Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-26-2011, 09:24 AM #11
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Quote:
Originally Posted by bent98 View Post
http://www.fisherwallace.com/?gclid=...FUdn5Qod6GersQ

Has anyone seen this device?

Seems to be similar device sold with a RX.



Here is link to instruction manual. I didnt see anything about nerve pain.

http://www.fisherwallace.com/uploads...tionManual.pdf
This is not tDCS. It is CES (Cranial Electortherapy Stimulation.) This device was grandfathered in at the time that the FDA began regulating stimulators and medical devices. It would likely not be approved today, at least not without substantial solid clinical trials.

Personally, I would avoid it. However if there is a money back guarantee, maybe you have nothing to loose.
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Old 11-27-2011, 09:33 AM #12
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Default still making progress

I am beginning to wonder if the tDCS treatments have halted the progression of the CRPS. The treatments have certainly calmed down my sympathetic nervous system. The atrophy is improving, as is my range of motion. I can now open the refrigerator without quickly kicking it closed in pain, followed by a fall due to balance problems. I have not fallen since I began treatment. My reaction to noises and vibrations is improving. I am wearing clothing on my upper body for up to three hours at a time, which means I am not held prisoner in one room of the house with a space heater 24/7.

The most amazing thin is the stiff claw position of my hand is totally gone. The debilitation full body joint pain that made the aggressive home PT program that I developed a torture to implement has gone from a level 7 to a level two. My program consists of twenty minutes on and twenty minutes off of some form of exercise all day long with a break for a nap in the morning and the afternoon. I believe this program has kept me from becoming berdridden. I used to watch the clock and by the end of each twenty minute segment I was totally drained. Now I am fatigued but in much less pain at the end.

I have not hit the level 9 pain that was at least monthly if not a weekly event. I have not had one flare since beginning treatment.

My daughter took me shopping for a Christmas present for my husband. This time last year when I went shopping for his gift I landed in the emergency room.

I can only imagine how tDCS could improve CRPS for those whose symptoms are not as sever as mine.

I am here to help anyone who is interested.
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Old 11-27-2011, 11:26 AM #13
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I for to ask you, how many treatments have you done with your home unit?

You also mentioned to me its great for depression and mood. Do you see you mood imporving more and more as you continue with the treatments?

You also said you are now able to wear clothing for 3 hours, what happends after 3 hours you get burning pain?

Thanks again for your willingness to help others. God Bless.
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Old 11-27-2011, 03:34 PM #14
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Originally Posted by bent98 View Post
I for to ask you, how many treatments have you done with your home unit?

You also mentioned to me its great for depression and mood. Do you see you mood imporving more and more as you continue with the treatments?

You also said you are now able to wear clothing for 3 hours, what happends after 3 hours you get burning pain?

Thanks again for your willingness to help others. God Bless.
I have treated myself for a little over two weeks, twice a day for twenty minutes each.

After three hours of wearing clothing I gradually start to experience searing pain if I leave the clothing on. However, I originally could not wear anything for even a minute. I would have to pin my hair up and slap gel on the stray hair or it felt like a hot knife on my shoulder neck and back.

There is a lot of research on tDCS and intractable depression. Remarkably, I do not have clinical depression, since the beginning of my journey with CRPS I have felt optimistic and hopeful that I would find treatments to help me or put me into remission. Since treating myself with tDCS I have been more chirpy and the irritability that sets in by evening has been reduced. With regard to your question about my mood improving more and more, just about everything is improving more and more.

Many of the clinical trials use a five day treatment schedule once a day, some setting at 1 milliamp. Since I received 2 milliamps at Beth Israel, that is the setting I continue to use. Recently, there has been research interest in expanding the number of days and treating twice a day instead of once. Since I am having a good response I will be continuing my current treatment schedule until I see no additional benefits.

I am just beginning to allow myself to feel that the days of lying on the floor in pain, begging for God to take me are over.

I have had no improvement, however, in the pain in my pec and neck areas. My hunch is that I have to find the correct protocol to address it. I am currently in the process of researching protocols to try.

I have learned through trial and error the do's and don'ts when treating with tDCS. If anyone is interested I can post them.

Hope this helps!
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Old 11-27-2011, 04:11 PM #15
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I have treated myself for a little over two weeks, twice a day for twenty minutes each.

After three hours of wearing clothing I gradually start to experience searing pain if I leave the clothing on. However, I originally could not wear anything for even a minute. I would have to pin my hair up and slap gel on the stray hair or it felt like a hot knife on my shoulder neck and back.

There is a lot of research on tDCS and intractable depression. Remarkably, I do not have clinical depression, since the beginning of my journey with CRPS I have felt optimistic and hopeful that I would find treatments to help me or put me into remission. Since treating myself with tDCS I have been more chirpy and the irritability that sets in by evening has been reduced. With regard to your question about my mood improving more and more, just about everything is improving more and more.

Many of the clinical trials use a five day treatment schedule once a day, some setting at 1 milliamp. Since I received 2 milliamps at Beth Israel, that is the setting I continue to use. Recently, there has been research interest in expanding the number of days and treating twice a day instead of once. Since I am having a good response I will be continuing my current treatment schedule until I see no additional benefits.

