NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - the rash (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/16124-rash.html)

Joan... I'm so glad I saw your post. I've had the very same problem. My rsd is in my left leg but I keep getting a rash on my upper chest and under my arms. The doctor can't figure it out. I was so desperate that I stopped my meds for a while but it didn't make a difference. I don't think its related to the meds. The only other thing I have wrong with me is the rsd...it has to be that. I haven't found anything that makes it go away...it just seems to do it's own thing. Hope you're finding some relief...Take care.

I Have Always Just Assumed The Rash Was From The Rsd, And Again I Get To Say .... There Is Nothing We Can Do To Fix It! Ha! It Seems That Is The Answer For All The Rsd Problems. Mine Comes And Goes For No Particular Reason And Feels Hot But Does Not Itch. So Be It ....
Whoops Sorry If I Offeneded But I Typed In Capitals Again, It Is A Habit But I Am Too Tired To Redo It .... Joan

Hey,

I get them too. They are annoying as they ruin the look of tops..! it goes bright red and hot.. haven't found anything to help. Just had to accept that some days are not low cut top days....!!!!

Frogga xxxxxxxxxxxx

Joan, my doctor said it is a pain rash

Joan, my doctor said they have no scientific reason, no explanation, but it is a pain rash, mine is recurring. on my back, and neck sometimes upper chest.Can be severe or mild. On my back seem to always be just under the surface.Take care,, cz

isn't it always a relief to know other have the same problems? i don't care if i have the rash, i wear v necks anyhow .... i figure, i have a cane, a brace and a purple foot so who will notice??? ha! joan

What you are describing sound like RSD blisters. I had em same as you - different places on my body but not on one nerve so it wasn't shingles but looked simlar.

do a google search on rsd blisters and you should be able to find some pictures.

Mine were diagnosed by Dr. Daniel Carr who was an RSD researcher as well as a respected RSD doctor, so I believe that his diagnosis was correct( for that anyways)

I only got them once but one of them left a scar on my face of a tiny red dot for the longest time. It's still visible, but very faint.

Peace and hope,
Lisa

Quote:

Originally Posted by Rainbow422 (Post 83533)

Recently, I had a small but worrysome bout with blistering. They poped up in different places on my body... At first I thought it was shingles, but the doctor told me that shingles is confined to one nerve group and aree in large patches.

I had only one here and there. He told me not to worry, he did not know what they were, but to keep from scratching because of the possibility of spreading infection to the open sore.

They were small like a little burn, with clear fluid. They would itch for a bit, and burn and sting. Then the fluid would release and they would heal. But I was extremely careful not to scratch. They seem to have calmed now... I hope it stays as such.

Anyone had this happen to them with RSD?

Hugs,

Rain :hug:

with the blisters. does anyone find they occur where the circulation is worst? My feet are very black but I have boiling blister like things over them.

thanks

froggsy.xxxxxxxxxxxxxxxxxxx

Frogga,
YES, Yes, Yes. Love, Roz xxx

But Why???? Hugs, Roz xxx

are they black and red?

because they are annoying and are going through a cultural and racist labelling issue... maybe it's late teenage rebellion?? my feet are trying to develop their own cultural identity?

or maybe they are trying to hint at all the film roles I could get with dead legs (just think, everytime the heroine dies there could be a shot of dead legs and feet).

sorry, only pulling your leg

hope your eye is doing better!!!!! Froggaxxxxxxxxxxxxxxxxxxxxxxxx