[leiea]

hi

lorigood243 do you often get bruises with rsd? a few years ago i had bruises all over my arms and nobody knew where they came from, they checked my coagulation-system, but everything was ok...maybe this were the first symptoms of rsd? could that be?

[daynett]

Originally Posted by kahmasayshi3

Still waiting for an official RSD diagnosis. I injured my knee at work and I am on work comp. I had a meniscus repair surgery in december and the pain never went away, I have swelling that stops in a straight line above my knee and I cant walk, move, sit, or do anything without deep bone aching pain that feels like someone is pulling my skin from the bone. Im taking lyrica and it helped at first but I think I need to up the dose because it seems to have worn off.

Any thoughts or comments about the pic and rsd would be appreciated.
Shannon

Hi Shannon I'm new to all this so forgive me any errors. I too had meniscus repair, and didn't get much better either. I had surgery July 2009, second surgery Jan.2010 and still not back to normal. I still have swelling and pain. I also am on lyrica, RSD has been mention but no one will commit. I get the burning pain and pins and needles, not really sure of all the signs of RSD. But understand what you are going through and wish you the best if you learn anything let me know and I will so the same. Good luck

[Abbie]

JUST A REMINDER...

Please post on the main RSD forum. Everyone is important!!! We don't want anyone to get lost or forgotten!!!

Many posts get lost on this thread (RSD Photos and Pictures Thread) as this thread is not often looked at or read.


If you are replying to a thread here, and you want to make sure it gets read, you can always

1. click on quote...
2. then highlight the quoted information... right click, click on "copy"
3. Click on your browsers back button twice.
4. Click on New Thread
5. Right click in the main section... then paste.
6. Don't forget to put something in the title section... ie...attn--the person quoted.
7. After the quoted section you can write whatever you need to ask or talk about.

Thanks,

[gramE]

trying to get the hang of this.

http://www.flickr.com/photos/51984290@N03/5257659524/

Well this takes you to the flicker page where the two other pics are. This was just days after the reveal. I kind of thought something was happening, because I could tell my nerve block was wearing off. But then, boom, someone went and attached that bike tire air pump to my right foot. Now they match. I just wish I could find the connector, I'd pull it out in a heartbeat. But they each have minds of their own.

My husband reassures me that no one's foot has ever exploded. I remind him that I've been first before in things people don't compete to win first place.

I had two cortisone shots 4 wks ago and swelling much better, but beginning to creep back with the red and the burning. It's been a nice quiet 4 weeks. I've actually felt guilty some days I had no pain at all.

I'm taking notes here, so when I go to my doc I'll have the right questions to ask.

thanks to all for your sharing your pain, your progress, your failures, your successes and your encouragement. It is beyond words the comfort I find after a year of 'you are making this up' looks.

May God bless you all this Christmas with comfort, respite, and love.
pat e

[SnowWhyte]

"Feet after shower"...!
After my bunionectomy, this was the first thing I noticed that scared the heck outta me, and tipped me off that something was terribly wrong (eventually found out it was indeed rsd/crps). My foot (and now both feet, and left leg) turn black/purple, top and bottom up, looks like frostbite. and it's so painful, I have to prioritize my shower activities (wash hair one day, shave the next, lol), I can only be in there for so long before I can't take it any longer. and then it's pain pills, and legs up in bed for a good couple of hours before I can function again. Let's just say I dread showers now...I go the bath route whenever I can- all about adapting I guess. but thank you for sharing, I thought it was just me!!

[lorigood243]

hi Leiea

im sorry for my very late reply...i didnt see your question to me untill now. i get small bruises all over my body but i take prednisone which the doctors say causes it. i didnt bruise before my surgery on my abdomen, so for me it wasnt an rsd symptom before i got sick. hope your having a godd painfree day!
lori

Originally Posted by leiea

hi

lorigood243 do you often get bruises with rsd? a few years ago i had bruises all over my arms and nobody knew where they came from, they checked my coagulation-system, but everything was ok...maybe this were the first symptoms of rsd? could that be?

