth taking the time to fix. The tape is pretty cheap so it really isn't a big deal to make new ones. Might be worth a try. I'm not sure where else you would order the elastic headbands from but there have to be other options online. Good luck! |
Very Interesting
[
Transcranial Magnetic Stimulation sounds like something that mainstream medicine should look into and start using more frequently on patients. I, llike you think that the focus should be on the cause and not just treating symptoms. I hope you have much success in prompting the doctors you are working with, to get the word out about this. Best regards, Patience QUOTE=ballerina;826040]My journey is very similar to other folks with CRPS. My options, however, may be more limited than many due to drug sensitivities. Ketamine is out of the question because I am allergic to it. I have grown weary of the tired advice that my pain needs to be better managed by drugs. I made the decision early on to heed the warning of research regarding Narcotics only increasing neuropathic pain long term. Having had my share of frustration regarding what the medical profession has to offer me, most of what has helped me I have discovered from exhaustive research. I am fortunate that my treatment team has been open to trying whatever I bring to the table. Since I decided early on that my thrust was going to be treating the cause of my pain as opposed to treating the symptoms I targeted anything that would address CRPS and brain plasticity. Success with Graded Motor Imagery and Mirror Therapy, led me to Transcranial Magnetic Stimulation. I was turned down at three locations because I did not have clinical depression. When I discovered a t.D.C.S. Clinical Trial at Beth Israel in NYC I applied but was rejected. I appealed to the lead researcher and was treated as an outpatient last January. While receiving the treatment I asked non-stopped questions of the lead researcher and physicians. I was struck with the simplicity of the treatment and commented that I believed that this treatment could be easily performed by patients in the comfort of their own homes, much like the operation of a TENS unit. That comment, like many of my comments to members of the medical profession, was not well received. Since I had such a positive response to the treatment I decided I would attempt to convince my PM doctor to become trained and to offer the treatments. Although he initially agreed and I prepared an extensive stack of related research, prepared a detailed list of equipment needed with the most cost effective place to purchase the equipment as well as located resources for his training, after seven month of waiting it has not happened. I wanted an additional series of treatments but could not afford the cost of putting myself up in NYC and shelling out $1,000 for the one week treatment. Fast forward to today. I took all that I learned, purchased the device and I am on my second week of treating myself. I am having a remarkable response. Transcranial Direct Current Stimulation uses weak electrical current to affect brain plasticity by modulating the excitability of neurons. Think of it as recharging a car battery with jumper cables. The current is delivered by two saline soaked sponges applied to the scalp. The anode (+) stimulates the area under the electrode and the area under the cathode(-) is inhibited. This procedure is quite safe and has minimal side effects, one cannot build up a tolerance to it, and it can be repeated indefinitely. It is effective for treatment-resistant chronic pain-everything from Fibromyalgia, Migraines, MS, to Tinnitus to depression and memory problems. My first series of treatments last January ended my gastroparesis symptoms and they have not returned. All of the other gains I made in symptom reduction eventually wore off, similar to the way symptoms return with Ketamine infusions. In only one week of treating myself for twenty minutes twice a day my tinnitus has vanished, my teeth clenching due to pain is reduced, my posture is improving, my right hand is no longer clenched. I am no longer sleeping with a bungee cord attached to my wrist and the bottom of my bed to keep my arm from curling up for eight hours at a time. I am able to wear a top for up to an hour and a half. (That's right-I can't wear anything on my upper body for any extended period of time- which means I am confined to one room of the house with a space heater, only half clothed) My range of motion is improving. Yesterday I unloaded the dishwasher for the first time in three years! Typically my body is covered in bruises because of falls. Although I have bruises on my abdomen and legs from a fall prior to beginning treatment about a week ago I have not fallen since I began treatment. By evening I am usually wiped and feeling irritable so I excuse myself and take an epson salts bath. For the past three evenings my husband has enjoyed my company so much that he insists I still take the bath but he comes in the room with me. Two days ago was a most dreary raining and gray day. I looked out the kitchen door and noticed the poison ivy vine curling its way up the downspout. It had been a constant source of aggravation because I could not pull or dig it up. Suddenly is was a gorgeous orange and gold work of art. When I looked past it down the street I noticed the red and gold trees against the gray sky. The were absolutely beautiful. I had not noticed one single color of fall. This is called not being able to see the trees for the pain. My response has been truly