Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-20-2015, 12:30 AM #501
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This once busy thread has been bumped in over a year. I was waiting to see if it was all hype or not.

This machine seems like the same concept??? http://www.fisherwallace.com/pages/advanced-pain-relief

Hopefully Catra will give an update when she drops by!
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Old 09-20-2015, 01:49 AM #502
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Not much to update on my end. I still do the treatments about one week every 2-3 months. I do notice that if I go longer without treatments that I start to have more flare ups and then after I go longer between flare ups. It was never the miracle cure...especially from a pain level standpoint for me...though maybe it's because I never found the "perfect" protocol. Things have been pretty out of whack since the baby though. I've considered upping my treatments to one week a month...but some how I never get around to it or find time...it's a miracle sometimes to have the time to take an extra bath or to pull out the TENS unit...both of which have immediate relief to their credit. The tDCS unit has an impact but it's over time and it takes a little while to set up. Now that my boyfriend has a job again...I'm thinking of making the baby's pick up times from daycare an hour or so later than now to give me that extra time for taking care of me...but it hasn't happened yet.

That unit looks interesting...I would certainly be open to trying it. The hardest thing about the tDCS unit was doing it without the guidance of a dr. As I said before...maybe there's a better protocol for me to use than the one I do...but having found one that does help to the extent that it does I am hesitant to play around with anything else.

Will update if I decide to go ahead with more than just maintenance treatments...but it definitely still is helping based on the fact that if I don't do the maintenance treatments or wait longer between them I do see an increase in flare ups, pain levels, and overall bad days. It's usually one of my first questions to myself now when I notice a pattern of bad days...when was my last tDCS treatment?
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Old 01-12-2019, 12:54 PM #503
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Let’s bring this thread back alive.

I have had CRPS for almost 4 years. I mainly got the activa dose for Dystonia as my pain is under control for the time being. In 5 days of treatment my dystonia which Imwas affecting both my left and right hand. In 5 days of treatment my dystonias are about 40-50% in remission.

This device is a miracle for those with crps movement disorders because there is Current no effect treatment until now.

I really hope to reach complete remission. Will keep everyone posted !
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