I am just beginning to allow myself to feel that the days of lying on the floor in pain, begging for God to take me are over.

I have had no improvement, however, in the pain in my pec and neck areas. My hunch is that I have to find the correct protocol to address it. I am currently in the process of researching protocols to try.

I have learned through trial and error the do's and don'ts when treating with tDCS. If anyone is interested I can post them.

Hope this helps!
Please post them.
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Old 11-27-2011, 08:03 PM #16
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Default t.C.D.S. Do's and Don'ts

1) Before activating the device be sure the wires are securely connected to the electrodes. Occasionally they can come loose while being wrapped in ace bandages.

2) Remove all hair spray, gel and conditioner before treatment and wipe the scalp/skin with an alcohol prep pad.

3) Do not apply electrodes to areas that have cuts, rashes etc.

4) During treatment you may be seated or recline, but do not walk around. It is best to rest during treatment.

5) Sponge electrodes should be wet enough to slightly drip. If not wet enough they can cause skin burns.

6) You can make your own saline solution. It is cheaper than buying it. Mix 1/4 teaspoon salt with 8 ozs. of salt water.

7) Electrodes must be wrapped snugly but not too tight or they can cause a flash of light across the retina or skin burns.

8) Set the milliamp dial after the electrodes are in place and then plug in the the electrodes and activate the device. Plugging the electrodes in too soon can cause a white flash across the retina (not dangerous, just annoying.)

9) Don't use phones of any kind during treatment-you will get a shock (not dangerous, just startling) Ditto for computers microwaves, etc.

10) Slight skin irritation may occur. Application of an aloe lotion helps.

11) Wait at least 8 hours between treatments.

12) After the first few days of my most recent round of tDCS I experienced headaches. (Research suggests that the sham group also reported headaches)

13) Treating later than 7:30 pm disturbs my sleep. Treating earlier enhances my sleep.

Hope this helps!
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Old 11-29-2011, 03:40 PM #17
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I saw my PM doc today and he was amazed with my progress. He indicated that he would not have expected this kind of result from Ketamine infusions. He has decided to offer tDCS to his other CRPS patients in addition to those with Fibromyalgia and migraines-conditions that are treatment resistant like CRPS, and are frequently accompanied by clinical depression.

I suggested the treatment to a coworker of my husband who has CRPS and is also treated by my PM doc. She went to Beth Israel for a week long series of tDCS prior to trying Ketamine infusions. Since she had the same kind of response to tDCS that I did she has decided not to have Ketamine infusions. She is now off narcotics, which she has taken for 6 years.

My PM doc has blocked out an hour of his schedule next week to observe my treatment.

To say that I am overjoyed at my improvement is an understatement! I am thrilled that other folks in my neck of the woods will have a chance at what I have experienced.

For those who cannot afford Ketamine or who are concerned about the side effects, tDCS is quite safe, affordable and can produce results as good as or better than Ketamine.

Best to all!!!!
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Old 11-29-2011, 03:42 PM #18
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Quote:
Originally Posted by ballerina View Post
I saw my PM doc today and he was amazed with my progress. He indicated that he would not have expected this kind of result from Ketamine infusions. He has decided to offer tDCS to his other CRPS patients in addition to those with Fibromyalgia and migraines-conditions that are treatment resistant like CRPS, and are frequently accompanied by clinical depression.

I suggested the treatment to a coworker of my husband who has CRPS and is also treated by my PM doc. She went to Beth Israel for a week long series of tDCS prior to trying Ketamine infusions. Since she had the same kind of response to tDCS that I did she has decided not to have Ketamine infusions. She is now off narcotics, which she has taken for 6 years.

My PM doc has blocked out an hour of his schedule next week to observe my treatment.

To say that I am overjoyed at my improvement is an understatement! I am thrilled that other folks in my neck of the woods will have a chance at what I have experienced.

For those who cannot afford Ketamine or who are concerned about the side effects, tDCS is quite safe, affordable and can produce results as good as or better than Ketamine.

Best to all!!!!

It think its great you are able to help others. This may be something I will try and if it works I will be bugging you more.

Godbless

Greg
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Old 11-29-2011, 04:33 PM #19
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It think its great you are able to help others. This may be something I will try and if it works I will be bugging you more.

Godbless

Greg


Dear Ballerina...

Can you post the link where you purchased the unit, please.. Also do the leads come with the unit?? Or.. Call me..thanks



Thanks, Kathy
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Old 11-29-2011, 09:19 PM #20
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Dear Ballerina...

Can you post the link where you purchased the unit, please.. Also do the leads come with the unit?? Or.. Call me..thanks



Thanks, Kathy
The unit I use is the Activa Dose II. I just came across a site that offers it for only $225.00 Item # w64153. The company is 3B Scientific www.a3bs.com, 888-326-6335.

They also have the lead wires for only $6.95, Item # w53111.

Sponge electrodes can be purchased from Amrex, www.amrexusa.com, 800-221-9069, Item # 2-A103.

I suggest you do a search to see if you can get the device even cheaper. Just google "Iontophoresis device." The prices seem to be dropping. Also some sites require a script. Even the ones that request a script- if you order online you can many times by by pass it.

Hope this helps!
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