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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-29-2011, 03:42 PM | #1 | ||
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It think its great you are able to help others. This may be something I will try and if it works I will be bugging you more. Godbless Greg |
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11-29-2011, 04:33 PM | #2 | ||
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Dear Ballerina... Can you post the link where you purchased the unit, please.. Also do the leads come with the unit?? Or.. Call me..thanks Thanks, Kathy |
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11-29-2011, 09:19 PM | #3 | ||
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They also have the lead wires for only $6.95, Item # w53111. Sponge electrodes can be purchased from Amrex, www.amrexusa.com, 800-221-9069, Item # 2-A103. I suggest you do a search to see if you can get the device even cheaper. Just google "Iontophoresis device." The prices seem to be dropping. Also some sites require a script. Even the ones that request a script- if you order online you can many times by by pass it. Hope this helps! |
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"Thanks for this!" says: |
12-11-2011, 09:16 AM | #4 | ||
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I had a set back by overdoing it and I got slammed. Most of the more miserable symptoms returned and I was once again stuck in one room most of the day with a space heater. I was surprised because I did nothing weight bearing, and nothing at all strenuous. Long story short, I won't do that again.
Apparently tDCS behaves similarly to Ketamine in that if one bumps themselves or overdoes it the effects of the treatment can go south. Fortunately, unlike Ketamine, I didn't shell out $15,00 for the treatment and now do not have to worry about how to afford a booster treatment. I got back on track with my twice a day tDCS treatments for twenty minutes each and I am making steady progress. I am up to about two hours wearing clothing on my upper body. This is great because there was a time when I could wear nothing but a tube top pulled very low. When my husband asked me what I would like for Christmas I replied, "back up electrodes for my tDCS device." Hope my experience is of help to others! |
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12-11-2011, 10:34 AM | #5 | |||
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Ballerina,
I don't mean to sound ignorant but what is tDCS?
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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12-11-2011, 05:55 PM | #6 | ||
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You absolutely do not sound ignorant! tDCS is only offered in three locations in the U.S. (four if you count my kitchen, Ha! Ha!)
Transcranial Direct Current Stimulation treats many forms of neuropathic pain by passing a weak direct electrical current through the brain. Please see my earlier posts in this thread for a description. For a more in depth review of neuromodulation treatments please see below. http://www.ncbi.nlm.nih.gov/pmc/arti...3/?tool=pubmed Hope this helps! |
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12-11-2011, 07:38 PM | #7 | |||
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Thanks. It did...
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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12-11-2011, 07:55 PM | #8 | ||
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Dear Teri
you are a Trail Blazer girl, im rooting for you! Thank you so much for sharing all this with us. what you aree testing on yourself today, may become "main Stream" treatment for us all in the future. may you receive a painfree life for Christmas. hugs and blessings Lori Quote:
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Wishing you a day of pain free movement that turns into forever! |
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"Thanks for this!" says: | ballerina (12-11-2011) |
01-15-2012, 02:38 PM | #9 | ||
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Hi Ballerina,
I love your name by the way I use to be a dancer before I got CRPS, now I can barely walk and miss dancing a lot, but alas that is beside the point. You mentioned there were three places in the US that offer TDCS. I was just wondering if you knew the name of those institutions? Thank you so much for all your posts! What you are doing is truly amazing and inspirational to all of us that suffer with CRPS. I hope you continue to get relief from it! |
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"Thanks for this!" says: | ballerina (01-15-2012) |
12-11-2011, 10:45 AM | #10 | |||
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Sorry to hear that you had a setback. It doesn't matter what treatment you are going through (be it physical therapy, ketamine, tDCS, etc) setbacks can happen if you push yourself too hard. And it's so hard not to when you've been down and out for so long. I know for me I have slowly and steadily been making progress with my physical therapy (the TENS unit being a big help for my ankle pain...allowing me to do a little bit of weight bearing)...but I keep telling myself that I have to take it easy and slow. It's frustrating because the more stuff I can do, the more I want to do....but I know if I do too much too soon then I will be down for several days and it will be a big setback.
Good luck...I hope you can get back to where you were before. I've been following this thread with a lot of interest and once I can get myself back to work (which it looks like will happen in January) then I can start saving money and maybe give this a try. The TENS unit helps with my ankle but not with the pain in my entire upper body. Wearing clothes hurts...ALOT...but it sounds like yours is even worse. It took me months to build up enough of a tolerance to wear normal tops again...which is good because with the cold weather I think I would be sunk without something to protect me from the cold...but they still hurt and it would be nice to have some relief from that. I'll keep you in my prayers...really hope you have even more success the second go around. |
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