NeuroTalk Support Groups - t.D.C.S. Update Could remission be within my reach and your's too?

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - t.D.C.S. Update Could remission be within my reach and your's too? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/160980-update-remission-reach.html)

Hi Ballerina,

I wouldn't dream of going for any device other than that recommended by you, believe me I wouldn't want to cut corners like that. I am in a tight spot but will eventually follow your lead. In meantime, the exceptionally decent guy I refer to who knows of my plight has kindly loaned me a unit for trial. It's just cleared UK customs. I'm so very sensitive at moment I just want to let you know more details after I start using it. I have got a ton of respect/faith in what you have achieved, just give me time to see how it goes. Thanks for being so kind and supportive, people like me really value it. Never been in such desperate straits in all my life.

Nick

It is so nice to see that you are getting better and taking hold of your life, no matter what.

tDCS activates more neurons, so this is why it feels like you have more energy. Your chemical levels of energy are still the same, yet your brain is working at (what people would consider normal speed) overdrive. The good thing is that it is only part of your brain working on overdrive.

Keep up the good work and the cm's,
Steve

Quote:

Originally Posted by CRPSjames (Post 857619)

I just had to post about my headaches. I have been suffering with severe headaches for years. Two weeks ago I thought they were getting better but reminded myself that it was probably just wishful thinking.

Now I know better because the headaches are gone. In the past anything has set off a headaches, light, noise, perfumes. I have not had a headache in ten days. It has been years since I was headache free.

Also my energy level is improving by leaps and bounds. I didn't realize how CRPS had robbed me of energy until I started improving.

I am beginning to wonder if tDCS is reversing the course of the disease since one of the many hallmarks of CRPS progression is decreasing energy levels.

I am zipping around now on my walker. I am getting stronger every day. I know it is only a matter of time before I walk out the door with a cane. My physical therapist has designed an aggressive exercise program for me to follow at home. Yesterday she measured my calf and I have gained one half inch!!!!!

Has anybody come up with an effective tDCS booster schedule?

Or inches (cm's=inches...)

Do u think this would work on Lower limb rsd?

Quote:

Originally Posted by debbiehub (Post 865546)

Do u think this would work on Lower limb rsd?

It worked on mine. I was in a wheelchair and now I am transitioning from a walker to a cane. Don't give up on your first electrode placement.

How do you know we're to put the electrodes?

Quote:

Originally Posted by debbiehub (Post 865595)

How do you know we're to put the electrodes?

Lots of research-do a pub med search on CROS and tDCS. You will find some real well done research. The electrode placements are clearly listed in the methods section. It is pretty much trial and error. If your are not into research I suggest consulting with the brain stimulation clinic in Atlanta.

Could you send me the link to that page. I am having trouble finding it.

Thanks!

Debbie

Quote:

Originally Posted by debbiehub (Post 865741)

Could you send me the link to that page. I am having trouble finding it.

Thanks!

Debbie

Hi Debbie,

Just google Pub Med. Then type in CRPS and tDCS, or CRPS and Chronic pai or tDCS and safety. Some articles are printed in full. Others there is just an abstract. If you see one that looks particularly promising and it is only listed in abstract form you may write to the author to request a copy for your personal use. (If you obtain a copy this way you may not post the article).

You may also be able to obtain some articles from your local college, or if you have a connection to a large university or medical school your contact might obtain a copy for you.

One article will lead you to the next.

This is not a hard process, just demands a little persistence.

Hope this helps.

I am wondering if the tDCS helps with thinking, concentrating part of RSD. I have trouble learning new things now, and I used to be able to learn quite easily. I have quite a problem in this area. I also have Fibro, and not sure how much is Fibro fog and what is RSD fog. Either way, I miss my brain. :rolleyes: I could cope with RSD better if I could watch a movie without getting lost, or read a book for example.

This was the main problem for me when I was still working.

I hope to have the funds to try this treatment in a few months.