remarkable and each day I see improvements. My plan is to continue treating until I see no additional improvements. I will then either wait until the treatment wears off or experiment with a booster treatment schedule. The equipment consists of an Iontophoresis device used by physical therapists to deliver medication by way of direct current through the skin to the underlying tissues. The unit is powered by a 9 volt battery. Additional supplies include sponge electrodes soaked in saline solution and wires (the kind used with a TENS unit) I commented to my physical therapist last week that had she used the Iontparesis device on my brain, rather than on my shoulder when she first began treating my pain I would have probably gone into remission. She was less than pleased with my comment and stated that she would be recording in my chart that she did not condone my current use of the device. When I asked her if she had seen this kind of progress from any of her treatments in the last three years she admitted that she had not. Oh well, onward and upward. I am either dragging the medical profession behind me or leaving them behind. I would encourage any newly diagnosed CRPS folks to try this treatment for possible remission. There are many different protocols to try if pain relief does not happen on the first try. I am an "old and cold" CRPS patient. Given the severity of my pain and other symptoms and the positive response I continue to have I would encourage others to consider this treatment. Consider the costs and risks of a gold standard CRPS treatment, Ketamine infusions and the boosters that will be needed for life. A recent post detailed a total cost of $15,000 for a visit to Kirkpatrick for a round of Ketamine infusions. I estimate my lifetime cost of treatment with tCDS to be at most $1,500. Why has my pain management doctor not yet offered this treatment?????? I don't know. Food for thought-consider that pm docs generate most of their revenue from procedures, many of which are invasive, risky, or potentially dangerous to CRPS patients. Hope this information is helpful!!!!!![/QUOTE] |
Well...it's been a while since I posted an update about my progress but thought it might be worth sharing now that I have a few moments to myself to write it all out.
I've been back at work for almost 3 months now. It was shaky at first, very hard, but my body adapted to it and I figured out how to do the various things and get my work done. Even once I was adapted to things I was still pretty drained by the end of the day but I'm getting stronger and adapting to those increased pain levels and now most days I feel like I can stil function pretty normally once I get home and go about my normal routines. I'm still able to water the plants in the yard, take the dog out, cook dinner, etc. That said...I honestly felt like I had really leveled off in terms of the benefits of the tDCS. My sensitivity has stayed about the same in the rest of my body...pain levels didn't seem noticeably different...still need the walker because my balance is not great, etc. I still do one treatment a day (two was just too much with the number of hours I work) but I wasn't seeing any great strides from where I was at beyond my adjusting to work and losing weight (not to pre-RSD levels but definitely some with all the physicality of work). But I have still been pushing myself, especially while at home to walk without the walker as much as I can stand (which wasn't much). I mostly confined my efforts to the kitchen and the bathroom since those two rooms are so small that there is no "middle" of the room where I'm even outside of reach of a counter or table or whatever. Well...two weeks ago I had landscapers come to our house and create a whole bunch of new flower beds. I found a good sale of perrennials for $1 that week and bought 20 to plant in there (I also bought more to plant this week that are being delivered Monday but that's not really important). Anyway...they are planted around the edges of our yard which is pretty good size. For the past week I have walked around the yard to water them with the watering can WITHOUT MY WALKER! I'm still wobbly and have to be very careful...but I can DO it. Hurts like all get out and I usually need to rest for at least 10 minutes after...but 2 months ago there is no way I could have done this. I am so proud of myself. Just goes to show I think, that at least in my case, that the committment to keep going with treatments (physical therapy and tDCS) even when you think they're not doing much anymore can really pay off. Improvements for me have been terribly slow and gradual...but if I can get myself even to the point of not needing the walker at least at home I will be so very happy. Out of the house I don't know that I will ever be able to go without it...but who knows? Important to note...the PAIN really hasn't improved much outside of the reduced sensitivity in my hands and arms. I have just come to accept that it is a part of my life now and I'm not letting it take me down. I use all my tricks for managing the pain every day without fail and have learned what I need to do in order to avoid the worst triggers. I will also honestly say that I don't KNOW whether the physical therapy I do myself or the tDCS or my return to work is the reason for my latest improvements...but I would be inclined to think that it is a mix of all three as they are all part of my treatment plan and all contribute at least a little to my gradual successes and improvements. |
How to create a TDCS device?
