NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - No burning? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/161117-burning.html)

Quote:

Originally Posted by MrBud (Post 827019)

The burning stopped before the block. Did yours spread to the other leg?

Not my other leg (thank goodness...it's nice to have at least ONE working) but it spread to my entire upper body between my waist and neck (including hands and arms). But I think all the icing and immobilization that they did in the beginning made the RSD worse. My spread actually occurred after a block...which was a year after my first block and with a different doctor.

Quote:

Originally Posted by MrBud (Post 826825)

Hi I was diagnosed with CRPS 4 months ago in my left ankle. It spread to the other foot and is now spreading up both legs. I only had burning for 3 weeks then it just stopped. Now I'm left with this tingling sensations up my legs. It is also in my left hand where I had nerve damage over 20 years ago. I'm so confused as to what is going on with my body. Dr just says to up my Lyrica with makes my body more hypersensitive. Any thoughts?

Welcome Bud! My burning comes and goes and it depends on what kind of situation I'm in. I have also learned how to detect when I am about to go into a flare...first, I get cold chills and then hot flashes and of course the burning starts. The pain is ALWAYS there.. We all have so many different symptoms at any given to that I call myself a snowflake...no two days and no two flares or symptoms are alike!