Trying to decide, need help
 

Deb and I are still on the fence as to wheather we should go to Atlanta or go to Dr. Schneider here on Long Island. We have spoken to both docs and they are very helpful and want to help us but we have conflicts as to who's the better long term help. Anyone have experience they could share???

I'm lost in tDCS space
 

OK, I give up. I've tried to find protocols for tDCS and all I keep getting to are abstracts. I love reading all the great things all these fine docs are saying but, where do I find an actual protocol??? How did Joydee find the Beth Isreal protocol she mentions in her last post? I've just spent hours going from one place to another to no avail. Any help would be great. Thanks so much.

Hey Hampster,

I suggest you read through the tDCS thread. There are multiple postings on how to locate electrode placements. You have to get past the abstracts.

It is too bad there isn't a one size fits all but there are new publications almost weekly with new information.

Given the amount of frustration you are having an appointment with an experienced doctor might be more beneficial for you in the long run.

Hope this helps,

Heading to fugedy
 

Just an update..Irene and I booked our flight and will be seeing Dr. fugedy on may 5th! .....will keep you updated,
Debbie

Hi Debbie,

"Yay" you. Best of luck on your visit with Doc Fudegy.

:hug:Joydee

Hi Hampster,

Just read your post but just as I am getting ready to leave and I will be late
if I try to respond now but I will get back with you.

:hug:Joydee

CRPSJames, thanks
 

James, I'm not looking for a one size, I'm looking for any size. lol I have read everything since Jan on this thread no one says how you get to the protocol. I get to the abstracts and I read them but then I'm at a wall. How do I go further and not end up back into some other abstract? You all mention Pubmed and that's where I start but still can't find a protocol. I wondered how Joydees family got the Beth Isreal protocol. Deb and I are finally going to Atlanta and I hope we'll learn a lot more but, how much can we learn in site of 4-5 hours? I'm looking for a back up system to do research on the protocols for when we return. I've read so many abstracts I'm bleery eyed. Give me some direction if that's possible. Am I using the wrong terminology?

Hi Hampster,

I am back. Just finished a post but took so long to write it, it was not
accepted and had to log in again.

First off all James gave you excellant advice and he is correct, There are
more than one protocal. I don't know what part of the body your CRPS
is located but I first became familiar with the Beth Isreal study on CRPS
the RSDSA web site. I became farmiliar with the names of the docs involved
in that study.

I got lucky. I wish I could provide you with a step by step procedure but
I don't know what key words I typed. I went through Google first not
pub med. Dont despair before posting I played around with some key words
and came up with the screen and can share from there. Go to goggle,type
in Non-invasive transcrainial direct current stimulation for neuropathich pain .
This will bring you to a screen. Look at one of the titles which has the names Knotvova H. and Cruciani RA. Click that and this will take you
to pub med. That Pub Med abstract will say. " Non-invasive transcraincal
direct current stimulation for the study and treatment of neuropathic pain"

You don't want just the abstract on that screen see other souces and you
will see springerlink. You don't want springer.com unless you are assoicated
with a facilty which has access. I registered so I could get a copy of the
full article. It cost 39.00 dollars.

This has some portocals mentioned but please understand this is not all your
homework, helpful yes but not all. Both Voner and Catra also posted a
web site which is not the TDCS thread that has another site, with some
protocals out of Harvard I think.

Hope this helps

:hug:Joydee

Hi,
Hampster, sorry about the recent message. Was in a huury so I did not
have time to proof etc. For my family either way we go be this ending
with doc Fugedy or what, it is the better part of valor to study
since this gives you a so much better grasp of the entire situation and
also puts you in a better postion of being able to communicate and discuss
with the doc or if not doc, just gives knowledge for self adminstration but
don't give up, knowlege is power but knowledge is often gained inch by inch
not over night. Study a little, get some sleep, make sure to eat a good meal
and be patient.

:hug: Joydee

Hampster,

I thought I should correct use of word in post. I did not mean to say
there was a protocal from out of Harvard not on the TDCS thread posted
by both Voner and Catra. Rather that this is where think I saw it. Sorry
about that.

Joydee