I want to create a tdcs device. Currently, I'm planning to use an iontopherisis device called Activadose II. Does anyone have input regarding what accessories would fit this device to create a tdcs device? I'm also open to tdcs configurations based around a different device. Lastly, is galvanic stimulation the same as direct current stimulation?
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I use the Activadose II. To transform it for tDCS you need to buy standard TENS wires (I got mine on amazon.com for like $2), sponge electrodes, and some "pin to banana" connectors. I used the information on page 3 (I think) of this thread. I'm sorry...but I don't know the answer to your other questions.
If you have any other questions about tDCS, please ask or feel free to PM me. |
tDCS is it the answer?
My goodness, I haven't been on here since August and I come to check up on everyone else and I see NO one has been here either. What's happening everyone??? Come on we need to keep in touch and keep ourselves going.
I for one sure wish there was an answer to RSD, I do know at this point the answer is not tDCS. Deb and I have been faithfully following doc's orders and doing what he suggests in the protocols. We have not had one single improvement in any aspect of our individual problems. We have had such faith and hopes in this treatment and are at such a loss as to why we haven't seen anything change. Even doc Fugedy is at a loss. YEA,you can believe it, he too has no idea why we haven't had any improvement. As a matter of fact he has no idea what to do next. We have all reached the end of our ropes (as they say). I would sure like to hear from somebody about their position at this point in the treatment routine. How are you all doing? Catra, Ballerina, Joydee etc. Lets get our heads together. Luv To all and hope to hear from you even if it's in pm. Thanks I:confused: |
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For those that are using the tdcs device what kind of head bands are you using to fasten the electrodes to your head?
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I am VERY sorry to hear that neither Deb nor you have had ANY improvements. It makes me so sad as I really had high hopes that you would see SOME improvements. I wish that I knew what to tell you or had some other ideas that could offer you some sort of relief but other than those things that I have already talked about with regards to my tdcs treatments and my daily routines for pain relief...I don't have much to offer. But if you have any questions, anything you want to know, don't hesitate to ask as I will share again and again. As for my progress...I will give an update. I have now been back to work for almost 4 months. With the return to work has come a return of strength and endurance, loss of some of the weight I put on (though not the swelling in my upper body that came on all at once in three days once the spread started to those areas), and a return to mental health (not that I was ever horrible in this respect but I am much happier and in a better place than I was prior to my return to work). Work on the one hand has been difficult physically but has been far more beneficial than not in the grand scheme of things. I have bad days but so far they have been bearable. Flip side...with the weather getting cooler I have been experiencing more pain and it has been a blow to my confidence. Don't get me wrong...I expected it...but it still sucks. I have serious concerns about how bad things will get as it gets even colder (right now the worst has been the temps in the mid 40s). Workload has also been heavy and VERY physical at work as we get ready for the holiday season (I work in big box retail as a manager). I worked a few extra days to get department moves done and that involved a lot of heavy lifting and it pretty much kicked my butt. On the one hand...those big moves are done and BECAUSE I busted my butt to get them done right then I shouldn't have any more to do until January. On the other hand...6 day weeks are quickly approaching and with the cooler weather...I am worried. When the pain gets really bad at work (and it does sometimes...okay...often) I have been able to push through by focusing on that tasks that I have to complete. It should not be under estimated how big of a thing this is in helping me to keep going. When I was just at home and not working...no matter how much I tried to keep myself busy...the tasks just could not keep my mind occupied enough to overshadow the pain. At work...it's very different. I am able to push the pain back into a corner of my mind while I focus on all the things that I need to do and that need to get done. Several times I have been on the verge of tears and wanted to crawl into a corner and just sob...but I always get past it. Better news is that when I am at home and there are no people around (besides my boyfriend) I can now get around MOST of the time without the walker. On bad days...I still need it...but when I don't have to worry about being bumped by other people or tripping over things in an unfamiliar environment I am doing pretty well without it. I look much like a drunkard with my tipsy way of walking...but it is getting better. Balance is still an issue so it takes a LOT of concentration to stay on my feet...but this is progress and I am very happy about it. Let's see...what else. Well...I have purchased for myself knee and wrist braces. I do not have RSD in