[bubbleshea]

here are some pictures of the skin lesions with RSD that my daughter has

[Kakimbo]

[QUOTE=bubbleshea;631947
Gosh. I am so sorry. We are here for you. Please feel free to express yourself. Nothing is off-limits...

[bobber]

Anything you need,feel free to ask,,Im so sorry to see you daughter and you go thru this ordeal,,,,may the Lord richly bless you both

[Shelley neck]

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

Hi mark, i have a black walker that has a basket for shopping to, i will race ya. I hope you enjoy your time catching up with family. If you ever wont to get out of the cold i live in Sunny Queensland Australia come for a visit. I started getting swollen ankles and pins and needles in my legs from surgery and figured i sat around to much, thats were the walker came in handy. i also learnt that i dont sweat any more so all the fluid builds up so take fluid retention tablets, dont know if that will work for you. But to live in Sunny Qld and not sweat is not funny.

[Jenna Delaney]

Originally Posted by Enjny

So this is my RST- Its been 7 months and its gotten to the point of me being in a wheel chair, but well see what happens :/

Have you tried a nerve block? It has helped my pain but it doesn't last but a few months. I hope this helps!

[KatTru]

I've had RSD/CRPS for many years. Started in my left arm, has spread to upper torso and face, and left arm. I was on morphine for a few years until my new pain specialist took me off of it and put me on ketamine. The swelling went down some, the rash has almost disappeared, I still have discoloration but the burning is gone. The spread of CRPS has not stopped but I am real thankful for the ketamine. It works for me and others, but some folks don't have as much luck on it. I think the morphine actually made the symptoms worse.
Just thought I'd throw this in.

[oceansangl]

Originally Posted by GoTimothy

I HAVE THAT ON MY LEGS, BUT NOT AS BAD. My doctor said it was psoriasis, but I don't think so. I thought it was caused by my
stellate ganglion block that I had in 1993. You might not have noticed the hair loss on the legs like I notice. I had hairy legs, but now there are bald spots on them. I live in Michigan and It gets worse when it starts to get cold. I have to put tons of lotion on three or four times a day. I use the cheep stuff, Suave Skin Therapy. But after winter starts I don't need so much and in spring none at all. The legs itch like hell, but I know better not to scratch. Yours looks like your using oil which makes them soft but that made mine worse. The oil does not allow the skin to breath. Try a different lotion. Was wondering where you live. I am thinking moving to where it does not get so cold.

I alo live in Michigan. I know what youe talking about. I get the samething. My doc gave me a free sample of a oinmnt to try. I will send yo message regarding what the name is.

[bubbleshea]

[QUOTE=kim ames;632015][QUOTE=bubbleshea;631947
Gosh. I am so sorry. We are here for you. Please feel free to express yourself. Nothing is off-limits...[/QUOTE]

Here is the problem..they are getting worse both inside and out. Her right leg has just about shut down at this point. Waiting ot get a doctor that knows what they are doing with a case this bad is heartbreaking.

[bubbleshea]

Originally Posted by r.s.d.sucks

hi, ive had rsd for 3 years now and i know what your talking about, the purpilsh almost like a bruseing ur getting isnt a bruse. its acutly your skin changeing color due to verous things takeing place. its one of the big key markers for rsd ,, well not the main but one of the things they look for. its not a rash jsut basicly a symtom of rsd. the burning your talking about i know that pain very very well, i have tryed billions of meds procidors and just things ud never belive some one would try. all in defet. ive talked to others online with rsd and they too have yet to find anything to help with that pain, im sorry to tell you.
what i get are blisters can be from the size of a pea up to a grapfruit, evently the skin dies and flakes off. the funny part is when i first got one, i went to my doc about it cause i noticed a some what raised red full circle forming on my skin, he tested me right away for a fungal infection, and sure enough it was negative.a week later it blisterd up and talk about pain, it took 2 weeks before it finaly burst, and honestly im not sure with was more painfull, the blister or the bursting. anyways ive continued to get them off and on no rhyme nor reson, jsut a symptom that apprentlty isnt commen for rsd but dose happen. i have found one other person who gets them as well. what i want to warn evry one about is. these rashes before they turn to blisters look very very simular to ring worm,, witch is a fungal infection of the skin, and most doctors are very fast to tell u that is what it is, when in fact for the most part its not, it is jsut your rsd giveing u new fun pains. so pls if any one gets one of these make the doctor take a skin scrap sample and check it under the mic so that u know for sure if it is or isnt., there is care that is needed to be taken when u get theses blisters from rsd. im putting up a pic of one i currently have, it started to form about 4 days ago, and i will try to put more pics up as if developes for evry one. has any one ealse with rsd gotten theses things im very curious seeing as ive only spoke to one other person and she lives acrosed the country from me and the docs that do know about rsd say its really very uncommen symptom but dose happen. i hope this helps you guys out some

My daughter has always had these with the RSD. they can also happen internally. Some of her pics are posted on this thread

[flcracker57]

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

Been on long-term morphone for 1.5 years. It won't hurt you, I guess! Supposed to have a Stellate Ganglion Block in my neck in 2 w3kws. Nothing else has worked. Had every kind of injection and therapy known to man. All that's left is a stimulator, and I'm not keen on that. Anyone care to give their experiences with the stellate ganglion blocks? Thanks!