Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-18-2011, 12:41 AM #21
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I guess I was lucky the Imitrex worked for me. Never had the shots. After all the years of almost uncontrollable migraines; this,for me, was a miracle.

I'll bet it was like a "zoo" trying to shop today. Wish you all the best. You have a lot on your plate to deal with.
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Nanc (12-18-2011)

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Old 12-18-2011, 01:01 AM #22
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I guess I was lucky the Imitrex worked for me. Never had the shots. After all the years of almost uncontrollable migraines; this,for me, was a miracle.

I'll bet it was like a "zoo" trying to shop today. Wish you all the best. You have a lot on your plate to deal with.
Happy that the Imitrex works for you! I have a good friend who takes the shots, pretty often. They are the only thing that works for her.

It was definitely busy out there today, we stayed clear of the malls so it wasn't as bad where we went...still busy though! Definitely have a lot to deal with, but trying to get by the best I can.

Wishing you the best as well!
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Old 12-18-2011, 02:58 AM #23
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Please, please research RF done to RSD patients before having it done!!! I understand it can be effective for non RSD patients, but this is incredibly risky. I had it done many years ago and it increased my allodynia dramatically, and it never decreased to pre procedure levels, although meds help mask the issue. Hooshmand state's it shouldn't be performed on RSD patients, and there's plenty of others out there who have had serious bad results.

It was described to me as a slightly more intense version of a steallate ganglion block. What actually happens is heat is directed to the problem area at very high levels to destroy the bad nerves. In my case, it just made my nerves even more dysfunctional.

If there is one procedure I most fear for RSD patients to undergo other than amputation this is seriously it. Speaking of which, amputation was what I was fantasizing about in the weeks after having RF. In the 10 years I've had RSD, this was without question the worst thing that happened to me. And the doc did of course try to deny that the procedure could have possibly exacerbated my condition.
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Old 12-18-2011, 03:33 PM #24
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Please, please research RF done to RSD patients before having it done!!! I understand it can be effective for non RSD patients, but this is incredibly risky. I had it done many years ago and it increased my allodynia dramatically, and it never decreased to pre procedure levels, although meds help mask the issue. Hooshmand state's it shouldn't be performed on RSD patients, and there's plenty of others out there who have had serious bad results.

It was described to me as a slightly more intense version of a steallate ganglion block. What actually happens is heat is directed to the problem area at very high levels to destroy the bad nerves. In my case, it just made my nerves even more dysfunctional.

If there is one procedure I most fear for RSD patients to undergo other than amputation this is seriously it. Speaking of which, amputation was what I was fantasizing about in the weeks after having RF. In the 10 years I've had RSD, this was without question the worst thing that happened to me. And the doc did of course try to deny that the procedure could have possibly exacerbated my condition.
Thanks for your advice and input, I will look into it further.

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