my knees but all the crawling I did last year when I couldn't walk or stand because of my RSD destroyed my knees. The wrist braces...well...I got them for days when I know I need to do physical work at work (ie heavy lifting and moving of fixtures). I know imobilization is bad and so I am limiting the use of them only to situations where I feel the benfits outweigh the risks (which is maybe a couple of hours a week). I found some wrist braces I really like that cushion my hands and those have worked out well in protecting them when I'm at work doing something very physical. So all in all...things are going well. Sleep is no longer a problem at all for me. I consistently sleep 6-8 hours a night and this is almost always consecutive. I have been able to keep up my tdcs treatments once a day almost every day...but I confess that I do miss them sometimes when I have a crazy schedule at work. I also have an hour commute each way to and from work. I've started listening to audiobooks in the car to keep my mind off the pain of the vibrations of the car rides. This doesn't always work but it is better than nothing. I also have a playlist on my ipod of instumental music which I use often to help take my mind of pain or to cover up noises that aggravate my pain. That's about it in terms of my progress to date. In 19 days...I take my celebratory trip (for getting back to work and back on my feet) to Disney World with my family. It will be my first airplane ride since the spread, my first trip to Disney since the spread, and I am nervous as heck about it but also terribly excited. I think it will be fine...I'll have all my supplies with me to deal with flares and I will be prepared to step back and take it easy when I need to. I hope I am ready to deal with this sort of trip...I think I am but sometimes I just worry that I am over estimating my physical condition. I need to be careful to try and avoid those situations what could result in my getting injured which I know will be no easy task when you are talking about large crowds, lines, rides, and a million other things I probably am not even thinking about. The walker should help in that people will likely keep their distances like they do at work and when I go out...but then again some people don't pay attention to things around them and I could still get hurt badly and end up in a really bad flare very easily. Oh well...I will hope for the best and prepare for the worst. Again...Hampster and Deb...I am very sorry to hear that you have not had any improvement. If there is anything I can do for you two, please let me know. |
To JohnBoy re: tdcs bands
Hi. What I found works best for me to hold the tdcs electrodes in place are the rubber wide bands that I have received from my PT. They are long, about 3" wide and I only need to wrap them around my head once and knot in the back. Because of how wide they are, I can fit the one sponge over my eye and the one over my ear. Also, it doesn't pull my hair like the other options do and they are easily reusable.
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Hi, Just a quick report after being away for too long.
At this point I've been using tDCS regularly (as close to daily as I can) for close to the last 10 weeks. And, while tDCS has not making a difference in my pain - and with lower-extremity I was warned in advance - it has brought about a real reduction in my sympathetic dysfunction, which had manifest as edema and myocardial small-vessel constriction that had finally become refractory to nitroglycerin, resulting in briefly being admitted after a 12-hour stay in the ER, a few weeks before I started tDCS my initial treatment with tDCS. (All of which is done with the anode is applied to the dominant motor cortex: M1.) But, when also applied to the dorsolateral pre-frontal cortex - F3 - it has largely restored my verbal fluency, something I assumed I would never see again. So HOORAY FOR THAT!!! Mike |
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Tdcs
Hi,
I to would like to add some comments, my daughter who has been trying TDCS for some time has had a lot of interuptions due to deaths of close family members not to mention having to change starting protocols due to continued problems with migrane headaches. Nevertheless she continues her treatments. We haven't seen the pain relief we had hoped for but my daughter had mentioned with the previous protocol she was unsure but felt it helped with balance for this reason she is considering returning to that protocal which would have been C-3 I beleive of the motor. In addition while she personally did not say anything I felt when she was doing the pre-frontal her moods were better, she appeared to be more up beat. It is wonderful to hear the feedback from Catra and fmichael and everyone else regarding there use of TDCS, it would seem judging from the responses there are other benefits other than pain relief. I have a question of any of you folks who may or may not have had this experience it may not relate to TDCS but had any of you had your pain move from one place to another. Somewhat like a spread but as far as a further area but an absense of the burning pain in the orginal area. Perhaps I can expalin it better, burning pain existed at the surgical site but seems to have ceased there but moved a few inches beyond the orginal site yet ceased at the surgical site. Good luck to everyone with TDCS :hug: |
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