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11-05-2010, 01:59 AM | #121 | ||
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hi
lorigood243 do you often get bruises with rsd? a few years ago i had bruises all over my arms and nobody knew where they came from, they checked my coagulation-system, but everything was ok...maybe this were the first symptoms of rsd? could that be? |
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"Thanks for this!" says: | DejaVu (09-09-2015) |
11-05-2010, 09:05 PM | #122 | ||
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Quote:
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"Thanks for this!" says: | DejaVu (09-09-2015) |
12-09-2010, 01:20 AM | #123 | |||
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Elder
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JUST A REMINDER...
Please post on the main RSD forum. Everyone is important!!! We don't want anyone to get lost or forgotten!!! Many posts get lost on this thread (RSD Photos and Pictures Thread) as this thread is not often looked at or read. If you are replying to a thread here, and you want to make sure it gets read, you can always
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
Last edited by Abbie; 12-09-2010 at 01:39 AM. |
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12-13-2010, 08:02 AM | #124 | |||
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trying to get the hang of this.
http://www.flickr.com/photos/51984290@N03/5257659524/ Well this takes you to the flicker page where the two other pics are. This was just days after the reveal. I kind of thought something was happening, because I could tell my nerve block was wearing off. But then, boom, someone went and attached that bike tire air pump to my right foot. Now they match. I just wish I could find the connector, I'd pull it out in a heartbeat. But they each have minds of their own. My husband reassures me that no one's foot has ever exploded. I remind him that I've been first before in things people don't compete to win first place. I had two cortisone shots 4 wks ago and swelling much better, but beginning to creep back with the red and the burning. It's been a nice quiet 4 weeks. I've actually felt guilty some days I had no pain at all. I'm taking notes here, so when I go to my doc I'll have the right questions to ask. thanks to all for your sharing your pain, your progress, your failures, your successes and your encouragement. It is beyond words the comfort I find after a year of 'you are making this up' looks. May God bless you all this Christmas with comfort, respite, and love. pat e |
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"Thanks for this!" says: | DejaVu (09-09-2015) |
12-13-2010, 06:32 PM | #125 | ||
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Junior Member
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"Feet after shower"...!
After my bunionectomy, this was the first thing I noticed that scared the heck outta me, and tipped me off that something was terribly wrong (eventually found out it was indeed rsd/crps). My foot (and now both feet, and left leg) turn black/purple, top and bottom up, looks like frostbite. and it's so painful, I have to prioritize my shower activities (wash hair one day, shave the next, lol), I can only be in there for so long before I can't take it any longer. and then it's pain pills, and legs up in bed for a good couple of hours before I can function again. Let's just say I dread showers now...I go the bath route whenever I can- all about adapting I guess. but thank you for sharing, I thought it was just me!! |
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12-14-2010, 08:50 AM | #126 | ||
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hi Leiea
im sorry for my very late reply...i didnt see your question to me untill now. i get small bruises all over my body but i take prednisone which the doctors say causes it. i didnt bruise before my surgery on my abdomen, so for me it wasnt an rsd symptom before i got sick. hope your having a godd painfree day! lori
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Wishing you a day of pain free movement that turns into forever! |
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"Thanks for this!" says: | DejaVu (09-09-2015) |
12-14-2010, 05:08 PM | #127 | ||
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Junior Member
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Same diagnosis many years ago... It is important to get the inflammation down. Either prescription or supplement. NAC is very important supplement.
You may want to learn to do a nasal nerve block, either from your pain doc or an ear nose doc. You go down your nose into your sinus cavity to a nerve bundle with a long 1 sided cutip with 2% liquid lidocaine. These are some things I have learned through the years that have helped... Jos Quote:
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"Thanks for this!" says: | DejaVu (09-09-2015) |
06-23-2011, 05:44 PM | #128 | ||
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I thought my leg was bad. It turns colors, like a greyish blue but does not stay that way. It gets real cold but that does not stay that way either. This will get you though. The hair on my right leg grows way quicker and way thicker than on my left leg. One of my doctors that I see told me it was due to the RSD. Of course the veins in my lower leg and foot are awfull ugly now since all his has been happening to me. I am glad I at least do not have a rash like some of you. I feel sorry for you. I have the weakness, the burning sickening pain that stops you in you tracks.
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"Thanks for this!" says: | DejaVu (09-09-2015) |
06-27-2011, 09:36 AM | #129 | ||
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I have taken Morphine ( both long acting & immediate acting ) for 9 years. I (on my own) try to lower the dosage, even if just for one or two dosages. I have found that this helps from preventing a "tolerance" to the drug - which is what I think you fear. There are MANY, MANY pain meds out there that are Stronger than Morphine - So don't worry that you will reach the pinnacle of pain meds.
I truly am not a proponent of Holistic medication, BUT ... I will share my last week's schedule with you: 3:00 am - 2 Morphine Imm Release, Ice Packs on the most painful (YES IT HURTS WORSE AT FIRST, BUT I PROMISE IT WORKS) Ice Packs left on 20 minutes - be careful not to freeze the skin, ; Stretching ( just moving even if a small bit for 30 minutes, then 1 Klonopin, then 4 hours & I take 1 Soma, then the Ice Routine, THEN 1 LONG ACTING MORPHINE. Then I repeat my regime again. Though I don't like it, I DID take Morphine for so long that it began to stop helping me. I'm not saying my schedule is for everyone, but I am taking, or Applying something for my pain almost every hour. I could not live without Soma & Klonopin. I would give up Morphine before Soma or Klonopin. Don't worry about running out of strong enough drugs .... NOW Whether they will prescribe them for you or not is an entirely different matter. I have NO FAITH in the medical profession any longer. The "new healthcare program", has & WILL, in my opinion, make it extremely hard for doctors to treat their RSD patients as the doctor would if he were allowed to use purely his medical knowledge & judgement. It terrifies me! FRENCH FRIES! OH PLEASE! We have people with REAL MEDICAL ISSUES who are IGNORED, IGNORED .... But we can talk about Mrs Obama's love for French Fries for Days! Would you say the priorities are not straight?? I'm convinced I must leave the U S to get the appropriate treatment. It is so very sad!! Quote:
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"Thanks for this!" says: | DejaVu (09-09-2015) |
06-28-2011, 09:58 PM | #130 | ||
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Junior Member
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I too would say do not worry about that. I have had to change or switch back & forth to different meds many times, with the long-acting because my body would build a tolerance. As for the short-acting, I could not survive without my SOMA, either & the insurance has tried many times to say that it is not needed for RSD/CRPS....I wish they could get this to find out how well they would do without it. I also use NORCO for pain which works great for me & without the side effects so many others have. I took Morphine for years but I switched out of it about 8 months ago & now use the Fentnyl patch for long-acting & am much happier with it. However, as I have found with all long-acting's I have been on, none of them work as long as they promise & I find that the short-acting is what saves me.
Washington State recently passed a Chronic Pain Bill that has capped the amount of pain meds our doctors can prescribe to us if we do not have cancer.....YES, they word it just like that. Cancer pain & everyone else with NON-CANCER related pain. Us NC patients are now subjected to more consultation with yet more doctors (like we haven't seen dozens already) to get the correct dosages to allow us to live a somewhat functional life. So, as it said in the previous reply....don't worry about what meds, just worry about if you will be able to get your doctor to prescribe the dose you need to control it. |
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"Thanks for this!" says: | DejaVu (09-09-2015) |
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