[Josephina]

Same diagnosis many years ago... It is important to get the inflammation down. Either prescription or supplement. NAC is very important supplement.
You may want to learn to do a nasal nerve block, either from your pain doc or an ear nose doc. You go down your nose into your sinus cavity to a nerve bundle with a long 1 sided cutip with 2% liquid lidocaine. These are some things I have learned through the years that have helped... Jos

Originally Posted by DDayMBB

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

[linda koeppel]

I thought my leg was bad. It turns colors, like a greyish blue but does not stay that way. It gets real cold but that does not stay that way either. This will get you though. The hair on my right leg grows way quicker and way thicker than on my left leg. One of my doctors that I see told me it was due to the RSD. Of course the veins in my lower leg and foot are awfull ugly now since all his has been happening to me. I am glad I at least do not have a rash like some of you. I feel sorry for you. I have the weakness, the burning sickening pain that stops you in you tracks.

[yiisd]

I have taken Morphine ( both long acting & immediate acting ) for 9 years. I (on my own) try to lower the dosage, even if just for one or two dosages. I have found that this helps from preventing a "tolerance" to the drug - which is what I think you fear. There are MANY, MANY pain meds out there that are Stronger than Morphine - So don't worry that you will reach the pinnacle of pain meds.
I truly am not a proponent of Holistic medication, BUT ... I will share my last week's schedule with you: 3:00 am - 2 Morphine Imm Release, Ice Packs on the most painful (YES IT HURTS WORSE AT FIRST, BUT I PROMISE IT WORKS) Ice Packs left on 20 minutes - be careful not to freeze the skin, ; Stretching ( just moving even if a small bit for 30 minutes, then 1 Klonopin, then 4 hours & I take 1 Soma, then the Ice Routine, THEN 1 LONG ACTING MORPHINE.
Then I repeat my regime again. Though I don't like it, I DID take Morphine for so long that it began to stop helping me.
I'm not saying my schedule is for everyone, but I am taking, or Applying something for my pain almost every hour.
I could not live without Soma & Klonopin. I would give up Morphine before Soma or Klonopin.
Don't worry about running out of strong enough drugs .... NOW Whether they will prescribe them for you or not is an entirely different matter. I have NO FAITH in the medical profession any longer. The "new healthcare program", has & WILL, in my opinion, make it extremely hard for doctors to treat their RSD patients as the doctor would if he were allowed to use purely his medical knowledge & judgement. It terrifies me! FRENCH FRIES! OH PLEASE! We have people with REAL MEDICAL ISSUES who are IGNORED, IGNORED .... But we can talk about Mrs Obama's love for French Fries for Days! Would you say the priorities are not straight??
I'm convinced I must leave the U S to get the appropriate treatment. It is so very sad!!

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

[DarlaDaniels]

I too would say do not worry about that. I have had to change or switch back & forth to different meds many times, with the long-acting because my body would build a tolerance. As for the short-acting, I could not survive without my SOMA, either & the insurance has tried many times to say that it is not needed for RSD/CRPS....I wish they could get this to find out how well they would do without it. I also use NORCO for pain which works great for me & without the side effects so many others have. I took Morphine for years but I switched out of it about 8 months ago & now use the Fentnyl patch for long-acting & am much happier with it. However, as I have found with all long-acting's I have been on, none of them work as long as they promise & I find that the short-acting is what saves me.
Washington State recently passed a Chronic Pain Bill that has capped the amount of pain meds our doctors can prescribe to us if we do not have cancer.....YES, they word it just like that. Cancer pain & everyone else with NON-CANCER related pain. Us NC patients are now subjected to more consultation with yet more doctors (like we haven't seen dozens already) to get the correct dosages to allow us to live a somewhat functional life. So, as it said in the previous reply....don't worry about what meds, just worry about if you will be able to get your doctor to prescribe the dose you need to control it.